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Amyloidosis Research Consortium Inc

  • Newton, MA
  • Tax-exempt since Aug. 2015
  • EIN: 47-2589708

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$2.89M (2023)

Expenses
$2.42M (2023)

Total Assets
$2.98M (2023)

Total Liabilities
$227k (2023)

Source: Form 990 tax filings from 2015 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,888,025
Expenses
$2,415,059
Net Income
$472,966
Net Assets
$2,748,763
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,702,741
93.6%
Program Services $1,525
0.1%
Investment Income $54,751
1.9%
Bond Proceeds $0
Royalties $46,942
1.6%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $82,066
2.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $178,365
7.4%
Professional Fundraising Fees $0
Other Salaries and Wages $1,130,531
46.8%
Assets/Debt
Total Assets $2,975,266
Total Liabilities $226,503
Net Assets $2,748,763
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President/Ceo & Secretary) $178,365 $0 $0
Sarah Cairns Smith (Chair) $0 $0 $0
Rick Nathanson (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
Dena Heath (Board Member) $0 $0 $0
Dr Ashutosh Wechalekar (Board Member) $0 $0 $0
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Document Links

990
Filed on Nov. 7, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,260,256
Expenses
$2,129,932
Net Income
$130,324
Net Assets
$2,215,350
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,219,649
98.2%
Program Services $0
Investment Income $38,694
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,913
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $173,676
8.2%
Professional Fundraising Fees $0
Other Salaries and Wages $858,435
40.3%
Assets/Debt
Total Assets $2,516,230
Total Liabilities $300,880
Net Assets $2,215,350
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President/Ceo & Clerk) $174,102 $0 $0
Vanessa Boulanger (Dir Of Patient Engagement) $131,888 $0 $0
Kristen Hsu (Executive Director Of Clinical Research) $125,022 $0 $0
Sarah Cairns Smith (Chair) $0 $0 $0
Dr Giampaolo Merlini (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
Dena Heath (Board Member) $0 $0 $0
Dr Ashutosh Wechalekar (Board Member) $0 $0 $0
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Document Links

990
Filed on Sept. 13, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,647,972
Expenses
$1,682,131
Net Income
-$34,159
Net Assets
$2,195,942
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,472,339
89.3%
Program Services $2,258
0.1%
Investment Income $724
0.0%
Bond Proceeds $0
Royalties $164,964
10.0%
Rental Property Income $7,687
0.5%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $142,428
8.5%
Professional Fundraising Fees $0
Other Salaries and Wages $656,716
39.0%
Assets/Debt
Total Assets $2,350,923
Total Liabilities $154,981
Net Assets $2,195,942
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (Ceo & Clerk) $142,005 $0 $249
Kristen Hsu (Exec. Dir. Of Clinical Research) $120,967 $0 $249
Robyn Himick (Assoc. Dir. Of Clinical Research) $110,449 $0 $235
Dr Giampaolo Merlini (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Dena Heath (Board Member) $0 $0 $0
Sarah Cairns Smith (President/Board Chair) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
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Document Links

990
Filed on Nov. 15, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,125,459
Expenses
$1,233,948
Net Income
$891,511
Net Assets
$1,986,315
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,909,160
89.8%
Program Services $7,472
0.4%
Investment Income $827
0.0%
Bond Proceeds $0
Royalties $208,000
9.8%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $138,038
11.2%
Professional Fundraising Fees $0
Other Salaries and Wages $422,743
34.3%
Assets/Debt
Total Assets $2,277,557
Total Liabilities $291,242
Net Assets $1,986,315
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President/Ceo & Clerk) $137,869 $0 $0
Robyn Himick (Assoc. Dir. Of Clinical Research) $107,231 $0 $0
Dr Giampaolo Merlini (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Dena Heath (Board Member) $0 $0 $0
Sarah Cairns Smith (Board Chair) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
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Document Links

990
Filed on May 18, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,697,298
Expenses
$1,328,269
Net Income
$369,029
Net Assets
$1,094,804
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,684,866
99.3%
Program Services $11,575
0.7%
Investment Income $857
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $132,084
9.9%
Professional Fundraising Fees $0
Other Salaries and Wages $474,011
35.7%
Assets/Debt
Total Assets $1,394,467
Total Liabilities $299,663
Net Assets $1,094,804
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President & Ceo) $130,625 $0 $0
Kristen Hsu (Exec. Dir. Of Clinical Research) $114,375 $0 $0
Robyn Himick (Assoc. Dir. Of Clinical Research) $103,125 $0 $0
Liv Woods (Secretary/Dir Of Operations) $60,960 $0 $0
Dr Giampaolo Merlini (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Dena Heath (Board Member) $0 $0 $0
Sarah Cairns Smith (Board Chair) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
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Document Links

990
Filed on July 10, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,416,444
Expenses
$1,659,988
Net Income
-$243,544
Net Assets
$725,775
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,409,895
99.5%
Program Services $5,952
0.4%
Investment Income $597
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,001
6.0%
Professional Fundraising Fees $0
Other Salaries and Wages $452,666
27.3%
Assets/Debt
Total Assets $1,548,310
Total Liabilities $822,535
Net Assets $725,775
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President & Ceo) $104,167 $0 $0
Kristen Hsu (Executive Director Of Clinical Research) $104,167 $0 $0
Robyn Himick (Associate Director Of Clinical Research) $104,167 $0 $0
Dr Giampaolo Merlini (Board Member) $0 $0 $0
Dr Raymond Comenzo (Board Member) $0 $0 $0
Dena Heath (Secretary) $0 $0 $0
Sarah Cairns Smith (Board Chair) $0 $0 $0
Jason Shore (Treasurer) $0 $0 $0
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990
Filed on Nov. 1, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,278,010
Expenses
$905,160
Net Income
$372,850
Net Assets
$969,319
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,271,230
99.5%
Program Services $6,467
0.5%
Investment Income $313
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $174,997
19.3%
Professional Fundraising Fees $0
Other Salaries and Wages $231,636
25.6%
Assets/Debt
Total Assets $1,077,608
Total Liabilities $108,289
Net Assets $969,319
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President & Ceo) $100,000 $0 $0
Eric Low (Former Director) $74,997 $0 $0
Dr Giampaolo Merlini (Board Co Chair) $0 $0 $0
Dr Raymond Comenzo (Board Co Chair) $0 $0 $0
Dena Heath (Secretary/Treasurer) $0 $0 $0
Mary O'donnell (Former Director) $0 $0 $0
Sarah Cairns Smith (Director) $0 $0 $0
Mike Zelin (Former Director) $0 $0 $0
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990
Filed on Oct. 29, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$811,069
Expenses
$658,640
Net Income
$152,429
Net Assets
$596,469
Notable Sources of Revenue Percent of Total Revenue
Contributions $793,854
97.9%
Program Services $17,051
2.1%
Investment Income $164
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $162,875
24.7%
Professional Fundraising Fees $50,000
7.6%
Other Salaries and Wages $20,370
3.1%
Assets/Debt
Total Assets $623,943
Total Liabilities $27,474
Net Assets $596,469
Compensation
Key Employees and Officers Compensation Related Other
Isabelle Lousada (President & Ceo) $91,667 $0 $0
Mary Ellen Thomas (Exec. Operations Officer) $62,042 $0 $0
Giampaolo Merlini (Board Co Chair) $0 $0 $0
Raymond Comenzo (Board Co Chair) $0 $0 $0
Dena Heath (Secretary/Treasurer) $0 $0 $0
Mary O'donnell (Director) $0 $0 $0
Sarah Cairns Smith (Director) $0 $0 $0
Eric Low (Director) $0 $0 $0
Mike Zelin (Director) $0 $0 $0
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990
Filed on June 28, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$750,022
Expenses
$305,982
Net Income
$444,040
Net Assets
$444,040
Notable Sources of Revenue Percent of Total Revenue
Contributions $749,981
100.0%
Program Services $0
Investment Income $41
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $34,744
11.4%
Professional Fundraising Fees $0
Other Salaries and Wages $608
0.2%
Assets/Debt
Total Assets $467,346
Total Liabilities $23,306
Net Assets $444,040
Compensation
Key Employees and Officers Compensation Related Other
Mary Ellen Thomas (Exec. Operations Officer) $34,841 $0 $0
Isabelle Lousada (President & Ceo) $0 $0 $0
Giampaolo Merlini (Board Co Chair) $0 $0 $0
Raymond Comenzo (Board Co Chair) $0 $0 $0
Dena Heath (Secretary/Treasurer) $0 $0 $0
Mary O'donnell (Director) $0 $0 $0
Sarah Cairns Smith (Director) $0 $0 $0
Eric Low (Director) $0 $0 $0
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Document Links

990
Filed on June 21, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Byline

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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