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Biopontis Alliance Rare Disease Foundation Inc

  • Raleigh, NC
  • Tax-exempt since Oct. 2014
  • EIN: 46-4764835

Organization summary

Organization summary might be incomplete or out of date

This organization is not listed in the IRS's most recent list of tax exempt organizations, but we have data associated with this Employer Identification Number.

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Research Institutes and/or Public Policy Analysis (NTEE)

Summary charts: organization finances over time

Revenue
$1.24k (2020)

Expenses
$2.47k (2020)

Total Assets
$0 (2020)

Total Liabilities
$0 (2020)

Source: Form 990 tax filings from 2014 to 2020

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Aug.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$1,237
Expenses
$2,470
Net Income
-$1,233
Net Assets
$0
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,237
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $0
Total Liabilities $0
Net Assets $0
Compensation
Key Employees and Officers Compensation Other
David Spencer Phd (Vice Chairpe) $0 $0
Erik Tambuyzer Phd (Chairperson) $0 $0
Gilbert Chip Carnathan Phd (Chief Scient) $0 $0
Susan R Kahn (Director & T) $0 $0
Warren Strittmatter Md (Director) $0 $0
Jean Jacques Cassiman Md (Director) $0 $0
Christian Policard Phd (Director) $0 $0
Howard Liebman (Director) $0 $0
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Document Links

990-EZ
Filed on Nov. 23, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$94,725
Expenses
$96,516
Net Income
-$1,791
Net Assets
$1,233
Notable Sources of Revenue Percent of Total Revenue
Contributions $91,725
96.8%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $3,000
3.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $19,562
Total Liabilities $18,329
Net Assets $1,233
Compensation
Key Employees and Officers Compensation Related Other
Gilbert Chip Carnathan Phd (Chief Scient) $36,000 $0 $0
Susan R Kahn (Director & T) $0 $0 $0
Howard Liebman (Director) $0 $0 $0
Jean Jacques Cassiman Md (Director) $0 $0 $0
Warren Strittmatter Md (Director) $0 $0 $0
Christian Policard Phd (Director) $0 $0 $0
David Spencer Phd (Vice Chairpe) $0 $0 $0
Erik Tambuyzer Phd (Chairperson) $0 $0 $0
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Document Links

990
Filed on May 20, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$211,351
Expenses
$225,430
Net Income
-$14,079
Net Assets
$3,024
Notable Sources of Revenue Percent of Total Revenue
Contributions $211,344
100.0%
Program Services $0
Investment Income $7
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $3,273
Total Liabilities $249
Net Assets $3,024
Compensation
Key Employees and Officers Compensation Related Other
Richard A Basile (Chief Exec.) $82,029 $0 $0
David Spencer Phd (Cso / Direct) $32,000 $0 $0
Gilbert Chip Carnathan Phd (Chief Scient) $18,000 $0 $0
Erik Tambuyzer Phd (Chairperson) $0 $0 $0
Marlene Haffner Md Mph (Vice Chair) $0 $0 $0
Susan R Kahn (Director) $0 $0 $0
Warren Strittmatter Md (Director) $0 $0 $0
Jean Jacques Cassiman Md (Director) $0 $0 $0
Christian Policard Phd (Director) $0 $0 $0
Susan Hayflick Md (Director) $0 $0 $0
Howard Liebman (Director) $0 $0 $0
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Document Links

990
Filed on June 25, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$295,210
Expenses
$316,214
Net Income
-$21,004
Net Assets
$17,103
Notable Sources of Revenue Percent of Total Revenue
Contributions $295,205
100.0%
Program Services $0
Investment Income $5
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $31,911
Total Liabilities $14,808
Net Assets $17,103
Compensation
Key Employees and Officers Compensation Related Other
Richard A Basile (Chief Exec.) $74,416 $0 $0
Barbara L Handelin Phd (Chief Exec.) $70,580 $0 $0
David Spencer Phd (Chief Scient) $44,000 $0 $0
Erik Tambuyzer Phd (Chair) $0 $0 $0
Marlene Haffner Md Mph (Vice Chair) $0 $0 $0
Susan R Kahn (Director) $0 $0 $0
Warren Strittmatter Md (Director) $0 $0 $0
Jean Jacques Cassiman Md (Director) $0 $0 $0
Christian Policard Phd (Director) $0 $0 $0
Susan Hayflick Md (Director) $0 $0 $0
Howard Liebman (Director) $0 $0 $0
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990
Filed on May 4, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$355,144
Expenses
$420,249
Net Income
-$65,105
Net Assets
$38,107
Notable Sources of Revenue Percent of Total Revenue
Contributions $355,110
100.0%
Program Services $0
Investment Income $34
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $69,352
16.5%
Other Salaries and Wages $0
Assets/Debt
Total Assets $56,794
Total Liabilities $18,687
Net Assets $38,107
Compensation
Key Employees and Officers Compensation Related Other
Barbara L Handelin Phd (Chief Exec.) $86,663 $0 $0
Richard A Basile (Chief Operat) $83,667 $0 $0
David Spencer Phd (Chief Scient) $44,000 $0 $0
Erik Tambuyzer Phd (Chair) $0 $0 $0
Marlene Haffner Md Mph (Vice Chair) $0 $0 $0
Susan R Kahn (Director) $0 $0 $0
Warren Strittmatter Md (Director) $0 $0 $0
Jean Jacques Cassiman Md (Director) $0 $0 $0
Christian Policard Phd (Director) $0 $0 $0
Susan Hayflick Md (Director) $0 $0 $0
Howard Liebman (Director) $0 $0 $0
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990
Filed on May 15, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$270,965
Expenses
$169,524
Net Income
$101,441
Net Assets
$103,212
Notable Sources of Revenue Percent of Total Revenue
Contributions $270,907
100.0%
Program Services $0
Investment Income $58
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $10,690
6.3%
Other Salaries and Wages $0
Assets/Debt
Total Assets $131,553
Total Liabilities $28,341
Net Assets $103,212
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Barbara L Handelin Phd (Chief Executive Officer) $40,000 $0 $0
Richard A Basile (Chief Operating Officer) $40,000 $0 $0
Erik Tambuyzer Phd (Chair) $0 $0 $0
Marlene Haffner Md Mph (Vice Chair) $0 $0 $0
Susan R Kahn (Director) $0 $0 $0
Warren Strittmatter Md (Director) $0 $0 $0
Jean Jacques Cassiman Md (Director) $0 $0 $0
Christian Policard Phd (Director) $0 $0 $0
Susan Hayflick Md (Director) $0 $0 $0
Howard Liebman (Director) $0 $0 $0
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990
Filed on May 6, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$27,073
Expenses
$25,302
Net Income
$1,771
Net Assets
$1,771
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,073
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $1,771
Total Liabilities $0
Net Assets $1,771
Compensation
Key Employees and Officers Compensation Other
Barbara Handelin Ph D (Ceo) $0 $0
Richard A Basile (Coo) $0 $0

Document Links

990-EZ
Filed on May 14, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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