Joubert Syndrome And Related Disorders Foundation Corporation
Organization summary
Type of Nonprofit
Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.
Category: Philanthropy, Voluntarism and Grantmaking Foundations / Philanthropy, Charity, Voluntarism Promotion, General (NTEE)
Donations to this organization are tax deductible.
Summary charts: organization finances over time
Revenue $69.2k (2024)
Expenses $21.7k (2024)
Total Assets $309k (2024)
Total Liabilities $826 (2024)
Tax Filings by Year
Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.
Fiscal Year Ending Dec.
2024
Extracted Financial Data
Extracted Financial Data from 990-EZ
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $68,560 |
99.1%
|
| Program Services | $606 |
0.9%
|
| Investment Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $308,516 | |
| Total Liabilities | $826 |
Compensation
| Key Employees and Officers | Compensation | Other |
|---|---|---|
| Stephen Mack (President) | $0 | $0 |
| Melissa Fields (President Elect) | $0 | $0 |
| Jessika Garis (Treasurer) | $0 | $0 |
Document Links
990-EZ
Filed on Oct. 8, 2025Short form tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2023
Extracted Financial Data
Extracted Financial Data from 990-EZ
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $84,640 |
61.8%
|
| Program Services | $52,347 |
38.2%
|
| Investment Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $74 |
0.1%
|
| Other Revenue | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $260,324 | |
| Total Liabilities | $91 |
Compensation
| Key Employees and Officers | Compensation | Other |
|---|---|---|
| Stephen Mack (President) | $0 | $0 |
| Melissa Fields (President Elect) | $0 | $0 |
| Jenni Swenson (President (Thru 12/23)) | $0 | $0 |
Document Links
990-EZ
Filed on Oct. 25, 2024Short form tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2022
Extracted Financial Data
Extracted Financial Data from 990-EZ
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $51,427 |
98.2%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $85 |
0.2%
|
| Other Revenue | $834 |
1.6%
|
| Assets/Debt | ||
|---|---|---|
| Total Assets | $488,438 | |
| Total Liabilities | $1,514 |
Compensation
| Key Employees and Officers | Compensation | Other |
|---|---|---|
| Jenni Swenson (President) | $0 | $0 |
| Stephen Mack (President Elect) | $0 | $0 |
| Beth Shepard (Treasurer) | $0 | $0 |
Document Links
990-EZ
Filed on Nov. 10, 2023Short form tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2021
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $162,938 |
99.4%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $1,030 |
0.6%
|
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $474,067 | |
| Total Liabilities | $1,012 |
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Jenni Swenson (Past President) | $0 | $0 | $0 |
| Stephen Mack (President) | $0 | $0 | $0 |
| Beth Shepard (Treasurer) | $0 | $0 | $0 |
Document Links
990
Filed on April 7, 2023Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2020
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $171,963 |
> 100%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | -$2,823 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $415,286 | |
| Total Liabilities | $1,836 |
No Document Links
The IRS has provided extracted financial data for this filing, but has not yet released the source documents.
Fiscal Year Ending Dec.
2019
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $177,571 |
71.2%
|
| Program Services | $82,795 |
33.2%
|
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | -$11,010 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $313,758 | |
| Total Liabilities | $1,541 |
No Document Links
The IRS has provided extracted financial data for this filing, but has not yet released the source documents.
Fiscal Year Ending Dec.
2018
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $139,517 |
> 100%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | -$6,287 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $322,699 | |
| Total Liabilities | $2,984 |
No Document Links
The IRS has provided extracted financial data for this filing, but has not yet released the source documents.
Fiscal Year Ending Dec.
2017
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $110,719 |
50.6%
|
| Program Services | $99,956 |
45.6%
|
| Investment Income | $150 |
0.1%
|
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $7,449 |
3.4%
|
| Other Revenue | $698 |
0.3%
|
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $233,938 | |
| Total Liabilities | $4,396 |
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Larry Munger (President) | $0 | $0 | $0 |
| Jenni Swenson (President Elect) | $0 | $0 | $0 |
| Eric Swenson (Director) | $0 | $0 | $0 |
Document Links
990
Filed on July 23, 2019Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2016
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $64,347 |
100%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $229,619 | |
| Total Liabilities | $0 |
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Eric Swenson (President) | $0 | $0 | $0 |
| Pete Asman (Treasurer) | $0 | $0 | $0 |
| Landon Borders (Director) | $0 | $0 | $0 |
Document Links
990
Filed on Aug. 24, 2017Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2015
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $133,796 |
99.8%
|
| Program Services | $0 | |
| Investment Income | $0 | |
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $273 |
0.2%
|
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $203,024 | |
| Total Liabilities | $256 |
Other
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Eric Swenson (President) | $0 | $0 | $0 |
| Pete Asman (Treasurer) | $0 | $0 | $0 |
| Landon Borders (Director) | $0 | $0 | $0 |
Document Links
990
Filed on June 1, 2016Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2014
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $57,143 |
99.8%
|
| Program Services | $0 | |
| Investment Income | $1 |
0.0%
|
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $91 |
0.2%
|
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $182,118 | |
| Total Liabilities | $966 |
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Landon Borders (Board Member) | $0 | $0 | $0 |
| Dana Knutzen (Board Member) | $0 | $0 | $0 |
| Laura Buchanan (Board Member) | $0 | $0 | $0 |
Document Links
990
Filed on May 11, 2015Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2013
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $105,485 |
100.0%
|
| Program Services | $0 | |
| Investment Income | $10 |
0.0%
|
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $142,686 | |
| Total Liabilities | $614 |
Compensation
| Key Employees and Officers | Compensation | Related | Other |
|---|---|---|---|
| Stephen Mack (President) | $0 | $0 | $0 |
| Eric Swenson (President Elect) | $0 | $0 | $0 |
| Pete Asman (Treasurer) | $0 | $0 | $0 |
Document Links
990
Filed on May 16, 2014Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2012
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $88,201 |
100.0%
|
| Program Services | $0 | |
| Investment Income | $9 |
0.0%
|
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $155,751 | |
| Total Liabilities | $93 |
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2011
Extracted Financial Data
Extracted Financial Data from Form 990
| Notable Sources of Revenue | Percent of Total Revenue | |
|---|---|---|
| Contributions | $99,638 |
100.0%
|
| Program Services | $0 | |
| Investment Income | $26 |
0.0%
|
| Bond Proceeds | $0 | |
| Royalties | $0 | |
| Rental Property Income | $0 | |
| Net Fundraising | $0 | |
| Sales of Assets | $0 | |
| Net Inventory Sales | $0 | |
| Other Revenue | $0 |
| Notable Expenses | Percent of Total Expenses | |
|---|---|---|
| Executive Compensation | $0 | |
| Professional Fundraising Fees | $0 | |
| Other Salaries and Wages | $0 |
| Assets/Debt | ||
|---|---|---|
| Total Assets | $97,012 | |
| Total Liabilities | $2,125 |
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2010
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2009
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2008
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2007
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2005
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2003
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2002
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
Fiscal Year Ending Dec.
2001
No Extracted Financial Data
Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.
Document Links
990
Primary tax return for a nonprofit’s activities, finances, and governance
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