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Ftd Disorders Registry Llc

  • Kng Of Prussa, PA
  • Tax-exempt since March 2016
  • EIN: 47-3601782

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Alzheimer's Disease (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$871k (2025)

Expenses
$893k (2025)

Total Assets
$2.22M (2025)

Total Liabilities
$236k (2025)

Source: Form 990 tax filings from 2015 to 2025

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2025

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$871,164
Expenses
$892,503
Net Income
-$21,339
Net Assets
$1,982,345
Notable Sources of Revenue Percent of Total Revenue
Contributions $800,479
91.9%
Program Services $0
Investment Income $70,685
8.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $461,511
51.7%
Assets/Debt
Total Assets $2,218,789
Total Liabilities $236,444
Net Assets $1,982,345
Compensation
Key Employees and Officers Compensation Related Other
Carrie Milliard (Registry Director) $149,435 $0 $17,265
Susan Dickinson (Director Aftd Member Repre) $0 $320,026 $29,988
Laura Mitic (Director Bluefield Member) $0 $145,000 $0
Penny Dacks (President) $0 $226,491 $17,572
Mitch Appleson (Coo And Secretary) $0 $255,015 $28,570
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Document Links

990
Filed on Nov. 11, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,031,597
Expenses
$955,293
Net Income
$76,304
Net Assets
$2,003,684
Notable Sources of Revenue Percent of Total Revenue
Contributions $946,443
91.7%
Program Services $0
Investment Income $85,154
8.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $443,464
46.4%
Assets/Debt
Total Assets $2,410,986
Total Liabilities $407,302
Net Assets $2,003,684
Compensation
Key Employees and Officers Compensation Related Other
Carrie Milliard (Registry Director) $76,816 $64,950 $25,561
Susan Dickinson (Director Aftd Member Representative) $0 $299,574 $27,277
Rodney Pearlman Thru 83123 (Director Bluefield Member Representative) $0 $343,000 $77,118
Laura Mitic Eff 9123 (Director Bluefield Member Representative) $0 $101,728 $0
Penny Dacks (President) $0 $215,668 $15,410
Christine Stevens (Cfo (Thru 9/24)) $0 $182,806 $25,570
Mitch Appleson (Coo And Secretary) $0 $239,433 $30,583
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Document Links

990
Filed on Nov. 13, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,600,782
Expenses
$759,009
Net Income
$841,773
Net Assets
$1,927,380
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,579,800
98.7%
Program Services $0
Investment Income $20,982
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $370,450
48.8%
Assets/Debt
Total Assets $2,043,499
Total Liabilities $116,119
Net Assets $1,927,380
Compensation
Key Employees and Officers Compensation Related Other
Dianna Wheaton Thru Jan 2023 (Registry Director) $118,188 $0 $49,480
Susan Dickinson (Director Aftd Member Representative) $0 $302,707 $27,628
Rodney Pearlman (Director) $0 $368,000 $0
Penny Dacks (President) $0 $207,660 $15,798
Christine Stevens (Cfo) $0 $180,146 $26,752
Mitch Appleson (Coo And Secretary) $0 $169,049 $12,092
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Document Links

990
Filed on Nov. 14, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$727,717
Expenses
$734,316
Net Income
-$6,599
Net Assets
$1,085,607
Notable Sources of Revenue Percent of Total Revenue
Contributions $727,675
100.0%
Program Services $0
Investment Income $42
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $347,961
47.4%
Assets/Debt
Total Assets $1,122,791
Total Liabilities $37,184
Net Assets $1,085,607
Compensation
Key Employees and Officers Compensation Related Other
Dianna Wheaton (Registry Director) $127,211 $0 $41,259
Susan Dickinson (Director Aftd Member Representative) $0 $226,222 $24,592
Rodney Pearlman (Director) $0 $354,500 $0
Penny Dacks (President) $0 $197,476 $14,834
Christine Stevens (Cfo) $0 $185,004 $25,615
Mitch Appleson Eff March 2022 (Coo And Secretary) $0 $0 $0
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Document Links

990
Filed on Dec. 19, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$439,215
Expenses
$344,662
Net Income
$94,553
Net Assets
$1,092,206
Notable Sources of Revenue Percent of Total Revenue
Contributions $439,183
100.0%
Program Services $0
Investment Income $32
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $135,788
39.4%
Assets/Debt
Total Assets $1,129,264
Total Liabilities $37,058
Net Assets $1,092,206

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$543,584
Expenses
$747,952
Net Income
-$204,368
Net Assets
$997,653
Notable Sources of Revenue Percent of Total Revenue
Contributions $543,370
100.0%
Program Services $0
Investment Income $214
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $316,009
42.2%
Assets/Debt
Total Assets $1,086,052
Total Liabilities $88,399
Net Assets $997,653
Compensation
Key Employees and Officers Compensation Related Other
Dianna Wheaton (Registry Director) $101,063 $0 $22,012
Rodney Pearlman (Director) $0 $373,000 $46,316
Susan Dickinson (Director) $0 $196,500 $13,161
Christine Stevens (Cfo) $0 $136,875 $21,068
Penny Dacks (President And Secretary) $0 $43,681 $0
Gail Anderson (Director (Thru 11/20)) $0 $0 $0
Laura Mitic (Director (Thru 11/20)) $0 $0 $0
Diana Shineman (Director (Thru 11/20)) $0 $0 $0
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Document Links

990
Filed on Nov. 10, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$762,008
Expenses
$537,839
Net Income
$224,169
Net Assets
$1,202,021
Notable Sources of Revenue Percent of Total Revenue
Contributions $761,664
100.0%
Program Services $0
Investment Income $344
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,250,745
Total Liabilities $48,724
Net Assets $1,202,021
Compensation
Key Employees and Officers Compensation Related Other
Jary Larsen (President) $0 $0 $0
Rodney Pearlman (Treasurer) $0 $0 $0
Laura Mitic (Secretary) $0 $0 $0
Patrick Brannelly (Director) $0 $0 $0
Susan Dickinson (Director) $0 $0 $0
Diana Shineman (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 14, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$489,156
Expenses
$369,382
Net Income
$119,774
Net Assets
$977,852
Notable Sources of Revenue Percent of Total Revenue
Contributions $486,811
99.5%
Program Services $0
Investment Income $313
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,032
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,008,189
Total Liabilities $30,337
Net Assets $977,852
Compensation
Key Employees and Officers Compensation Related Other
Jary Larsen (President) $0 $0 $0
Rodney Pearlman (Treasurer) $0 $0 $0
Laura Mitic (Secretary) $0 $0 $0
Patrick Brannelly (Director) $0 $0 $0
Susan Dickinson (Director) $0 $0 $0
Diana Shineman (Director) $0 $0 $0
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Document Links

990
Filed on Aug. 9, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$611,229
Expenses
$303,973
Net Income
$307,256
Net Assets
$858,078
Notable Sources of Revenue Percent of Total Revenue
Contributions $611,074
100.0%
Program Services $0
Investment Income $155
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $875,990
Total Liabilities $17,912
Net Assets $858,078
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Jary Larsen (President) $0 $0 $0
Rodney Pearlman (Treasurer) $0 $0 $0
Suzanne Markel Fox (Secretary) $0 $0 $0
Patrick Brannelly (Director) $0 $0 $0
Susan Dickinson (Director) $0 $0 $0
Laura Mitic (Director) $0 $0 $0
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990
Filed on June 28, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$234,540
Expenses
$264,834
Net Income
-$30,294
Net Assets
$500,822
Notable Sources of Revenue Percent of Total Revenue
Contributions $234,421
99.9%
Program Services $0
Investment Income $119
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $515,815
Total Liabilities $14,993
Net Assets $500,822
Compensation
Key Employees and Officers Compensation Related Other
Emily Levy (President) $0 $0 $0
Rodney Pearlman (Treasurer) $0 $0 $0
Suzanne Markel Fox (Director) $0 $0 $0
Patrick Brannelly (Director) $0 $0 $0
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990
Filed on May 30, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$358,325
Expenses
$77,209
Net Income
$281,116
Net Assets
$456,116
Notable Sources of Revenue Percent of Total Revenue
Contributions $358,280
100.0%
Program Services $0
Investment Income $45
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $472,062
Total Liabilities $15,946
Net Assets $456,116
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Rodney Pearlman (Treasurer) $0 $0 $0
Emily Levy (President) $0 $0 $0
Suzanne Markel Fox (Director) $0 $0 $0
Patrick Brannelly (Director) $0 $0 $0
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Document Links

990
Filed on June 10, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

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