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Foundation Fighting Blindness Retinal Degeneration Fund

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Single Organization Support (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$8.75M (2024)

Expenses
$1.31M (2024)

Total Assets
$52.5M (2024)

Total Liabilities
$85.3k (2024)

Source: Form 990 tax filings from 2012 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$8,751,135
Expenses
$1,309,685
Net Income
$7,441,450
Net Assets
$52,375,519
Notable Sources of Revenue Percent of Total Revenue
Contributions $8,307,442
94.9%
Program Services $0
Investment Income $283,756
3.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $159,937
1.8%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $641,421
49.0%
Professional Fundraising Fees $0
Other Salaries and Wages $290,912
22.2%
Assets/Debt
Total Assets $52,460,807
Total Liabilities $85,288
Net Assets $52,375,519
Compensation
Key Employees and Officers Compensation Related Other
Russell W Kelley (Managing Director, Rd Fund) $347,534 $0 $64,959
Alicia Kemble (Senior Venture Associate) $135,548 $0 $21,753
Jason D Menzo (Ceo) $104,122 $416,489 $68,385
Peter Ginsberg (Coo) $72,505 $290,019 $63,272
Mark Blumenkranz Md Mms (Director) $0 $0 $0
David Brint (Ex Officio Director) $0 $0 $0
Warren Thaler (Director) $0 $0 $0
Jose Alain Sahel Md (Director) $0 $15,000 $0
Adrienne Graves Phd (Chairman) $0 $0 $0
Kelly Lisbakken (Director) $0 $0 $0
Jacque Duncan Md (Director) $0 $75,000 $0
Jonathan Steinberg Md (Director) $0 $0 $0
Tony Adamis Md (Director) $0 $0 $0
Jean Bennett Md Phd (Director) $0 $0 $0
Catherine Bowes Rickman Phd (Director) $0 $15,000 $0

Document Links

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$9,316,837
Expenses
$1,014,874
Net Income
$8,301,963
Net Assets
$47,237,610
Notable Sources of Revenue Percent of Total Revenue
Contributions $14,920,274
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$5,603,437
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $674,390
66.5%
Professional Fundraising Fees $0
Other Salaries and Wages $28,027
2.8%
Assets/Debt
Total Assets $47,303,067
Total Liabilities $65,457
Net Assets $47,237,610
Compensation
Key Employees and Officers Compensation Related Other
Russell W Kelley (Managing Director, Rd Fund) $280,543 $0 $59,290
Benjamin R Yerxa (Ceo (Thru 7/1/22)) $133,821 $445,893 $42,458
Jason D Menzo (Ceo (Beg 7/1/22)) $91,780 $367,118 $64,129
Peter Ginsberg (Coo) $66,023 $264,095 $59,015
Mark Blumenkranz Md Mms (Director) $0 $0 $0
David Brint (Ex Officio Director) $0 $0 $0
Warren Thaler (Director) $0 $0 $0
Jose Alain Sahel Md (Director) $0 $15,000 $0
Adrienne Graves Phd (Chairman) $0 $0 $0
Kelly Lisbakken (Director) $0 $0 $0
Jacque Duncan Md (Ex Officio Director) $0 $75,000 $0
Jonathan Steinberg Md (Ex Officio Director) $0 $0 $0
Tony Adamis Md (Director) $0 $0 $0
Jean Bennett Md Phd (Director) $0 $0 $0
Catherine Bowes Rickman Phd (Director) $0 $15,000 $0

Document Links

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$15,424,974
Expenses
$1,051,912
Net Income
$14,373,062
Net Assets
$44,933,581
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,056,682
97.6%
Program Services $25,000
0.2%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $343,292
2.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $722,044
68.6%
Professional Fundraising Fees $0
Other Salaries and Wages $45,643
4.3%
Assets/Debt
Total Assets $45,350,093
Total Liabilities $416,512
Net Assets $44,933,581
Compensation
Key Employees and Officers Compensation Related Other
Russell W Kelley (Svp, Rd Fund) $309,500 $0 $54,936
Benjamin R Yerxa (Ceo/Pres (Ex Officio)) $232,152 $431,138 $56,967
Peter Ginsberg (Evp, Chief Business Officer) $122,894 $184,340 $57,793
Jason D Menzo (Coo) $115,343 $346,030 $59,915
David Brint (Ex Officio Director) $0 $0 $0
Warren Thaler (Chairman) $0 $0 $0
Eugene De Juan Md (Director) $0 $0 $0
Adrienne Graves Phd (Director) $0 $0 $0
Kelly Lisbakken (Director) $0 $0 $0
Jacque Duncan Md (Ex Officio Director) $0 $75,000 $0
Jonathan Steinberg Md (Ex Officio Director) $0 $0 $0
Tony Adamis (Director) $0 $0 $0

Document Links

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$21,228,882
Expenses
$2,021,967
Net Income
$19,206,915
Net Assets
$30,604,571
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,140,788
52.5%
Program Services $27,500
0.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $10,060,594
47.4%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $683,466
33.8%
Professional Fundraising Fees $0
Other Salaries and Wages $62,514
3.1%
Assets/Debt
Total Assets $31,011,511
Total Liabilities $406,940
Net Assets $30,604,571
Compensation
Key Employees and Officers Compensation Related Other
Russell W Kelly (Vp, Investments & Alliance) $225,588 $0 $49,753
Benjamin R Yerxa (Ceo/Pres (Ex Officio)) $181,259 $336,624 $52,808
Jason D Menzo (Coo) $18,842 $357,995 $57,117
Nancy Davenport (Vp, Finance) $18,662 $167,955 $12,346
David Brint (Ex Officio Director) $0 $0 $0
Warren Thaler (Chairman) $0 $0 $0
Eugene De Juan Md (Director) $0 $0 $0
Adrienne Graves Phd (Director) $0 $0 $0
Kelly Lisbakken (Director) $0 $0 $0
Jacque Duncan Md (Ex Officio Director) $0 $0 $0
Jonathan Steinberg Md (Ex Officio Director) $0 $0 $0

Document Links

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$11,939,089
Expenses
$2,984,402
Net Income
$8,954,687
Net Assets
$10,310,777
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,939,089
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $348,210
11.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $11,438,657
Total Liabilities $1,127,880
Net Assets $10,310,777
Compensation
Key Employees and Officers Compensation Related Other
Russell W Kelly (Vp, Investments & Alliances) $210,344 $0 $47,392
Benjamin R Yerxa (Ceo/Pres (Ex Officio)) $74,365 $421,400 $49,683
David Brint (Ex Officio Director) $0 $0 $0
Warren Thaler (Chairman) $0 $0 $0
Eugene De Juan Md (Director) $0 $0 $0
Adrienne Graves Phd (Director) $0 $0 $0
Kelly Lisbakken (Director) $0 $0 $0
Jason Morris (Director) $0 $0 $0
Jacque Duncan Md (Ex Officio Director) $0 $0 $0
Jonathan Steinberg Md (Ex Officio Director) $0 $0 $0
Jason D Menzo (Coo) $0 $364,166 $52,595

Document Links

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,077,860
Expenses
$3,063,769
Net Income
$14,091
Net Assets
$3,638,244
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,077,860
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $345,039
11.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $4,037,044
Total Liabilities $398,800
Net Assets $3,638,244

Document Links

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$13,259,129
Expenses
$11,809,240
Net Income
$1,449,889
Net Assets
$3,213,686
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,990,979
98.0%
Program Services $268,150
2.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $333,249
2.8%
Professional Fundraising Fees $0
Other Salaries and Wages $125,067
1.1%
Assets/Debt
Total Assets $3,894,860
Total Liabilities $681,174
Net Assets $3,213,686
Compensation
Key Employees and Officers Compensation Related Other
Patricia Zilliox (Chief Drug Dev Off (Thru 11/10/17)) $224,459 $0 $8,612
Mort Goldberg (Chairman) $85,578 $0 $0
David Brint (Director) $0 $0 $0
Gerald Cagle (Director) $0 $0 $0
Peter Crowley (Director) $0 $0 $0
Edward Gollob (Director) $0 $0 $0
Gordon Gund (Director) $0 $0 $0
Robert Heidenberg (Director) $0 $0 $0
Lester Kaplan (Director) $0 $0 $0
Dee Mellor (Director) $0 $0 $0
Ena Prossner (Director) $0 $0 $0
Jonathan Steinberg (Director) $0 $0 $0
William Thomas Schmidt (Ceo/Pres (Ex Officio) (Thru 7/14/17)) $0 $278,906 $8,452
Benjamin R Yerxa (Ceo/Pres (Ex Officio) (Beg 10/17)) $0 $87,474 $6,925
Annette Hinkle (Treas (Ex Officio) (Thru 3/30/18)) $0 $129,420 $8,266
Jason D Menzo (Coo (Beg 3/12/18)) $0 $0 $0

Document Links

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,414,179
Expenses
$4,800,240
Net Income
$613,939
Net Assets
$1,756,729
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,333,359
98.5%
Program Services $80,820
1.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,996
1.6%
Professional Fundraising Fees $0
Other Salaries and Wages $342,645
7.1%
Assets/Debt
Total Assets $4,864,479
Total Liabilities $3,107,750
Net Assets $1,756,729
Compensation
Key Employees and Officers Compensation Related Other
Patricia Zilliox Phd (Chief Drug Development Officer) $234,752 $0 $9,202
Mort Goldberg (Chairman) $78,996 $0 $0
David Brint (Director) $0 $0 $0
Gerald Cagle (Director) $0 $0 $0
Peter Crowley (Director) $0 $0 $0
Edward H Gollob (Director) $0 $0 $0
Gordon Gund (Director) $0 $0 $0
Robert Heidenberg (Director) $0 $0 $0
Lester Kaplan (Director) $0 $0 $0
Dee Mellor (Director) $0 $0 $0
Ena Prosser (Director) $0 $0 $0
William T Schmidt (Ceo And President (Ex Officio)) $0 $354,215 $9,941
Annette Hinkle Cpa (Treas. (Ex Officio) As Of 04/2017) $0 $101,465 $3,040
Lorraine Hirsch Cpa (Treas. (Ex Officio) Until 04/2017) $0 $178,942 $21,271

Document Links

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,694,149
Expenses
$3,491,183
Net Income
$202,966
Net Assets
$1,088,187
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,535,728
95.7%
Program Services $17,151
0.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $143,855
3.9%
Net Inventory Sales $0
Other Revenue -$2,585
Notable Expenses Percent of Total Expenses
Executive Compensation $83,496
2.4%
Professional Fundraising Fees $0
Other Salaries and Wages $296,074
8.5%
Assets/Debt
Total Assets $2,709,507
Total Liabilities $1,621,320
Net Assets $1,088,187
Compensation
Key Employees and Officers Compensation Related Other
Patricia Zilliox Phd (Chief Drug Development Officer) $228,080 $0 $9,418
Mort Goldberg (Chairman) $83,496 $0 $0
David Brint (Director) $0 $0 $0
Gerald Cagle (Director) $0 $0 $0
Peter Crowley (Director) $0 $0 $0
Edward H Gollob (Director) $0 $0 $0
Gordon Gund (Director) $0 $0 $0
Robert Heidenberg (Director) $0 $0 $0
Lester Kaplan (Director) $0 $0 $0
Dee Mellor (Director) $0 $0 $0
Ena Prosser (Director) $0 $0 $0
William T Schmidt (Ceo And President (Ex Officio)) $0 $370,504 $12,142
Annette Hinkle Cpa (Treasurer (Ex Officio) Until 10/2015) $0 $157,552 $11,742
Lorraine Hirsch Cpa (Treasurer (Ex Officio) As Of 10/2015) $0 $136,567 $20,768

Document Links

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,672,253
Expenses
$4,606,315
Net Income
$65,938
Net Assets
$223,914
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,652,960
99.6%
Program Services $19,278
0.4%
Investment Income $15
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,996
1.7%
Professional Fundraising Fees $0
Other Salaries and Wages $323,680
7.0%
Assets/Debt
Total Assets $1,333,743
Total Liabilities $1,109,829
Net Assets $223,914
Compensation
Key Employees and Officers Compensation Related Other
Patricia Zilliox Phd (Chief Drug Dev. Officer) $222,782 $0 $9,248
Mort Goldberg (Chairman) $78,996 $0 $0
David Brint (Director) $0 $0 $0
Gerald Cagle (Director) $0 $0 $0
Peter Crowley (Director) $0 $0 $0
Edward H Gollob (Director) $0 $0 $0
Gordon Gund (Director) $0 $0 $0
Lester Kaplan (Director) $0 $0 $0
Dee Mellor (Director) $0 $0 $0
Ena Prosser (Director) $0 $0 $0
William T Schmidt (Ceo And President (Ex Officio)) $0 $327,745 $11,794
Annette Hinkle Cpa (Treasurer (Ex Officio)) $0 $193,681 $13,919

Document Links

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,737,262
Expenses
$5,135,614
Net Income
-$398,352
Net Assets
$157,976
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,716,684
99.6%
Program Services $20,532
0.4%
Investment Income $46
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $310,409
6.0%
Professional Fundraising Fees $0
Other Salaries and Wages $162,396
3.2%
Assets/Debt
Total Assets $2,940,657
Total Liabilities $2,782,681
Net Assets $157,976
Compensation
Key Employees and Officers Compensation Related Other
Patricia Zilliox (Chief Drug Dev. Officer (Ex Officio)q) $220,068 $0 $9,131
Mort Goldberg (Chair) $78,996 $0 $0
David Brint (Director) $0 $0 $0
Gerald Cagle (Director) $0 $0 $0
Steven Dezzi (Director) $0 $0 $0
Edward Gollob (Director) $0 $0 $0
Gordon Gund (Director) $0 $0 $0
Lester Kaplan (Director) $0 $0 $0
Paul Manning (Director) $0 $0 $0
James Mcniel (Director) $0 $0 $0
Ena Prosser (Director) $0 $0 $0
William Schmidt (Ceo (Ex Officio)) $0 $322,751 $7,652
Annette Hinkle (Treasurer (Ex Officio)) $0 $191,312 $13,370

Document Links

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,195,870
Expenses
$5,093,512
Net Income
$102,358
Net Assets
$556,328
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,179,801
99.7%
Program Services $16,000
0.3%
Investment Income $69
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $79,000
1.6%
Professional Fundraising Fees $0
Other Salaries and Wages $512,821
10.1%
Assets/Debt
Total Assets $2,308,427
Total Liabilities $1,752,099
Net Assets $556,328

Document Links

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,870,275
Expenses
$3,642,916
Net Income
-$772,641
Net Assets
$455,921
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,804,329
97.7%
Program Services $65,322
2.3%
Investment Income $624
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $79,000
2.2%
Professional Fundraising Fees $0
Other Salaries and Wages $534,639
14.7%
Assets/Debt
Total Assets $1,766,098
Total Liabilities $1,310,177
Net Assets $455,921

Document Links

Fiscal Year Ending June
2011

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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