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Sickle Cell 101

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Alliance/Advocacy Organizations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$178k (2024)

Expenses
$350k (2024)

Total Assets
$41.8k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2019 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Nov.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$178,037
Expenses
$349,964
Net Income
-$171,927
Net Assets
$41,813
Notable Sources of Revenue Percent of Total Revenue
Contributions $178,037
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $41,813
Total Liabilities $0
Net Assets $41,813
Compensation
Key Employees and Officers Compensation Other
Cassandra Trimnell Ehrlich (Executive Director) $75,332 $0
Stephen Agyenim Boateng (Key Employee) $20,000 $0
Keith Quirolo (Key Employee) $13,750 $0
Angela Ehrlich (Board Chair) $0 $0
Markus Kothner (Secretary) $0 $0

Document Links

Fiscal Year Ending Nov.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$349,501
Expenses
$353,756
Net Income
-$4,255
Net Assets
$106,126
Notable Sources of Revenue Percent of Total Revenue
Contributions $349,501
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $64,900
18.3%
Professional Fundraising Fees $0
Other Salaries and Wages $48,839
13.8%
Assets/Debt
Total Assets $106,126
Total Liabilities $0
Net Assets $106,126
Compensation
Key Employees and Officers Compensation Related Other
Cassandra Trimnell Ehrlich (Executive Director) $38,800 $0 $0
Stephen Agyenim Boateng (Key Employee) $26,100 $0 $0
Angela Ehrlich (Board Chair) $0 $0 $0
Markus Kothner (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Nov.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$246,717
Expenses
$252,710
Net Income
-$5,993
Net Assets
$166,356
Notable Sources of Revenue Percent of Total Revenue
Contributions $246,717
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $77,577
30.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $166,356
Total Liabilities $0
Net Assets $166,356
Compensation
Key Employees and Officers Compensation Related Other
Cassandra Trimnell Ehrlich (Executive Director) $38,800 $0 $0
Shawna Barnes (Key Employee) $38,777 $0 $0
Angela Ehrlich (Board Chair) $0 $0 $0
Markus Kothner (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Nov.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$227,316
Expenses
$195,195
Net Income
$32,121
Net Assets
$137,267
Notable Sources of Revenue Percent of Total Revenue
Contributions $227,316
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $40,400
20.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $137,267
Total Liabilities $0
Net Assets $137,267
Compensation
Key Employees and Officers Compensation Related Other
Cassandra Trimnell Ehrlich (Executive Director) $22,200 $0 $0
Stephen Agyenim Boateng (Director Of Research And Developmen) $12,750 $0 $0
Keith Quirolo (Medical Officer) $5,450 $0 $0
Angela Ehrlich (Board Member) $0 $0 $0
Markus Kothner (Secretary And Cfo) $0 $0 $0
Shawna Barnes (Dir Of Operations And Partnerships) $0 $0 $0

Document Links

Fiscal Year Ending Nov.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$77,701
Expenses
$83,531
Net Income
-$5,830
Net Assets
$53,365
Notable Sources of Revenue Percent of Total Revenue
Contributions $77,701
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $22,800
27.3%
Professional Fundraising Fees $0
Other Salaries and Wages $23,894
28.6%
Assets/Debt
Total Assets $53,365
Total Liabilities $0
Net Assets $53,365
Compensation
Key Employees and Officers Compensation Related Other
Cassandra Trimnell Ehrlich (Executive Director) $15,000 $0 $0
Stephen Agyenim Boateng (Director Of Research And Engagement) $6,000 $0 $0
Keith Quirolo (Medical Officer) $1,800 $0 $0
Angela Ehrlich (Board Member) $0 $0 $0
Markus Kothner (Secretary And Cfo) $0 $0 $0

Document Links

Fiscal Year Ending Nov.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$227,516
Expenses
$123,741
Net Income
$103,775
Net Assets
$112,706
Notable Sources of Revenue Percent of Total Revenue
Contributions $227,516
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $50,100
40.5%
Professional Fundraising Fees $0
Other Salaries and Wages $14,123
11.4%
Assets/Debt
Total Assets $112,706
Total Liabilities $0
Net Assets $112,706
Compensation
Key Employees and Officers Compensation Related Other
Cassandra Trimnell Ehrlich (Executive Director) $37,495 $0 $0
Stephen Agyenim Boateng (Director Of Research And Engagement) $10,506 $0 $0
Markus Kothner (Secretary And Cfo) $5,528 $0 $0
Keith Quirolo (Medical Officer) $2,100 $0 $0
Angela Ehrlich (Board Member) $0 $0 $0

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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