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Childhood Arthritis & Rheumatology Research Alliance

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Arthritis (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$10.8M (2023)

Expenses
$11.5M (2023)

Total Assets
$17.4M (2023)

Total Liabilities
$4.71M (2023)

Source: Form 990 tax filings from 2014 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$10,841,004
Expenses
$11,534,351
Net Income
-$693,347
Net Assets
$12,698,334
Notable Sources of Revenue Percent of Total Revenue
Contributions $525,959
4.9%
Program Services $9,748,979
89.9%
Investment Income $565,525
5.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $541
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $240,772
2.1%
Professional Fundraising Fees $0
Other Salaries and Wages $1,323,332
11.5%
Assets/Debt
Total Assets $17,407,019
Total Liabilities $4,708,685
Net Assets $12,698,334
Compensation
Key Employees and Officers Compensation Related Other
Mathieu Nelessen (Ceo) $308,104 $0 $55,080
Stacy Ardoin Md (Vice President) $69,120 $0 $0
Emily Von Scheven Md Mas (Past President) $67,446 $0 $0
Jay Mehta Md Ms (Treasurer) $64,206 $0 $0
Robert Colbert Md Phd (President) $40,000 $0 $0
Christy Sandborg Md (Chair Secretary) $0 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Daniel Solomon Md Phd (Director) $0 $0 $0
John Sundy Md Phd (Director) $0 $0 $0
Robert Fuhlbrigge Md Phd (Director) $0 $0 $0

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Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$10,561,848
Expenses
$11,144,720
Net Income
-$582,872
Net Assets
$13,391,681
Notable Sources of Revenue Percent of Total Revenue
Contributions $648,501
6.1%
Program Services $9,747,478
92.3%
Investment Income $165,869
1.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $260,822
2.3%
Professional Fundraising Fees $0
Other Salaries and Wages $657,603
5.9%
Assets/Debt
Total Assets $17,073,918
Total Liabilities $3,682,237
Net Assets $13,391,681
Compensation
Key Employees and Officers Compensation Related Other
Emily Von Scheven Md Mas (Past President) $76,479 $0 $0
Stacy Ardoin Md (Vice President) $68,220 $0 $0
Robert Colbert Md Phd (President) $50,000 $0 $0
Robert Fuhlbrigge Md Phd (Director) $34,020 $0 $0
Jay Mehta Md Ms (Treasurer) $32,103 $0 $0
Christy Sandborg Md (Chair Secretarty) $0 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Daniel Solomon Md Phd (Director) $0 $0 $0
John Sundy Md Phd (Director) $0 $0 $0

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Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,468,070
Expenses
$10,024,485
Net Income
-$3,556,415
Net Assets
$13,974,553
Notable Sources of Revenue Percent of Total Revenue
Contributions $205,868
3.2%
Program Services $6,231,027
96.3%
Investment Income $1,422
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $29,753
0.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $263,470
2.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $18,755,308
Total Liabilities $4,780,755
Net Assets $13,974,553
Compensation
Key Employees and Officers Compensation Related Other
Emily Von Scheven Md Mas (President) $87,930 $0 $0
Robert Fuhlbrigge Md Phd (Past President) $68,040 $0 $0
Stacy Ardoin Md (Treasurer) $67,500 $0 $0
Robert Colbert Md Phd (Vice President) $40,000 $0 $0
Christy Sandborg Md (Chair) $0 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Daniel Solomon Md Phd (Director) $0 $0 $0
John Sundy Md Phd (Director) $0 $0 $0

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Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,833,140
Expenses
$8,088,772
Net Income
-$2,255,632
Net Assets
$17,530,968
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,005,647
51.5%
Program Services $2,715,047
46.5%
Investment Income $46,432
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $66,014
1.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $288,111
3.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $18,697,197
Total Liabilities $1,166,229
Net Assets $17,530,968
Compensation
Key Employees and Officers Compensation Related Other
Emily Von Scheven Md Mas (President) $96,298 $0 $0
Robert Fuhlbrigge Md Phd (Past President) $61,236 $0 $0
Yukiko Kimura Md (Past President) $56,827 $0 $0
Robert Colbert Md Phd (Vice President) $40,000 $0 $0
Stacy Ardoin Md (Treasurer) $33,750 $0 $0
Christy Sandborg Md (Chair) $0 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Daniel Solomon Md Phd (Director) $0 $0 $0
John Sundy Md Phd (Director) $0 $0 $0

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Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$11,029,270
Expenses
$8,415,703
Net Income
$2,613,567
Net Assets
$19,786,600
Notable Sources of Revenue Percent of Total Revenue
Contributions $7,209,074
65.4%
Program Services $3,642,918
33.0%
Investment Income $167,009
1.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $10,269
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $290,214
3.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $20,873,541
Total Liabilities $1,086,941
Net Assets $19,786,600
Compensation
Key Employees and Officers Compensation Related Other
Yukiko Kimura Md (Past President) $107,654 $0 $0
Emily Von Scheven Md Mas (Vice President) $88,128 $0 $0
Robert Fuhlbrigge Md Phd (President) $54,432 $0 $0
Robert Colbert Md Phd (Treasurer) $40,000 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Brian Kotzin Md (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Christy Sandborg Md (Chair) $0 $0 $0

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Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$9,976,474
Expenses
$7,876,769
Net Income
$2,099,705
Net Assets
$17,173,033
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,025,669
60.4%
Program Services $3,884,923
38.9%
Investment Income $19,852
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $46,030
0.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $249,771
3.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $18,423,173
Total Liabilities $1,250,140
Net Assets $17,173,033
Compensation
Key Employees and Officers Compensation Related Other
Yukiko Kimura Md (Past President) $100,927 $0 $0
Emily Von Scheven Md Mas (Vice President) $74,412 $0 $0
Robert Fuhlbrigge Md Phd (President) $54,432 $0 $0
Robert Colbert Md Phd (Treasurer) $20,000 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Harry Saal Phd (Director) $0 $0 $0
Brian Kotzin Md (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Christy Sandborg Md (Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$12,798,163
Expenses
$5,273,091
Net Income
$7,525,072
Net Assets
$15,073,328
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,497,647
82.0%
Program Services $2,298,414
18.0%
Investment Income $2,102
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $304,832
5.8%
Professional Fundraising Fees $0
Other Salaries and Wages $54,167
1.0%
Assets/Debt
Total Assets $16,222,097
Total Liabilities $1,148,769
Net Assets $15,073,328
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Yukiko Kimura Md (President) $94,200 $0 $0
Emily Von Scheven Md Mas (Treasurer) $91,045 $0 $0
Laura Schanberg Md (Past President) $71,959 $0 $0
Robert Fuhlbrigge Md Phd (Vice President) $47,628 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Elizabeth Mellins Md (Director) $0 $0 $0
Steve Russell (Director) $0 $0 $0
Brian Kotzin Md (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Christy Sandborg Md (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$8,418,430
Expenses
$5,054,936
Net Income
$3,363,494
Net Assets
$6,243,909
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,523,687
53.7%
Program Services $3,893,476
46.2%
Investment Income $1,267
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $47,971
0.9%
Professional Fundraising Fees $0
Other Salaries and Wages $252,079
5.0%
Assets/Debt
Total Assets $7,177,060
Total Liabilities $933,151
Net Assets $6,243,909
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Jason Jones (Sr Dir Of Research) $200,000 $0 $1,250
Yukiko Kimura Md (President) $47,971 $0 $0
Carol Wallace Md (Director) $0 $0 $0
Elizabeth Mellins (Director) $0 $0 $0
Steve Russell (Director) $0 $0 $0
Christy Sandborg Md (Director) $0 $0 $0
Brian Kotzin Md (Director) $0 $0 $0
Leigh White Jd (Director) $0 $0 $0
Robert Fuhlbrigge Md Phd (Vice President) $0 $0 $0
Norman Ilowite (Secretary) $0 $0 $0
Emily Von Scheven (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,495,273
Expenses
$2,276,471
Net Income
$1,218,802
Net Assets
$2,880,415
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,755,621
78.8%
Program Services $738,980
21.1%
Investment Income $672
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $2,475
0.1%
Other Salaries and Wages $0
Assets/Debt
Total Assets $3,241,651
Total Liabilities $361,236
Net Assets $2,880,415
Compensation
Key Employees and Officers Compensation Related Other
Yuki Kimura Md (Vice President) $40,000 $0 $9,840
Laura Schanberg Md (President) $30,353 $0 $7,891
Carol Wallace Md (Chair) $0 $0 $0
Christy Sandborg Md (Director) $0 $0 $0
Steve Russell (Director) $0 $0 $0
Elizabeth Mellins Md (Director) $0 $0 $0
Robert Fuhlbrigge Md Ph D (Cfo) $0 $0 $0
Norm Ilowite Md (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,898,202
Expenses
$236,589
Net Income
$1,661,613
Net Assets
$1,661,613
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,840,811
97.0%
Program Services $57,105
3.0%
Investment Income $286
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,661,613
Total Liabilities $0
Net Assets $1,661,613
Compensation
Key Employees and Officers Compensation Related Other
Laura Schanberg Md (President) $0 $0 $0
Carol Wallace Md (Chair) $0 $0 $0
Christy Sandborg Md (Director) $0 $0 $0
Steve Russell (Director) $0 $0 $0
Elizabeth Mellins Md (Director) $0 $0 $0
Robert Fuhlbrigge Md Ph D (Cfo) $0 $0 $0

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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