Skip to content
ProPublica Donate
ProPublica Donate

Noonan Syndrome Foundation

Rasopathies Foundation
  • Blue Springs, MO
  • Tax-exempt since Nov. 2013
  • EIN: 46-1871620

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health — General and Rehabilitative / Professional Societies, Associations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$64k (2024)

Expenses
$143k (2024)

Total Assets
$208k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2013 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$63,977
Expenses
$142,841
Net Income
-$78,864
Net Assets
$208,010
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,303
36.4%
Program Services $31,191
48.8%
Investment Income $0
Net Fundraising $9,481
14.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2
0.0%
Assets/Debt
Total Assets $208,010
Total Liabilities $0
Net Assets $208,010
Compensation
Key Employees and Officers Compensation Other
Amanda Brown (Treasurer) $0 $0
Cari Conant (Vice President) $0 $0
Tammy Bowers (President) $0 $0
Cory Renshaw (Secretary) $0 $0
Krystal Steen (Board Member) $0 $0
Lindsay Homan (Board Member) $0 $0
Tammy Bowers (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 7, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$38,578
Expenses
$18,770
Net Income
$19,808
Net Assets
$286,874
Notable Sources of Revenue Percent of Total Revenue
Contributions $39,691
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$1,113
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $286,874
Total Liabilities $0
Net Assets $286,874
Compensation
Key Employees and Officers Compensation Other
Amanda Brown (President) $0 $0
Cari Conant (Vice President) $0 $0
Eddie Sierra (Treasurer) $0 $0
Cory Renshaw (Secretary) $0 $0
Krystal Steen (Board Member) $0 $0
Lindsay Homan (Board Member) $0 $0
Tammy Bowers (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 16, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$93,656
Expenses
$123,278
Net Income
-$29,622
Net Assets
$267,066
Notable Sources of Revenue Percent of Total Revenue
Contributions $44,975
48.0%
Program Services $0
Investment Income $0
Net Fundraising $24,903
26.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $23,778
25.4%
Assets/Debt
Total Assets $267,066
Total Liabilities $0
Net Assets $267,066
Compensation
Key Employees and Officers Compensation Other
Amanda Brown (President) $0 $0
Cari Conant (Vice President) $0 $0
Eddie Sierra (Treasurer) $0 $0
Cory Renshaw (Secretary) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 28, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$87,149
Expenses
$12,149
Net Income
$75,000
Net Assets
$296,688
Notable Sources of Revenue Percent of Total Revenue
Contributions $66,627
76.5%
Program Services $0
Investment Income $0
Net Fundraising $20,520
23.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2
0.0%
Assets/Debt
Total Assets $296,688
Total Liabilities $0
Net Assets $296,688
Compensation
Key Employees and Officers Compensation Other
Amanda Brown (President) $0 $0
Cari Conant (Vice President) $0 $0
Eddie Sierra (Treasurer) $0 $0
Cory Renshaw (Secretary) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 4, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$47,459
Expenses
$18,077
Net Income
$29,382
Net Assets
$221,688
Notable Sources of Revenue Percent of Total Revenue
Contributions $47,051
99.1%
Program Services $0
Investment Income $0
Net Fundraising $408
0.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2
0.0%
Assets/Debt
Total Assets $221,688
Total Liabilities $0
Net Assets $221,688

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$55,403
Expenses
$33,408
Net Income
$21,995
Net Assets
$192,423
Notable Sources of Revenue Percent of Total Revenue
Contributions $55,020
99.3%
Program Services $15,846
28.6%
Investment Income $0
Net Fundraising -$15,465
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2
0.0%
Assets/Debt
Total Assets $192,423
Total Liabilities $0
Net Assets $192,423

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,297
Expenses
$27,330
Net Income
$36,967
Net Assets
$170,428
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,340
> 100%
Program Services $59,330
92.3%
Investment Income $0
Net Fundraising -$62,379
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $6
0.0%
Assets/Debt
Total Assets $170,428
Total Liabilities $0
Net Assets $170,428

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$107,938
Expenses
$99,180
Net Income
$8,758
Net Assets
$21,508
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,979
35.2%
Program Services $0
Investment Income $0
Net Fundraising $31,354
29.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $38,605
35.8%
Assets/Debt
Total Assets $21,508
Total Liabilities $0
Net Assets $21,508

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$107,938
Expenses
$99,180
Net Income
$8,758
Net Assets
$3,567
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,979
35.2%
Program Services $0
Investment Income $0
Net Fundraising $31,354
29.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $38,605
35.8%
Assets/Debt
Total Assets $3,567
Total Liabilities $0
Net Assets $3,567

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$63,159
Expenses
$43,852
Net Income
$19,307
Net Assets
$37,706
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,376
19.6%
Program Services $0
Investment Income $0
Net Fundraising $16,088
25.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $34,693
54.9%
Assets/Debt
Total Assets $37,706
Total Liabilities $0
Net Assets $37,706

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$72,898
Expenses
$70,818
Net Income
$2,080
Net Assets
$39,512
Notable Sources of Revenue Percent of Total Revenue
Contributions $16,363
22.4%
Program Services $17,405
23.9%
Investment Income $0
Net Fundraising $10,337
14.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $28,793
39.5%
Assets/Debt
Total Assets $39,512
Total Liabilities $0
Net Assets $39,512

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,115
Expenses
$26,683
Net Income
$37,432
Net Assets
$37,432
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,647
41.6%
Program Services $36,208
56.5%
Investment Income $0
Net Fundraising $1,234
1.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $26
0.0%
Assets/Debt
Total Assets $37,432
Total Liabilities $0
Net Assets $37,432
Compensation
Key Employees and Officers Compensation Other
Rebekah Busbee (Ceo) $0 $0
Ann Yurcek (Coo) $0 $0
Beth Newton (Treasurer) $0 $0
Cari Conant (Secretary) $0 $0
Stacie Borrero (Director) $0 $0
Lisa Schill (Former Director) $0 $0
William Tatum (Former Director) $0 $0
Monica Grund (Former Treasurer) $0 $0
Julie Jancius (Former Ceo) $0 $0
Sarah Taddel (Former Treasurer) $0 $0
+ View more people

Document Links

990-EZ
Filed on April 4, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

See an issue with the data?

Contact Us

About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated