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Autoimmune Encephalitis Alliance Inc

  • Durham, NC
  • Tax-exempt since March 2013
  • EIN: 46-1584730

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines N.E.C. (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$144k (2023)

Expenses
$191k (2023)

Total Assets
$147k (2023)

Total Liabilities
$737 (2023)

Source: Form 990 tax filings from 2013 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$143,916
Expenses
$190,779
Net Income
-$46,863
Net Assets
$146,656
Notable Sources of Revenue Percent of Total Revenue
Contributions $143,916
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,617
47.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $147,393
Total Liabilities $737
Net Assets $146,656
Compensation
Key Employees and Officers Compensation Related Other
Margaret Poe (Program Director) $79,130 $0 $11,487
Ed Arditte (Director (To 3/23)) $0 $0 $0
Aaron Dewees (Director (To 11/23)) $0 $0 $0
William C Mcdow Iii (Director (To 4/23)) $0 $0 $0
Stanley Naides (Director) $0 $0 $0
Heather Van Mater (Director & Mab Leader) $0 $0 $0
Anusha Yeshokumar (Director & Mab Leader) $0 $0 $0
William Bill Gavigan (Chair) $0 $0 $0
Marlene Rifkin (Director / Sec (To 6/23)) $0 $0 $0
Caterri Woodrum (Treasurer) $0 $0 $0
Jacqueline Mcclain (Director (Fr 2/23)/ Sec (Fr 7/23)) $0 $0 $0
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Document Links

990
Filed on May 13, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$217,693
Expenses
$184,340
Net Income
$33,353
Net Assets
$193,519
Notable Sources of Revenue Percent of Total Revenue
Contributions $209,960
96.4%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $7,839
3.6%
Sales of Assets -$106
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $20,313
11.0%
Professional Fundraising Fees $0
Other Salaries and Wages $75,417
40.9%
Assets/Debt
Total Assets $193,519
Total Liabilities $0
Net Assets $193,519
Compensation
Key Employees and Officers Compensation Related Other
Caterri Woodrum (Ceo (To 6/30),Treas (Fr 7/1)) $13,531 $0 $6,782
Ed Arditte (Director) $0 $0 $0
Aaron Dewees (Director) $0 $0 $0
William C Mcdow Iii (Director) $0 $0 $0
Stanley Naides (Director) $0 $0 $0
Heather Van Mater (Director & Mab Leader) $0 $0 $0
Anusha Yeshokumar (Director & Mab Leader) $0 $0 $0
Bill Gavigan (Chair) $0 $0 $0
Marlene Rifkin (Secretary) $0 $0 $0
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Document Links

990
Filed on Nov. 7, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$235,544
Expenses
$241,487
Net Income
-$5,943
Net Assets
$160,228
Notable Sources of Revenue Percent of Total Revenue
Contributions $224,577
95.3%
Program Services $1,650
0.7%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $8,932
3.8%
Sales of Assets $385
0.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $82,527
34.2%
Professional Fundraising Fees $0
Other Salaries and Wages $49,034
20.3%
Assets/Debt
Total Assets $161,493
Total Liabilities $1,265
Net Assets $160,228
Compensation
Key Employees and Officers Compensation Related Other
Caterri Woodrum (Executive Director/Ceo) $68,535 $0 $11,693
Aaron Dewees (Director) $0 $0 $0
William C Mcdow Iii (Chair (To 6/30/21), Director) $0 $0 $0
Carrie Painter (Secr (To 6/30/21), Director) $0 $0 $0
Heather Van Mater (Director) $0 $0 $0
Anusha Yeshokumar (Director) $0 $0 $0
Bill Gavigan (Treas (To 6/30/21),Chair (Fr 7/1/2021)) $0 $0 $0
Ed Arditte (Treasurer (Fr 7/1/2021)) $0 $0 $0
Marlene Rifkin (Secretary (Fr 7/1/2021)) $0 $0 $0
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990
Filed on Nov. 14, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$205,263
Expenses
$201,754
Net Income
$3,509
Net Assets
$171,214
Notable Sources of Revenue Percent of Total Revenue
Contributions $200,075
97.5%
Program Services $0
Investment Income $1
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $5,187
2.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,179
45.7%
Professional Fundraising Fees $0
Other Salaries and Wages $46,005
22.8%
Assets/Debt
Total Assets $189,018
Total Liabilities $17,804
Net Assets $171,214
Compensation
Key Employees and Officers Compensation Related Other
Caterri Woodrum (Executive Director/Ceo (From 1/20/2020)) $80,096 $0 $12,082
Barbara Arditte (Director (To 7/1/2020)) $0 $0 $0
Ed Arditte (Director) $0 $0 $0
Aaron Dewees (Director (From 11/5/2020)) $0 $0 $0
Marlene Rifkin (Director (From 11/5/2020)) $0 $0 $0
Heather Van Mater (Director) $0 $0 $0
Anusha Yeshokumar (Director) $0 $0 $0
William C Mcdow Iii (Chair) $0 $0 $0
Bill Gavigan (Treasurer (From 7/1/2020)) $0 $0 $0
Carrie Painter (Treas (To 6/30/20),Secr (From 7/1/20)) $0 $0 $0
Leslie G Mcdow (Secretary (To 7/1/2020)) $0 $0 $0
+ View more people

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990
Filed on Oct. 4, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$172,009
Expenses
$119,312
Net Income
$52,697
Net Assets
$166,692
Notable Sources of Revenue Percent of Total Revenue
Contributions $168,181
97.8%
Program Services $0
Investment Income $60
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $1,737
1.0%
Sales of Assets $2,031
1.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $43,634
36.6%
Assets/Debt
Total Assets $171,648
Total Liabilities $4,956
Net Assets $166,692
Compensation
Key Employees and Officers Compensation Related Other
Barbara Arditte (Director) $0 $0 $0
Ed Arditte (Director) $0 $0 $0
Robert Given (Director) $0 $0 $0
Bill Gavigan (Director (From 1/29/2019)) $0 $0 $0
Heather Van Mater (Director (From 1/14/2019)) $0 $0 $0
Anusha Yeshokumar (Director (From 1/14/2019)) $0 $0 $0
William C Mcdow Iii (Chair) $0 $0 $0
Leslie G Mcdow (Secretary) $0 $0 $0
Carrie Painter (Treasurer) $0 $0 $0
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Document Links

990
Filed on June 9, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$190,786
Expenses
$182,674
Net Income
$8,112
Net Assets
$113,995
Notable Sources of Revenue Percent of Total Revenue
Contributions $184,069
96.5%
Program Services $0
Investment Income $105
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $6,593
3.5%
Sales of Assets $19
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $9,647
5.3%
Professional Fundraising Fees $0
Other Salaries and Wages $22,249
12.2%
Assets/Debt
Total Assets $124,500
Total Liabilities $10,505
Net Assets $113,995
Compensation
Key Employees and Officers Compensation Related Other
John Spencer (Exec. Director (Th:1/18)) $9,647 $0 $0
Barbara Arditte (Director) $0 $0 $0
Ed Arditte (Director (Fr: 12/18)) $0 $0 $0
Alicia Garceau (Director) $0 $0 $0
Robert Given (Director (Fr: 5/18)) $0 $0 $0
William C Mcdow Iii (Chair) $0 $0 $0
Leslie G Mcdow (Secretary) $0 $0 $0
Daniel Egger (Treasurer (Thr: 12/18)) $0 $0 $0
Carrie Painter (Director/Treasurer (Fr:12/18)) $0 $0 $0
Elisabeth Wharton (Interim Director 1/20/18 6/15/18) $0 $0 $0
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990
Filed on Aug. 8, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$136,083
Expenses
$155,432
Net Income
-$19,349
Net Assets
$99,979
Notable Sources of Revenue Percent of Total Revenue
Contributions $135,040
99.2%
Program Services $801
0.6%
Investment Income $2
0.0%
Net Fundraising $240
0.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $116,038
Total Liabilities $16,059
Net Assets $99,979
Compensation
Key Employees and Officers Compensation Other
John Spencer (Executive Director) $76,000 $0
William C Mcdow Iii (Chair) $0 $0
Leslie G Mcdow (Secretary) $0 $0
Daniel Egger (Treasurer) $0 $0
Alicia Garceau (Director) $0 $0
Carrie Painter Fr Jun '17 (Director) $0 $0
Barbara Arditte Fr Jun '17 (Director) $0 $0
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990-EZ
Filed on Nov. 13, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$127,233
Expenses
$144,033
Net Income
-$16,800
Net Assets
$119,328
Notable Sources of Revenue Percent of Total Revenue
Contributions $119,593
94.0%
Program Services $0
Investment Income $2
0.0%
Net Fundraising $7,638
6.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $123,937
Total Liabilities $4,609
Net Assets $119,328
Compensation
Key Employees and Officers Compensation Other
John Spencer (Executive Dir.) $74,730 $0
William C Mc Dow Iii (Chair) $0 $0
Leslie G Mc Dow (Secretary) $0 $0
Daniel Egger (Treasurer) $0 $0
Susannah Cahalan (Director) $0 $0
Alicia Garceau (Director) $0 $0
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990-EZ
Filed on Aug. 15, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$71,491
Expenses
$35,377
Net Income
$36,114
Net Assets
$136,128
Notable Sources of Revenue Percent of Total Revenue
Contributions $63,789
89.2%
Program Services $0
Investment Income $1
0.0%
Net Fundraising $7,701
10.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $148,563
Total Liabilities $12,435
Net Assets $136,128
Compensation
Key Employees and Officers Compensation Other
William C Mc Dow Iii (Chair) $0 $0
Leslie G Mc Dow (Secretary) $0 $0
Daniel Egger (Treasurer) $0 $0
Susannah Cahalan (Director) $0 $0
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990-EZ
Filed on Aug. 11, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$88,528
Expenses
$50,817
Net Income
$37,711
Net Assets
$98,451
Notable Sources of Revenue Percent of Total Revenue
Contributions $88,240
99.7%
Program Services $0
Investment Income $0
Net Fundraising $18
0.0%
Sales of Assets $0
Net Inventory Sales $270
0.3%
Other Revenue $0
Assets/Debt
Total Assets $103,326
Total Liabilities $4,875
Net Assets $98,451
Compensation
Key Employees and Officers Compensation Other
William C Mc Dow Iii (Chairman) $0 $0
Leslie G Mc Dow (Secretary) $0 $0
Daniel Egger (Treasurer) $0 $0
Susannah Cahalan (Director) $0 $0
+ View more people

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990-EZ
Filed on July 8, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$86,957
Expenses
$42,283
Net Income
$44,674
Net Assets
$54,704
Notable Sources of Revenue Percent of Total Revenue
Contributions $80,382
92.4%
Program Services $0
Investment Income $0
Net Fundraising $6,575
7.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $68,918
Total Liabilities $14,214
Net Assets $54,704
Compensation
Key Employees and Officers Compensation Other
Will Mc Dow (Chairman) $0 $0
Leslie Mc Dow (Secretary) $0 $0
Daniel Egger (Treasurer) $0 $0
Susannah Cahalan (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 14, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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