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Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nerve, Muscle and Bone Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
−$12k (2022)

Expenses
$1.23M (2022)

Total Assets
$6.35M (2022)

Total Liabilities
$31.2k (2022)

Source: Form 990 tax filings from 2015 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
-$12,049
Expenses
$1,225,402
Net Income
-$1,237,451
Net Assets
$6,323,117
Notable Sources of Revenue Percent of Total Revenue
Contributions $957,217
Program Services $0
Investment Income $518
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$989,040
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $19,256
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $59,527
4.9%
Assets/Debt
Total Assets $6,354,337
Total Liabilities $31,220
Net Assets $6,323,117
Compensation
Key Employees and Officers Compensation Related Other
Beverly Goulet (Chairman) $0 $0 $0
Clare Durrett (Co Director/Managing Coord) $0 $0 $0
Paul Varisco (Director) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
William J Quinlan Jr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Pat Quinn (Board Member) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Elizabeth Bruce (Board Member) $0 $0 $0
John Costello (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,800,662
Expenses
$2,468,582
Net Income
-$667,920
Net Assets
$7,625,843
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,800,662
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $60,000
2.4%
Assets/Debt
Total Assets $7,757,258
Total Liabilities $131,415
Net Assets $7,625,843
Compensation
Key Employees and Officers Compensation Related Other
Beverly Goulet (Chairman) $0 $0 $0
Clare Durrett (Co Director/Managing Coordinator) $0 $0 $0
Paul Varisco (Director) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
William J Quinlan Jr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Pat Quinn (Board Member) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Elizabeth Bruce (Board Member) $0 $0 $0
John Costello (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,276,502
Expenses
$1,747,379
Net Income
$529,123
Net Assets
$8,296,549
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,276,502
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $60,000
3.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $8,316,048
Total Liabilities $19,499
Net Assets $8,296,549
Compensation
Key Employees and Officers Compensation Related Other
Beverly Goulet (Chairman) $0 $0 $0
Clare Durrett (Managing Coordinator) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
Paul Varisco (Co Coordinator) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Jay Quinlan (Board Member) $0 $0 $0
John Costello (Board Member) $0 $0 $0
Elizabeth Bruce (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,360,589
Expenses
$2,336,639
Net Income
-$976,050
Net Assets
$7,767,426
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,559,568
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$198,979
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $32,308
1.4%
Assets/Debt
Total Assets $8,202,383
Total Liabilities $434,957
Net Assets $7,767,426
Compensation
Key Employees and Officers Compensation Related Other
Beverly Goulet (Chairman & Director) $0 $0 $0
Thomas Capella (Treasurer) $0 $0 $0
Clare Durrett (Board Member/Managing Coordinator) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
Paul Varisco (Board Member/Co Coordinator) $0 $0 $0
David Sherman (Secretary) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Gianugo Rabellino (Board Member) $0 $0 $0
Jay Quinlan (Board Member) $0 $0 $0
Patrick Quinn (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$8,405,871
Expenses
$1,656,771
Net Income
$6,749,100
Net Assets
$8,743,476
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,826,026
81.2%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $1,579,845
18.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $9,195,404
Total Liabilities $451,928
Net Assets $8,743,476
Compensation
Key Employees and Officers Compensation Related Other
Paul Varisco (Director) $0 $0 $0
Thomas Capella (Secretary) $0 $0 $0
Clare Durrett (Board Member) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
Beverly Goulet (Board Member) $0 $0 $0
Patrick Quinn (Board Member) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Gianugo Rabellino (Board Member) $0 $0 $0
Jay Quinlan (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,166,797
Expenses
$1,826,704
Net Income
$340,093
Net Assets
$1,994,376
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,627,678
75.1%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $539,119
24.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,069,660
Total Liabilities $75,284
Net Assets $1,994,376
Compensation
Key Employees and Officers Compensation Related Other
Clare Durrett (Board Member) $33,000 $0 $0
Paul Varisco (Director) $0 $0 $0
Thomas Capella (Secretary) $0 $0 $0
Steve Gleason (Board Member) $0 $0 $0
Beverly Goulet (Board Member) $0 $0 $0
Patrick Quinn (Board Member) $0 $0 $0
Michelle Farr (Board Member) $0 $0 $0
Steve Finkbeiner (Board Member) $0 $0 $0
Gianugo Rabellino (Board Member) $0 $0 $0
Jay Quinlan (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,142,342
Expenses
$271,323
Net Income
$871,019
Net Assets
$1,151,283
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,142,342
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,151,283
Total Liabilities $0
Net Assets $1,151,283
Compensation
Key Employees and Officers Compensation Related Other
Claire Durrett (Board Member) $21,000 $0 $0
Paul Varisco (Director) $0 $0 $0
Tom Capella (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$438,943
Expenses
$158,679
Net Income
$280,264
Net Assets
$280,264
Notable Sources of Revenue Percent of Total Revenue
Contributions $440,835
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$2,177
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $285
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $280,264
Total Liabilities $0
Net Assets $280,264
Compensation
Key Employees and Officers Compensation Related Other
Paul Varisco (Director) $0 $0 $0
Tom Capella (Secretary) $0 $0 $0
Claire Burrett (Board Member) $0 $0 $0

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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