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Neuromuscular Study Group Inc

  • Kansas City, KS
  • Tax-exempt since Aug. 2019
  • EIN: 47-4456205

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Nerve, Muscle, Bone Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$589k (2024)

Expenses
$519k (2024)

Total Assets
$531k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2015 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$588,959
Expenses
$519,092
Net Income
$69,867
Net Assets
$530,512
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $580,823
98.6%
Investment Income $8,136
1.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $530,512
Total Liabilities $0
Net Assets $530,512
Compensation
Key Employees and Officers Compensation Related Other
Amanda Guidon Md (Investigator Member) $0 $0 $0
Michael Hehir Md (Investigator Member) $0 $0 $0
John Vissing Md (Investigator Member) $0 $0 $0
Michaela Walker Mph Ccrp (Coordinator Member) $0 $0 $0
Michael Mc Dermott Ph D (Biostatistician) $0 $0 $0
Emma Ciafaloni Md Faan (Director) $0 $0 $0
James Lilleker Mb Ch B Mrcp Ph D (Investigator Member) $0 $0 $0
Bhaskar Roy Mbb Mhs (Young Investigator Member) $0 $0 $0
Richard Barohn Md (Chair) $0 $0 $0
Michael Hanna Md (Co Chair) $0 $0 $0
Mazen Dimachkie Md (Treasurer) $0 $0 $0
Liz Paulk (Secretary) $0 $0 $0
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Document Links

990
Filed on June 9, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$434,016
Expenses
$462,062
Net Income
-$28,046
Net Assets
$460,644
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $428,105
98.6%
Investment Income $611
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,300
1.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $460,644
Total Liabilities $0
Net Assets $460,644
Compensation
Key Employees and Officers Compensation Related Other
Robert Griggs Md (Chairman Emeritus) $0 $0 $0
Valeria Sansone Md (Investigator Member) $0 $0 $0
William David Md Ph D (Investigator Member) $0 $0 $0
Michael Hehir Md (Investigator Member) $0 $0 $0
Marie Wencel Ccrpi (Coordinator Member) $0 $0 $0
Melissa Mc Intyre Dpt (Evaluator Member) $0 $0 $0
Michael Mc Dermott Ph D (Biostatistician) $0 $0 $0
Rabi Tawil Md (Director) $0 $0 $0
Mazen Dimachkie Md (Treasurer) $0 $0 $0
Richard Barohn Md (Chair) $0 $0 $0
Michael Hanna Md (Co Chair) $0 $0 $0
Liz Paulk (Secretary) $0 $0 $0
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Document Links

990
Filed on July 22, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$278,605
Expenses
$425,917
Net Income
-$147,312
Net Assets
$488,693
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $278,605
100%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $488,693
Total Liabilities $0
Net Assets $488,693
Compensation
Key Employees and Officers Compensation Related Other
Richard Barohn Md (Chair) $0 $0 $0
Michael Hanna Md (Co Chair) $0 $0 $0
Robert Griggs Md (Chairman Eme) $0 $0 $0
Valeria Sansone Md (Investigator) $0 $0 $0
William David Md Phd (Investigator) $0 $0 $0
Michael Hehir Md (Investigator) $0 $0 $0
Marie Wencel Ccrpi (Coordinator) $0 $0 $0
Melissa Mcintyre Dpt (Evaluator Me) $0 $0 $0
Michael Mcdermott Phd (Biostatistic) $0 $0 $0
Rabi Tawil Md (Director) $0 $0 $0
Mazen Dimachkie Md (Treasurer) $0 $0 $0
Liz Paulk (Secretary) $0 $0 $0
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Document Links

990
Filed on July 1, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$428,433
Expenses
$192,454
Net Income
$235,979
Net Assets
$636,005
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $428,433
100%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $636,005
Total Liabilities $0
Net Assets $636,005
Compensation
Key Employees and Officers Compensation Related Other
Marie Wencel Ccrpi (Coordinator) $0 $0 $0
Melissa Mcintyre Dpt (Evaluator Me) $0 $0 $0
Mazen Demachkie Md (Treasurer) $0 $0 $0
Michael Hehir Md (Investigator) $0 $0 $0
Rabi Tawil Md (Director) $0 $0 $0
Robert Griggs Md (Chairman Eme) $0 $0 $0
Valeria Sansone Md (Investigator) $0 $0 $0
Michael Mcdermott Phd (Biostatistic) $0 $0 $0
William David Md Phd (Investigator) $0 $0 $0
Michael Hanna Md (Co Chair) $0 $0 $0
Richard Barohn Md (Chair) $0 $0 $0
Liz Paulk (Secretary) $0 $0 $0
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Document Links

990
Filed on May 26, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$284,473
Expenses
$157,001
Net Income
$127,472
Net Assets
$400,026
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $284,473
100%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $29,979
19.1%
Assets/Debt
Total Assets $400,026
Total Liabilities $0
Net Assets $400,026
Compensation
Key Employees and Officers Compensation Related Other
Marie Wencel Ccrpi (Coordinator) $0 $0 $0
Melissa Mcintyre Dpt (Evaluator Me) $0 $0 $0
Michael Hehir Md (Investigator) $0 $0 $0
Rabi Tawil Md (Director) $0 $0 $0
Robert Griggs Md (Chairman Eme) $0 $0 $0
Valeria Sansone Md (Investigator) $0 $0 $0
Michael Mcdermott Phd (Biostatistic) $0 $0 $0
William David Md Phd (Investigator) $0 $0 $0
Mazen Dimachkie Md (Treasurer) $0 $0 $0
Michael Hanna Md (Co Chair) $0 $0 $0
Richard Barohn Md (Chair) $0 $0 $0
Abe Teferra (Secretary) $0 $0 $0
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Document Links

990
Filed on May 17, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$461,043
Expenses
$371,388
Net Income
$89,655
Net Assets
$272,554
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,500
0.5%
Program Services $458,543
99.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $57,500
15.5%
Assets/Debt
Total Assets $272,554
Total Liabilities $0
Net Assets $272,554
Compensation
Key Employees and Officers Compensation Related Other
Marie Wencel Ccrpi (Coordinator) $0 $0 $0
Melissa Mcintyre Dpt (Evaluator Me) $0 $0 $0
Mazen Dimachkie Md (Investigator) $0 $0 $0
Rabi Tawil Md (Director) $0 $0 $0
Robert Griggs Md (Immediate Pa) $0 $0 $0
Valeria Sansone Md (Investigator) $0 $0 $0
Michael Mcdermott Phd (Biostatistic) $0 $0 $0
William David Md Phd (Investigator) $0 $0 $0
Michael Hanna Md (Vice Chair) $0 $0 $0
Richard Barohn Md (Chair) $0 $0 $0
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Document Links

990
Filed on July 9, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$350,603
Expenses
$244,989
Net Income
$105,614
Net Assets
$182,899
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,000
3.4%
Program Services $338,603
96.6%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $182,899
Total Liabilities $0
Net Assets $182,899

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$254,954
Expenses
$210,040
Net Income
$44,914
Net Assets
$77,285
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,500
2.2%
Program Services $249,454
97.8%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $5,077
2.4%
Assets/Debt
Total Assets $77,285
Total Liabilities $0
Net Assets $77,285

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$213,854
Expenses
$181,483
Net Income
$32,371
Net Assets
$32,371
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,000
4.7%
Program Services $203,854
95.3%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $32,371
Total Liabilities $0
Net Assets $32,371

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$0
Expenses
$0
Net Income
$0
Net Assets
$1
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $1
Total Liabilities $0
Net Assets $1

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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