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Hannahs Hope For Giant Axonal Neuropathy Inc

  • Saratoga Spgs, NY
  • Tax-exempt since July 2008
  • EIN: 45-0593226

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Details

According to its Dec. 2024 tax filing, this nonprofit:

Reported conflict of interest transactions
Organizations must report loans, grants or business transactions with interested parties, which may include key employees and officers, their family members and any businesses in which they hold a controlling interest. These transactions must be reported on Schedule L.

Summary charts: organization finances over time

Revenue
$198k (2024)

Expenses
$538k (2024)

Total Assets
$2.88M (2024)

Total Liabilities
$220k (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$198,405
Expenses
$538,454
Net Income
-$340,049
Net Assets
$2,659,914
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,283
6.2%
Program Services $0
Investment Income $118,195
59.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $67,927
34.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $190,500
35.4%
Assets/Debt
Total Assets $2,879,947
Total Liabilities $220,033
Net Assets $2,659,914
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Di) $190,500 $0 $19,779
Allison T Moore (President) $0 $0 $0
Katie Hogan (Secretary) $0 $0 $0
Kathy Buckley (Treasurer) $0 $0 $0
Joseph Gerard Hacia Phd (Director) $0 $0 $0
Christa Gagnon (Director) $0 $0 $0
Amber N Freed (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 6, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$97,225
Expenses
$6,029,768
Net Income
-$5,932,543
Net Assets
$2,850,626
Notable Sources of Revenue Percent of Total Revenue
Contributions $38,430
39.5%
Program Services $0
Investment Income $210,858
> 100%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$152,063
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $190,500
3.2%
Assets/Debt
Total Assets $4,672,730
Total Liabilities $1,822,104
Net Assets $2,850,626
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Di) $190,500 $0 $25,953
Allison T Moore (President) $0 $0 $0
Katie Hogan (Secretary) $0 $0 $0
Kathy Buckley (Treasurer) $0 $0 $0
Joseph Gerard Hacia Phd (Director) $0 $0 $0
Christa Gagnon (Director) $0 $0 $0
Amber N Freed (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 13, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
-$717,738
Expenses
$620,035
Net Income
-$1,337,773
Net Assets
$8,205,137
Notable Sources of Revenue Percent of Total Revenue
Contributions $30,198
Program Services $0
Investment Income $206,320
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$954,256
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $2,750
0.4%
Assets/Debt
Total Assets $8,206,230
Total Liabilities $1,093
Net Assets $8,205,137
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Di) $190,600 $0 $31,553
Allison T Moore (President) $0 $0 $0
Katie Hogan (Secretary) $0 $0 $0
Kathy Buckley (Treasurer) $0 $0 $0
Joseph Gerard Hacia Phd (Director) $0 $0 $0
Christa Gognon (Director) $0 $0 $0
Amber N Freed (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,718,842
Expenses
$368,597
Net Income
$6,350,245
Net Assets
$9,889,851
Notable Sources of Revenue Percent of Total Revenue
Contributions $118,640
1.8%
Program Services $0
Investment Income $20,999
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$2,661
Net Inventory Sales $0
Other Revenue $6,581,864
98.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $111,954
30.4%
Assets/Debt
Total Assets $9,892,144
Total Liabilities $2,293
Net Assets $9,889,851
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Allison T Moore (President) $0 $0 $0
Katie Hogan (Secretary) $0 $0 $0
Kathy Buckley (Treasurer) $0 $0 $0
Joseph Gerard Hacia Phd (Director) $0 $0 $0
Christa Gognon (Director) $0 $0 $0
Jeffrey Wade Harper Phd (Director) $0 $0 $0
Amber N Freed (Director) $0 $0 $0
Lori Sames (Executive Di) $0 $0 $0
+ View more people

Document Links

990
Filed on June 1, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,147,919
Expenses
$848,319
Net Income
$1,299,600
Net Assets
$3,504,552
Notable Sources of Revenue Percent of Total Revenue
Contributions $135,681
6.3%
Program Services $0
Investment Income $2,238
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,010,000
93.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $109,567
12.9%
Assets/Debt
Total Assets $3,509,536
Total Liabilities $4,984
Net Assets $3,504,552
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Carrie Favaro (President) $0 $0 $0
Elizabeth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Lagenia Clark (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Steve Eichorn (Treasurer) $0 $0 $0
Lori Sames (Executive Di) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 10, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$170,920
Expenses
$437,301
Net Income
-$266,381
Net Assets
$2,204,952
Notable Sources of Revenue Percent of Total Revenue
Contributions $167,078
97.8%
Program Services $0
Investment Income $3,842
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $107,000
24.5%
Assets/Debt
Total Assets $2,205,057
Total Liabilities $105
Net Assets $2,204,952
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Di) $77,250 $0 $0
Lagenia Clark (Director) $29,750 $0 $0
Carrie Favaro (President) $0 $0 $0
Elizabeth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Steve Eichorn (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 13, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,227,266
Expenses
$468,257
Net Income
$759,009
Net Assets
$2,475,288
Notable Sources of Revenue Percent of Total Revenue
Contributions $292,829
23.9%
Program Services $0
Investment Income $2,115
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $183,049
14.9%
Net Inventory Sales $0
Other Revenue $749,273
61.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $76,265
16.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,483,866
Total Liabilities $8,578
Net Assets $2,475,288
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Director) $58,765 $0 $30,494
Lagenia Clark (Director) $17,500 $0 $22,371
Carrie Favaro (President) $0 $0 $0
Elizabeth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Steve Eichorn (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,378,678
Expenses
$376,562
Net Income
$1,002,116
Net Assets
$1,716,279
Notable Sources of Revenue Percent of Total Revenue
Contributions $349,078
25.3%
Program Services $0
Investment Income $702
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $1,028,898
74.6%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $36,036
9.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,716,279
Total Liabilities $0
Net Assets $1,716,279
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Director) $36,036 $0 $29,217
Carrie Favaro (President) $0 $0 $0
Elizabeth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Lagenia Clark (Director) $0 $0 $13,702
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Steve Eichorn (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$322,127
Expenses
$253,667
Net Income
$68,460
Net Assets
$714,163
Notable Sources of Revenue Percent of Total Revenue
Contributions $321,836
99.9%
Program Services $0
Investment Income $291
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $36,036
14.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $714,163
Total Liabilities $0
Net Assets $714,163
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Director) $36,036 $0 $22,148
Carrie Favaro (President) $0 $0 $0
Beth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Lagenia Clark (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Steve Eichorn (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 26, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$908,500
Expenses
$1,004,348
Net Income
-$95,848
Net Assets
$645,703
Notable Sources of Revenue Percent of Total Revenue
Contributions $507,886
55.9%
Program Services $0
Investment Income $0
Bond Proceeds $614
0.1%
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $400,000
44.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $36,036
3.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $645,703
Total Liabilities $0
Net Assets $645,703
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Director) $36,036 $0 $18,654
Carrie Favaro (President) $0 $0 $0
Sandy Harding (Treasurer) $0 $0 $0
Beth Haig (Secretary) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Lagenia Clark (Director) $0 $0 $0
Alex Tronco (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Joseph Kakaty (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$649,001
Expenses
$1,018,387
Net Income
-$369,386
Net Assets
$170,116
Notable Sources of Revenue Percent of Total Revenue
Contributions $710,579
> 100%
Program Services $0
Investment Income $945
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$62,523
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $51,750
5.1%
Professional Fundraising Fees $0
Other Salaries and Wages $5,200
0.5%
Assets/Debt
Total Assets $741,550
Total Liabilities $571,434
Net Assets $170,116
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Direc) $36,036 $0 $15,714
Matt Sames (Director) $0 $0 $0
Carrie Favaro (President) $0 $0 $0
Lagenia Clark (Director) $0 $0 $0
Alex Tronco (Director) $0 $0 $0
Todd Silaika (Director) $0 $0 $0
Sandy Harding (Treasurer) $0 $0 $0
Beth Haig (Secretary) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
Joseph Kakaty (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 13, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,013,768
Expenses
$1,020,222
Net Income
-$6,454
Net Assets
$539,502
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,040,917
> 100%
Program Services $0
Investment Income $4,180
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$31,329
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $46,801
4.6%
Professional Fundraising Fees $0
Other Salaries and Wages $19,240
1.9%
Assets/Debt
Total Assets $1,035,803
Total Liabilities $496,301
Net Assets $539,502
Compensation
Key Employees and Officers Compensation Related Other
Lori Sames (Executive Direc) $46,801 $0 $0
Todd Silaika (Director) $0 $0 $0
Matt Sames (Director) $0 $0 $0
Carrie Favaro (President) $0 $0 $0
Scott Davidoff Esq (Director) $0 $0 $0
Mike Ellis (Director) $0 $0 $0
Beth Haig (Secretary) $0 $0 $0
Joseph Kakaty (Director) $0 $0 $0
Erika Liguori (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 4, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$599,811
Expenses
$1,545,976
Net Income
-$946,165
Net Assets
$545,956
Notable Sources of Revenue Percent of Total Revenue
Contributions $628,350
> 100%
Program Services $0
Investment Income $3,182
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$34,038
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,317
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $47,376
3.1%
Professional Fundraising Fees $0
Other Salaries and Wages $24,960
1.6%
Assets/Debt
Total Assets $1,297,783
Total Liabilities $751,827
Net Assets $545,956

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$540,783
Expenses
$485,219
Net Income
$55,564
Net Assets
$1,469,171
Notable Sources of Revenue Percent of Total Revenue
Contributions $335,546
62.0%
Program Services $0
Investment Income $3,878
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$13,956
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $205,890
38.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $41,010
8.5%
Professional Fundraising Fees $0
Other Salaries and Wages $7,280
1.5%
Assets/Debt
Total Assets $1,690,681
Total Liabilities $221,510
Net Assets $1,469,171

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

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