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International League Against Epilepsy

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health — General and Rehabilitative / Public Health Program (Includes General Health and Wellness Promotion Services) (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$4.58M (2022)

Expenses
$5.13M (2022)

Total Assets
$25.2M (2022)

Total Liabilities
$2M (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,579,167
Expenses
$5,131,704
Net Income
-$552,537
Net Assets
$23,181,371
Notable Sources of Revenue Percent of Total Revenue
Contributions $88,759
1.9%
Program Services $3,017,638
65.9%
Investment Income $591,129
12.9%
Bond Proceeds $0
Royalties $1,616,551
35.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$663,357
Net Inventory Sales $0
Other Revenue -$71,553
Notable Expenses Percent of Total Expenses
Executive Compensation $178,789
3.5%
Professional Fundraising Fees $0
Other Salaries and Wages $443,809
8.6%
Assets/Debt
Total Assets $25,182,697
Total Liabilities $2,001,326
Net Assets $23,181,371
Compensation
Key Employees and Officers Compensation Related Other
Linda Beza (Director Of Finance) $114,000 $0 $6,498
Priscilla Shisler (Director Of Engagement & E) $107,445 $0 $6,124
Nancy Volkers (Communications Officer) $102,600 $0 $5,848
Samuel Wiebe (Past President) $0 $0 $0
Helen Cross (President) $0 $0 $0
Alla Guekht (Treasurer) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Jaideep Kapur (Chair, Ilae North America) $0 $0 $0
Jo Wilmshurst (Chair, Ilae Africa) $0 $0 $0
John Dunne (Chair, Ilae Asia Oceania) $0 $0 $0
Matthew Walker (Chair, Ilae Europe) $0 $0 $0
Ghaieb Al Jandeel (Chair, Ilae Eastern Medite) $0 $0 $0
Roberto Caraballo (Vice President) $0 $0 $0
Mario Arturo Alonso Vanegas (Chair, Ilae Latin America) $0 $0 $0
Julie Hall (Executive Director) $0 $0 $178,789

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$10,070,838
Expenses
$3,636,660
Net Income
$6,434,178
Net Assets
$27,198,572
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,197
0.1%
Program Services $2,551,027
25.3%
Investment Income $599,344
6.0%
Bond Proceeds $0
Royalties $1,939,907
19.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $4,904,603
48.7%
Net Inventory Sales $0
Other Revenue $70,760
0.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $196,683
5.4%
Professional Fundraising Fees $0
Other Salaries and Wages $469,181
12.9%
Assets/Debt
Total Assets $28,768,514
Total Liabilities $1,569,942
Net Assets $27,198,572
Compensation
Key Employees and Officers Compensation Related Other
Priscilla Shisler (Director Of Engagement & Education) $108,388 $0 $0
Nancy Volkers (Communications Officer) $103,500 $0 $0
Samuel Wiebe (Past President) $0 $0 $0
Helen Cross (President) $0 $0 $0
Alla Guekht (Treasurer) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Jaideep Kapur (Chair, Ilae North America) $0 $0 $0
Jo Wilmshurst (Chair, Ilae Africa) $0 $0 $0
John Dunne (Chair, Ilae Asia Oceania) $0 $0 $0
Matthew Walker (Chair, Ilae Europe) $0 $0 $0
Ghaieb Al Jandeel (Chair, Ilae Eastern Medite) $0 $0 $0
Roberto Caraballo (Vice President) $0 $0 $0
Mario Arturo Alonso Vanegas (Chair, Ilae Latin America) $0 $0 $0
Julie Hall (Executive Director) $0 $0 $196,683

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,297,708
Expenses
$3,522,688
Net Income
$775,020
Net Assets
$23,770,939
Notable Sources of Revenue Percent of Total Revenue
Contributions $51,366
1.2%
Program Services $718,764
16.7%
Investment Income $552,180
12.8%
Bond Proceeds $0
Royalties $1,954,428
45.5%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $894,771
20.8%
Net Inventory Sales $0
Other Revenue $126,199
2.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $130,675
3.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $26,560,794
Total Liabilities $2,789,855
Net Assets $23,770,939
Compensation
Key Employees and Officers Compensation Related Other
Samuel Wiebe (President) $0 $0 $0
Helen Cross (Treasurer) $0 $0 $0
Alla Guekht (Vice President) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Emilio Perucca (Past President) $0 $0 $0
Nathalie Jette (Chair, Ilae America) $0 $0 $0
Angelina Kakooza (Chair, Ilae Africa) $0 $0 $0
Akio Ikeda (Chair, Ilae Asia Oceania) $0 $0 $0
Eugen Trinka (Chair, Ilae Europe) $0 $0 $0
Chahnez Triki (Chair, Ilae Eastern Medite) $0 $0 $0
Roberto Caraballo (Chair, Ilae Latin America) $0 $0 $0
Julie Hall (Executive Director) $0 $0 $130,675

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,663,404
Expenses
$4,037,677
Net Income
-$374,273
Net Assets
$22,082,772
Notable Sources of Revenue Percent of Total Revenue
Contributions $109,525
3.0%
Program Services $1,211,890
33.1%
Investment Income $579,206
15.8%
Bond Proceeds $0
Royalties $1,847,226
50.4%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$54,336
Net Inventory Sales $0
Other Revenue -$30,107
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $23,272,840
Total Liabilities $1,190,068
Net Assets $22,082,772
Compensation
Key Employees and Officers Compensation Related Other
Samuel Wiebe (President) $0 $0 $0
Helen Cross (Treasurer) $0 $0 $0
Alla Guekht (Vice President) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Emilio Perucca (Past President) $0 $0 $0
Nathalie Jette (Chair, Ilae America) $0 $0 $4,500
Angelina Kakooza (Chair, Ilae Africa) $0 $0 $0
Akio Ikeda (Chair, Ilae Asia Oceania) $0 $0 $0
Eugen Trinka (Chair, Ilae Europe) $0 $0 $0
Chahnez Triki (Chair, Ilae Eastern Medite) $0 $0 $0
Roberto Caraballo (Chair, Ilae Latin America) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$7,765,598
Expenses
$4,689,278
Net Income
$3,076,320
Net Assets
$20,036,873
Notable Sources of Revenue Percent of Total Revenue
Contributions $104,355
1.3%
Program Services $3,052,454
39.3%
Investment Income $546,133
7.0%
Bond Proceeds $0
Royalties $1,779,495
22.9%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2,329,854
30.0%
Net Inventory Sales $0
Other Revenue -$46,693
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $21,161,315
Total Liabilities $1,124,442
Net Assets $20,036,873
Compensation
Key Employees and Officers Compensation Related Other
Samuel Wiebe (President) $0 $0 $0
Helen Cross (Treasurer) $0 $0 $0
Alla Guekht (Vice President) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Emilio Perucca (Past President) $0 $0 $0
Nathalie Jette (Chair, Ilae America) $0 $0 $3,300
Angelina Kakooza (Chair, Ilae Africa) $0 $0 $0
Akio Ikeda (Chair, Ilae Asia Oceania) $0 $0 $0
Eugen Trinka (Chair, Ilae Europe) $0 $0 $0
Chahnez Triki (Chair, Ilae Eastern Mediterannean) $0 $0 $0
Roberto Caraballo (Chair, Ilae Latin America) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,010,410
Expenses
$3,025,972
Net Income
$984,438
Net Assets
$20,658,085
Notable Sources of Revenue Percent of Total Revenue
Contributions $58,872
1.5%
Program Services $1,662,594
41.5%
Investment Income $497,079
12.4%
Bond Proceeds $0
Royalties $1,838,690
45.8%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$197,980
Net Inventory Sales $0
Other Revenue $151,155
3.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $22,039,524
Total Liabilities $1,381,439
Net Assets $20,658,085
Compensation
Key Employees and Officers Compensation Related Other
Samuel Wiebe (President) $0 $0 $0
Helen Cross (Treasurer) $0 $0 $0
Alla Guekht (Vice President) $0 $0 $0
Edward H Bertram Iii (Secretary General) $0 $0 $0
Emilio Perucca (Past President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,071,795
Expenses
$3,768,109
Net Income
$1,303,686
Net Assets
$17,484,136
Notable Sources of Revenue Percent of Total Revenue
Contributions $88,269
1.7%
Program Services $2,818,429
55.6%
Investment Income $481,731
9.5%
Bond Proceeds $0
Royalties $1,736,271
34.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$30,606
Net Inventory Sales $0
Other Revenue -$22,299
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $18,722,548
Total Liabilities $1,238,412
Net Assets $17,484,136
Compensation
Key Employees and Officers Compensation Related Other
Solomon L Moshe (Past President) $0 $0 $0
Emilio Perucca (President) $0 $0 $0
Samuel Wiebe (Treasurer) $0 $0 $0
Helen Cross (Secretary General) $0 $0 $0
Tatsuya Tanaka (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,662,244
Expenses
$2,937,776
Net Income
$724,468
Net Assets
$15,864,699
Notable Sources of Revenue Percent of Total Revenue
Contributions $90,532
2.5%
Program Services $1,362,863
37.2%
Investment Income $486,819
13.3%
Bond Proceeds $0
Royalties $1,411,650
38.5%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $414,356
11.3%
Net Inventory Sales $0
Other Revenue -$103,976
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $16,409,998
Total Liabilities $545,299
Net Assets $15,864,699
Compensation
Key Employees and Officers Compensation Related Other
Solomon L Moshe (Past President) $0 $0 $0
Emilio Perucca (President) $0 $0 $0
Samuel Wiebe (Treasurer) $0 $0 $0
Helen Cross (Secretary General) $0 $0 $0
Tatsuya Tanaka (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,581,455
Expenses
$5,098,650
Net Income
$482,805
Net Assets
$16,419,189
Notable Sources of Revenue Percent of Total Revenue
Contributions $75,529
1.4%
Program Services $3,419,635
61.3%
Investment Income $450,810
8.1%
Bond Proceeds $0
Royalties $1,410,814
25.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $375,871
6.7%
Net Inventory Sales $0
Other Revenue -$151,204
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $17,004,346
Total Liabilities $585,157
Net Assets $16,419,189
Compensation
Key Employees and Officers Compensation Related Other
Solomon L Moshe (Past President) $0 $0 $0
Emilio Perucca (President) $0 $0 $0
Samuel Wiebe (Treasurer) $0 $0 $0
Helen Cross (Secretary General) $0 $0 $0
Tatsuya Tanaka (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,907,344
Expenses
$3,792,780
Net Income
$114,564
Net Assets
$16,403,205
Notable Sources of Revenue Percent of Total Revenue
Contributions $150,000
3.8%
Program Services $1,727,100
44.2%
Investment Income $464,134
11.9%
Bond Proceeds $0
Royalties $1,251,650
32.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $246,853
6.3%
Net Inventory Sales $0
Other Revenue $67,607
1.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $17,763,418
Total Liabilities $1,360,213
Net Assets $16,403,205
Compensation
Key Employees and Officers Compensation Related Other
Solomon L Moshe (Past President) $0 $0 $0
Emilio Perucca (President) $0 $0 $0
Samuel Wiebe (Treasurer) $0 $0 $0
Helen Cross (Secretary General) $0 $0 $0
Tatsuya Tanaka (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,317,441
Expenses
$5,863,562
Net Income
$453,879
Net Assets
$15,413,466
Notable Sources of Revenue Percent of Total Revenue
Contributions $62,500
1.0%
Program Services $4,187,100
66.3%
Investment Income $484,627
7.7%
Bond Proceeds $0
Royalties $1,201,650
19.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $368,661
5.8%
Net Inventory Sales $0
Other Revenue $12,903
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $16,169,646
Total Liabilities $756,180
Net Assets $15,413,466

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,841,109
Expenses
$3,779,474
Net Income
$1,061,635
Net Assets
$14,354,777
Notable Sources of Revenue Percent of Total Revenue
Contributions $151,000
3.1%
Program Services $2,677,759
55.3%
Investment Income $407,938
8.4%
Bond Proceeds $0
Royalties $1,151,651
23.8%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $471,276
9.7%
Net Inventory Sales $0
Other Revenue -$18,515
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $15,214,120
Total Liabilities $859,343
Net Assets $14,354,777

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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