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Society For Birth Defects Research And Prevention

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Science and Technology Research Institutes, Services / Biological, Life Science Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$496k (2023)

Expenses
$456k (2023)

Total Assets
$1.51M (2023)

Total Liabilities
$58.5k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$495,809
Expenses
$456,203
Net Income
$39,606
Net Assets
$1,450,651
Notable Sources of Revenue Percent of Total Revenue
Contributions $84,868
17.1%
Program Services $252,674
51.0%
Investment Income $33,453
6.7%
Bond Proceeds $0
Royalties $107,468
21.7%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $17,346
3.5%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,509,190
Total Liabilities $58,539
Net Assets $1,450,651
Compensation
Key Employees and Officers Compensation Related Other
Anthony M Delise (President) $0 $0 $0
Philip Lupo (Vice President) $0 $0 $0
Pragati Coder (Vice President Elect) $0 $0 $0
Amy Lavin Williams (Secretary) $0 $0 $0
Linda Roberts (Treasurer) $0 $0 $0
Bruce K Beyer (Past President) $0 $0 $0
Janet R Hardy (Councilor) $0 $0 $0
Marcia Lynn Feldkamp (Councilor) $0 $0 $0
Kary Thompson (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$502,246
Expenses
$596,019
Net Income
-$93,773
Net Assets
$1,367,638
Notable Sources of Revenue Percent of Total Revenue
Contributions $92,225
18.4%
Program Services $248,359
49.4%
Investment Income $27,999
5.6%
Bond Proceeds $0
Royalties $117,140
23.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $16,523
3.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $10,500
1.8%
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,407,940
Total Liabilities $40,302
Net Assets $1,367,638
Compensation
Key Employees and Officers Compensation Related Other
Bruce K Beyer (President) $0 $0 $0
Anthony M Delise (Vice President) $0 $0 $0
Philip Lupo (Vice President Elect) $0 $0 $0
Amy Lavin Williams (Secretary) $0 $0 $0
Linda Roberts (Treasurer) $0 $0 $0
Susan L Makris (Past President) $0 $0 $0
Janet R Hardy (Councilor) $0 $0 $0
Marcia Lynn Feldkamp (Councilor) $0 $0 $0
Joshua F Robinson (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$650,178
Expenses
$458,247
Net Income
$191,931
Net Assets
$1,613,472
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,094
10.3%
Program Services $316,876
48.7%
Investment Income $29,411
4.5%
Bond Proceeds $0
Royalties $131,209
20.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $105,588
16.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,685,063
Total Liabilities $71,591
Net Assets $1,613,472
Compensation
Key Employees and Officers Compensation Related Other
Susan L Makris (President) $0 $0 $0
Bruce K Beyer (Vice President) $0 $0 $0
Anthony M Delise (Vice President Elect) $0 $0 $0
Amy Lavin Williams (Secretary) $0 $0 $0
Pragati Sawhney Coder (Treasurer) $0 $0 $0
Elise Madison Lewis (Past President) $0 $0 $0
Janet R Hardy (Councilor) $0 $0 $0
Nicole Churchill Kleinstreuer (Councilor) $0 $0 $0
Joshua F Robinson (Councilor) $0 $0 $0
Jeffrey H Charlap (Councilor) $0 $0 $0
Marcia Lynn Feldkamp (Councilor) $0 $0 $0
Russell S Kirby (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$425,748
Expenses
$493,974
Net Income
-$68,226
Net Assets
$1,440,746
Notable Sources of Revenue Percent of Total Revenue
Contributions $64,388
15.1%
Program Services $182,524
42.9%
Investment Income $27,023
6.3%
Bond Proceeds $0
Royalties $137,803
32.4%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $14,010
3.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,494,223
Total Liabilities $53,477
Net Assets $1,440,746
Compensation
Key Employees and Officers Compensation Related Other
Elise Lewis (President) $0 $0 $0
Susan Makris (Vice President) $0 $0 $0
Bruce Beyer (Vice President Elect) $0 $0 $0
Christine Curran (Past President) $0 $0 $0
Pragati Coder (Treasurer) $0 $0 $0
Anthony Delise (Secretary) $0 $0 $0
Kimberly Brannen (Councilor) $0 $0 $0
Nicole Kleinstreuer (Councilor) $0 $0 $0
Joshua Robinson (Councilor) $0 $0 $0
Jeffrey Charlap (Councilor) $0 $0 $0
Marcia Feldkamp (Councilor) $0 $0 $0
Russell Kirby (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$594,525
Expenses
$616,157
Net Income
-$21,632
Net Assets
$1,433,518
Notable Sources of Revenue Percent of Total Revenue
Contributions $77,217
13.0%
Program Services $317,536
53.4%
Investment Income $29,833
5.0%
Bond Proceeds $0
Royalties $163,823
27.6%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $6,116
1.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,480,920
Total Liabilities $47,402
Net Assets $1,433,518
Compensation
Key Employees and Officers Compensation Related Other
Christine Curran (President) $0 $0 $0
Elise Lewis (Vice President) $0 $0 $0
Susan Makris (Vice President Elect) $0 $0 $0
Dana Shuey (Past President) $0 $0 $0
Pragati Coder (Treasurer) $0 $0 $0
Anthony Delise (Secretary) $0 $0 $0
Kimberly Brannen (Councilor) $0 $0 $0
Gloria Jahnke (Councilor) $0 $0 $0
Nicole Kleinstreuer (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$648,923
Expenses
$631,173
Net Income
$17,750
Net Assets
$1,325,883
Notable Sources of Revenue Percent of Total Revenue
Contributions $72,742
11.2%
Program Services $286,135
44.1%
Investment Income $34,054
5.2%
Bond Proceeds $0
Royalties $158,969
24.5%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $97,023
15.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,376,826
Total Liabilities $50,943
Net Assets $1,325,883
Compensation
Key Employees and Officers Compensation Related Other
Dana Shuey (President) $0 $0 $0
Christine Perdan Curran (Vice President) $0 $0 $0
Elise Madison Lewis (Vice President Elect) $0 $0 $0
Alan Hoberman (Past President) $0 $0 $0
Anthony Delise (Treasurer) $0 $0 $0
Chris Stodgell (Secretary) $0 $0 $0
Kimberly Brannen (Councilor) $0 $0 $0
Bruce Beyer (Councilor) $0 $0 $0
Gloria Jahnke (Councilor) $0 $0 $0
Linda Roberts (Councilor) $0 $0 $0
Susan Makris (Councilor) $0 $0 $0
Brian Enright (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$592,015
Expenses
$666,007
Net Income
-$73,992
Net Assets
$1,459,853
Notable Sources of Revenue Percent of Total Revenue
Contributions $91,202
15.4%
Program Services $260,910
44.1%
Investment Income $37,813
6.4%
Bond Proceeds $0
Royalties $135,958
23.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $66,132
11.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,530,939
Total Liabilities $71,086
Net Assets $1,459,853
Compensation
Key Employees and Officers Compensation Related Other
Alan Hoberman (President) $0 $0 $0
Dana Shuey (Vice President) $0 $0 $0
Christine Perdan Curran (Vice President Elect) $0 $0 $0
Sonja Rasmussen (Past President) $0 $0 $0
Chris Stodgell (Treasurer) $0 $0 $0
Anthony Delise (Secretary) $0 $0 $0
Barbara Abbott (Councilor) $0 $0 $0
Bruce Beyer (Councilor) $0 $0 $0
Gloria Jahnke (Councilor) $0 $0 $0
Linda Roberts (Councilor) $0 $0 $0
Susan Makris (Councilor) $0 $0 $0
Brian Enright (Councilor) $0 $0 $0
Tacey Ek White Phd (Past President) $0 $0 $0
Sarah G Obican Md (Councilor) $0 $0 $0
Norbert Makori Phd Dabt (Publications Committee Chair) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$508,320
Expenses
$607,394
Net Income
-$99,074
Net Assets
$1,510,934
Notable Sources of Revenue Percent of Total Revenue
Contributions $85,183
16.8%
Program Services $229,924
45.2%
Investment Income $30,749
6.0%
Bond Proceeds $0
Royalties $140,952
27.7%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $21,192
4.2%
Net Inventory Sales $0
Other Revenue $320
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,590,955
Total Liabilities $80,021
Net Assets $1,510,934
Compensation
Key Employees and Officers Compensation Related Other
Tracey Ek White (President Until June 2016, Past President) $0 $0 $0
Sonja A Rasmussen (Vice President Until June 2016, President) $0 $0 $0
Alan M Hoberman (Vice President Elect Until June 2016, Vp) $0 $0 $0
Mary Alice Smith (Past President Until June 2016) $0 $0 $0
Anthony M Delise (Secretary) $0 $0 $0
Wafa A Harrouk (Treasurer, Until June 2016) $0 $0 $0
Barbara D Abbott (Councilor, Until June 2016) $0 $0 $0
Ludmila Bakhireva (Councilor, Until June 2016) $0 $0 $0
Sarah Gloria Obicon (Councilor) $0 $0 $0
Dana L Shuey (Vice President Elect As Of July 2016) $0 $0 $0
Chris J Stodgell (Treasurer As Of July 2016) $0 $0 $0
Barbara D Abbott (Councilor As Of July 2016) $0 $0 $0
Bruce K Beyer (Councilor As Of July 2016) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$545,019
Expenses
$537,934
Net Income
$7,085
Net Assets
$1,596,640
Notable Sources of Revenue Percent of Total Revenue
Contributions $92,448
17.0%
Program Services $273,120
50.1%
Investment Income $32,308
5.9%
Bond Proceeds $0
Royalties $139,159
25.5%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $7,984
1.5%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,669,503
Total Liabilities $72,863
Net Assets $1,596,640
Compensation
Key Employees and Officers Compensation Related Other
Tracey Ek White (President) $0 $0 $0
Sonja A Rasmussen (Vice President) $0 $0 $0
Alan M Hoberman (Vice President Elect) $0 $0 $0
Mary Alice Smith (Past President) $0 $0 $0
Anthony M Delise (Secretary) $0 $0 $0
Wafa A Harrouk (Treasurer) $0 $0 $0
Barbara D Abbott (Councilor) $0 $0 $0
Ludmila Bakhireva (Councilor) $0 $0 $0
Sarah Gloria Obicon (Councilor) $0 $0 $0
Heather Carskaddan (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$543,841
Expenses
$494,896
Net Income
$48,945
Net Assets
$1,621,110
Notable Sources of Revenue Percent of Total Revenue
Contributions $97,212
17.9%
Program Services $252,388
46.4%
Investment Income $29,095
5.3%
Bond Proceeds $0
Royalties $152,357
28.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $11,879
2.2%
Net Inventory Sales $0
Other Revenue $910
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,700,093
Total Liabilities $78,983
Net Assets $1,621,110
Compensation
Key Employees and Officers Compensation Related Other
Mary Alice Smith (President) $0 $0 $0
Tracey Ek White (Vice President) $0 $0 $0
Eve Mylchreest (Secretary) $0 $0 $0
Wafa A Harrouk (Treasurer) $0 $0 $0
Richard Finnell (Vice President Elect) $0 $0 $0
Elaine Z Francis (Past President) $0 $0 $0
Stephen B Harris (Councilor) $0 $0 $0
Ludmila Bakhireva (Councilor) $0 $0 $0
Sarah Gloria Obican (Councilor) $0 $0 $0
Tonia Masson (Exec. Director/Pt Yr) $0 $0 $0
Heather Carskaddan (Exec. Director/Pt Yr) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$551,921
Expenses
$445,413
Net Income
$106,508
Net Assets
$1,543,572
Notable Sources of Revenue Percent of Total Revenue
Contributions $128,266
23.2%
Program Services $234,786
42.5%
Investment Income $27,039
4.9%
Bond Proceeds $0
Royalties $144,579
26.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $15,935
2.9%
Net Inventory Sales $0
Other Revenue $1,316
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,604,225
Total Liabilities $60,653
Net Assets $1,543,572
Compensation
Key Employees and Officers Compensation Related Other
Elaine Francis (President) $0 $0 $0
Alice Smith (Vice President) $0 $0 $0
Eve Mylchreest (Secretary) $0 $0 $0
Wafa Harrouk (Treasurer) $0 $0 $0
Tacey White (Vice President Elect) $0 $0 $0
Ed Carney (Past President) $0 $0 $0
Stephen Harris (Councilor) $0 $0 $0
Ludmila Bakhireva (Councilor) $0 $0 $0
Eias Zahalka (Councilor) $0 $0 $0
Tonia Masson (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$569,703
Expenses
$540,134
Net Income
$29,569
Net Assets
$1,411,582
Notable Sources of Revenue Percent of Total Revenue
Contributions $100,608
17.7%
Program Services $274,465
48.2%
Investment Income $31,294
5.5%
Bond Proceeds $0
Royalties $130,000
22.8%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $32,191
5.7%
Net Inventory Sales $0
Other Revenue $1,145
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,471,418
Total Liabilities $59,836
Net Assets $1,411,582

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$605,813
Expenses
$484,641
Net Income
$121,172
Net Assets
$1,372,187
Notable Sources of Revenue Percent of Total Revenue
Contributions $112,811
18.6%
Program Services $305,968
50.5%
Investment Income $28,562
4.7%
Bond Proceeds $0
Royalties $134,087
22.1%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $22,640
3.7%
Net Inventory Sales $0
Other Revenue $1,745
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,439,142
Total Liabilities $66,955
Net Assets $1,372,187

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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