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Down Syndrome Diagnosis Network

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Down Syndrome (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$636k (2023)

Expenses
$576k (2023)

Total Assets
$701k (2023)

Total Liabilities
$13k (2023)

Years with missing data
Source: Form 990 tax filings from 2013 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Oct.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$636,269
Expenses
$575,865
Net Income
$60,404
Net Assets
$688,237
Notable Sources of Revenue Percent of Total Revenue
Contributions $509,792
80.1%
Program Services $118,949
18.7%
Investment Income $7,110
1.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $199
0.0%
Other Revenue $219
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $69,310
12.0%
Professional Fundraising Fees $0
Other Salaries and Wages $48,140
8.4%
Assets/Debt
Total Assets $701,264
Total Liabilities $13,027
Net Assets $688,237
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Jacob (Executive Director) $52,115 $0 $0
Kathleen Seitz (President) $0 $0 $0
Patricia Nesbitt (Vice President) $0 $0 $0
Julia Kaufman (Treasurer) $0 $0 $0
Taryn Lagonigro (Secretary) $0 $0 $0
Jenny Di Benedetto (Director) $0 $0 $0
Cassandra Drake (Director) $0 $0 $0
Ben Hughes (Director) $0 $0 $0
Michael Pascual (Director) $0 $0 $0
Anthony Sisernos (Director) $0 $0 $0
Jennifer Dingman (Director) $0 $0 $0
Tony Nowicki (Director) $0 $0 $0
Melissa Shutwell (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Oct.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$500,167
Expenses
$505,978
Net Income
-$5,811
Net Assets
$627,833
Notable Sources of Revenue Percent of Total Revenue
Contributions $424,924
85.0%
Program Services $76,833
15.4%
Investment Income $294
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$1,914
Net Inventory Sales $30
0.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $50,000
9.9%
Professional Fundraising Fees $0
Other Salaries and Wages $43,026
8.5%
Assets/Debt
Total Assets $643,501
Total Liabilities $15,668
Net Assets $627,833
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Jacob (Executive Director) $50,000 $0 $0
Heather Bradley (Director) $0 $0 $0
Jenny Di Benedetto (Vice President) $0 $0 $0
Deanna Darnes (Director) $0 $0 $0
Patricia Nesbitt (Director) $0 $0 $0
Cassandra Drake (Director) $0 $0 $0
Melissa Shutwell (President) $0 $0 $0
Kelli Caughman (Director) $0 $0 $0
Ben Hughes (Director) $0 $0 $0
Julia Kaufman (Treasurer) $0 $0 $0
Taryn Lagonigro (Secretary) $0 $0 $0
Michael Pascual (Director) $0 $0 $0
Kathleen Seitz (Director) $0 $0 $0
Anthony Sisemos (Director) $0 $0 $0

Document Links

Fiscal Year Ending Oct.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$423,411
Expenses
$423,720
Net Income
-$309
Net Assets
$633,644
Notable Sources of Revenue Percent of Total Revenue
Contributions $383,917
90.7%
Program Services $41,300
9.8%
Investment Income $47
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,194
Sales of Assets -$11
Net Inventory Sales -$648
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $53,667
12.7%
Professional Fundraising Fees $0
Other Salaries and Wages $31,667
7.5%
Assets/Debt
Total Assets $633,644
Total Liabilities $0
Net Assets $633,644
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Jacob (Executive Director) $53,667 $0 $0
Heather Bradley (Director) $0 $0 $0
Jenny Di Benedetto (Vice President) $0 $0 $0
Becky Bausman (Secretary) $0 $0 $0
Jill Urich (Treasurer) $0 $0 $0
Yadira Regla Cuevas (Director) $0 $0 $0
Melissa Shutwell (President) $0 $0 $0
Kelli Caughman (Director) $0 $0 $0
Ben Hughes (Director) $0 $0 $0
Julia Kaufman (Director) $0 $0 $0
Taryn Lagonigro (Director) $0 $0 $0

Document Links

Fiscal Year Ending Oct.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$409,033
Expenses
$255,579
Net Income
$153,454
Net Assets
$633,954
Notable Sources of Revenue Percent of Total Revenue
Contributions $393,193
96.1%
Program Services $19,079
4.7%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$3,239
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $67,663
26.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $633,954
Total Liabilities $0
Net Assets $633,954
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Jacob (Executive Director) $50,000 $0 $0
Christy Cooper (Board Member) $40,000 $0 $0
Heather Bradley (Trustee) $0 $0 $0
Cathleen Small (Secretary) $0 $0 $0
Jaime Erickson (Board Member) $0 $0 $0
Joe Scott (Board Member) $0 $0 $0
Becky Bausman (Secretary) $0 $0 $0
Jillian Benfield (Communication Director) $0 $0 $0
Yadira Regla Cuevas (Director) $0 $0 $0
Mandy Ramzan (Retreat Director) $0 $0 $0
Sharon Kendrick (Director Bfdsn) $0 $0 $0
Stacey Graves (Director Of Development) $0 $0 $0
Jessica Pace (Fundraising Director) $0 $0 $0
Paula Ferrari (Co Director Of Rff) $0 $0 $0
Natalie Palin (Co Director Of Rff) $0 $0 $0
Kristin Moss (Co Director Of Local) $0 $0 $0
Lauren Young (Co Director Of Local) $0 $0 $0
Hannah Pascucci (Director Medical) $0 $0 $0
Michelle Steffen (Co Director Retreat) $0 $0 $0
Katie Williams (Co Director Retreat) $0 $0 $0
Andrew Hilgart (Director Dad Retreat) $0 $0 $0
Laura Gordon (Co Director Support) $0 $0 $0
Cassie Besten (Co Director Support) $0 $0 $0
Crystal Tillman (Director Social Media) $0 $0 $0
Kelly Caughman (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Oct.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$667,289
Expenses
$585,027
Net Income
$82,262
Net Assets
$480,500
Notable Sources of Revenue Percent of Total Revenue
Contributions $541,495
81.1%
Program Services $127,252
19.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,458
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $10,000
1.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $480,500
Total Liabilities $0
Net Assets $480,500

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$624,420
Expenses
$361,758
Net Income
$262,662
Net Assets
$398,238
Notable Sources of Revenue Percent of Total Revenue
Contributions $544,296
87.2%
Program Services $78,606
12.6%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $351
0.1%
Sales of Assets $0
Net Inventory Sales $1,167
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $12,000
3.3%
Professional Fundraising Fees $0
Other Salaries and Wages $2,100
0.6%
Assets/Debt
Total Assets $398,238
Total Liabilities $0
Net Assets $398,238

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$211,165
Expenses
$153,161
Net Income
$58,004
Net Assets
$135,731
Notable Sources of Revenue Percent of Total Revenue
Contributions $171,429
81.2%
Program Services $38,797
18.4%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,230
Sales of Assets $0
Net Inventory Sales $2,169
1.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $135,731
Total Liabilities $0
Net Assets $135,731

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$106,635
Expenses
$76,085
Net Income
$30,550
Net Assets
$77,727
Notable Sources of Revenue Percent of Total Revenue
Contributions $89,240
83.7%
Program Services $17,120
16.1%
Investment Income $0
Net Fundraising -$66
Sales of Assets $0
Net Inventory Sales $341
0.3%
Other Revenue $0
Assets/Debt
Total Assets $77,727
Total Liabilities $0
Net Assets $77,727

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$70,541
Expenses
$33,881
Net Income
$36,660
Net Assets
$47,177
Notable Sources of Revenue Percent of Total Revenue
Contributions $52,959
75.1%
Program Services $11,830
16.8%
Investment Income $0
Net Fundraising $5,533
7.8%
Sales of Assets $0
Net Inventory Sales $219
0.3%
Other Revenue $0
Assets/Debt
Total Assets $47,177
Total Liabilities $0
Net Assets $47,177

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$3,555
Expenses
$3,055
Net Income
$500
Net Assets
$500
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,555
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $500
Total Liabilities $0
Net Assets $500

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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