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Rare Cancer Research Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Cancer Research (NTEE)

Donations to this organization are tax deductible.

Details

According to its Dec. 2023 tax filing, this nonprofit:

Reported conflict of interest transactions
Organizations must report loans, grants or business transactions with interested parties, which may include key employees and officers, their family members and any businesses in which they hold a controlling interest. These transactions must be reported on Schedule L.

Summary charts: organization finances over time

Revenue
$3.5M (2023)

Expenses
$2.17M (2023)

Total Assets
$3.03M (2023)

Total Liabilities
$942k (2023)

Source: Form 990 tax filings from 2014 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,503,960
Expenses
$2,167,619
Net Income
$1,336,341
Net Assets
$2,091,757
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,606,409
74.4%
Program Services $891,959
25.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,592
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $321,090
14.8%
Professional Fundraising Fees $0
Other Salaries and Wages $618,392
28.5%
Assets/Debt
Total Assets $3,033,890
Total Liabilities $942,133
Net Assets $2,091,757
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Marshall Thompson (President) $189,251 $0 $5,175
Amber Smith (Biobank Mana) $136,717 $0 $5,175
Barbara Van Hare (Pres. Of Pat) $121,264 $0 $5,400
Chris Heery (Director) $0 $0 $0
Mark Laabs (Founder & Ch) $0 $0 $0
Ryan Pripstein (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$37,638
Expenses
$333,801
Net Income
-$296,163
Net Assets
$755,416
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,638
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $80,000
24.0%
Professional Fundraising Fees $0
Other Salaries and Wages $12,688
3.8%
Assets/Debt
Total Assets $757,505
Total Liabilities $2,089
Net Assets $755,416
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Barbara Van Hare (Director) $80,000 $0 $0
Benjamin Abram (Director & T) $0 $0 $0
Chris Heery (Director) $0 $0 $0
Mark Laabs (Founder & Ch) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,072,853
Expenses
$179,015
Net Income
$893,838
Net Assets
$1,051,579
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,050,279
97.9%
Program Services $22,574
2.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $60,000
33.5%
Assets/Debt
Total Assets $1,051,579
Total Liabilities $0
Net Assets $1,051,579
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0
Mark Laabs (Founder & Ch) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$79,640
Expenses
$183,429
Net Income
-$103,789
Net Assets
$157,741
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,945
30.1%
Program Services $49,019
61.6%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $6,676
8.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $60,000
32.7%
Assets/Debt
Total Assets $158,432
Total Liabilities $691
Net Assets $157,741
Compensation
Key Employees and Officers Compensation Related Other
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0
Mark Laabs (Founder & Ch) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$316,401
Expenses
$246,863
Net Income
$69,538
Net Assets
$261,530
Notable Sources of Revenue Percent of Total Revenue
Contributions $38,755
12.2%
Program Services $277,646
87.8%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $60,000
24.3%
Assets/Debt
Total Assets $261,753
Total Liabilities $223
Net Assets $261,530
Compensation
Key Employees and Officers Compensation Related Other
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0
Mark Laabs (Founder & Ch) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$347,745
Expenses
$211,790
Net Income
$135,955
Net Assets
$191,992
Notable Sources of Revenue Percent of Total Revenue
Contributions $347,745
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $67,409
31.8%
Assets/Debt
Total Assets $194,013
Total Liabilities $2,021
Net Assets $191,992
Compensation
Key Employees and Officers Compensation Related Other
Mark Laabs (Founder & Ch) $0 $0 $0
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$215,976
Expenses
$550,983
Net Income
-$335,007
Net Assets
$56,037
Notable Sources of Revenue Percent of Total Revenue
Contributions $215,426
99.7%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $550
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $193,097
35.0%
Assets/Debt
Total Assets $61,752
Total Liabilities $5,715
Net Assets $56,037
Compensation
Key Employees and Officers Compensation Related Other
Mark Laabs (Founder & Ch) $0 $0 $0
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,964
Expenses
$531,824
Net Income
-$524,860
Net Assets
$391,044
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,964
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $81,263
15.3%
Assets/Debt
Total Assets $402,149
Total Liabilities $11,105
Net Assets $391,044
Compensation
Key Employees and Officers Compensation Related Other
Mark Laabs (Founder & Ch) $0 $0 $0
Benjamin Abram (Director & T) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$197,569
Expenses
$318,444
Net Income
-$120,875
Net Assets
$915,904
Notable Sources of Revenue Percent of Total Revenue
Contributions $193,569
98.0%
Program Services $4,000
2.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $916,404
Total Liabilities $500
Net Assets $915,904
Compensation
Key Employees and Officers Compensation Related Other
Mark Laabs (Chairman) $0 $0 $0
Benjamin Abram (Treasurer) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,243,120
Expenses
$206,321
Net Income
$1,036,799
Net Assets
$1,036,799
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,243,120
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $15,000
7.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,036,799
Total Liabilities $0
Net Assets $1,036,799
Compensation
Key Employees and Officers Compensation Related Other
Mark Laabs (Director) $0 $0 $0
Ben Abram (Director) $0 $0 $0
Jyri Engestrom (Director) $0 $0 $0

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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