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The International Waldenstroms Macroglobulinemia Foundation Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Details

According to its Dec. 2022 tax filing, this nonprofit:

Reported conflict of interest transactions
Organizations must report loans, grants or business transactions with interested parties, which may include key employees and officers, their family members and any businesses in which they hold a controlling interest. These transactions must be reported on Schedule L.

Summary charts: organization finances over time

Revenue
$4.17M (2022)

Expenses
$2.56M (2022)

Total Assets
$9.06M (2022)

Total Liabilities
$196k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,169,452
Expenses
$2,555,918
Net Income
$1,613,534
Net Assets
$8,860,257
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,930,369
94.3%
Program Services $205,000
4.9%
Investment Income $30,904
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $3,179
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $140,547
5.5%
Professional Fundraising Fees $0
Other Salaries and Wages $513,909
20.1%
Assets/Debt
Total Assets $9,055,891
Total Liabilities $195,634
Net Assets $8,860,257
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Newton Guerin (President & Ceo) $140,546 $0 $6,932
Peter Denardis (Board Chair) $0 $0 $0
Carl Lisman (Secretary/Treasurer) $0 $0 $0
Lisa J Wise Med (Vice President For Member) $0 $0 $0
Thomas H Hoffmann Md Facsaccp (Vice President For Researc) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Ron Branscome (Vice President For Fundrai) $0 $0 $0
Glenn Cantor (Trustee) $0 $0 $0
Shirley Ganse (Trustee) $0 $0 $0
Paul Kitchen (Trustee) $0 $0 $0
David Kahn (Trustee) $0 $0 $0
Meg Mangin (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0
Julie Richardson (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,461,160
Expenses
$2,455,198
Net Income
$2,005,962
Net Assets
$7,246,723
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,187,632
93.9%
Program Services $270,500
6.1%
Investment Income $3,028
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $131,571
5.4%
Professional Fundraising Fees $0
Other Salaries and Wages $440,040
17.9%
Assets/Debt
Total Assets $7,402,039
Total Liabilities $155,316
Net Assets $7,246,723
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Newton Guerin (President & Ceo) $131,571 $0 $6,470
Peter Denardis (Board Chair) $0 $0 $0
Beverly Docteur (Secretary/Treasurer) $0 $0 $0
Lisa J Wise Med (Vice President For Member) $0 $0 $0
Thomas H Hoffmann Md Facsaccp (Vice President For Researc) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Ron Branscome (Vice President For Fundraising) $0 $0 $0
Glenn Cantor (Trustee) $0 $0 $0
Shirley Ganse (Trustee) $0 $0 $0
Paul Kitchen (Trustee) $0 $0 $0
Carl Lisman (Trustee) $0 $0 $0
Meg Mangin (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,079,734
Expenses
$2,596,374
Net Income
$1,483,360
Net Assets
$5,240,761
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,842,620
94.2%
Program Services $230,000
5.6%
Investment Income $7,114
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $130,947
5.0%
Professional Fundraising Fees $0
Other Salaries and Wages $361,061
13.9%
Assets/Debt
Total Assets $5,317,932
Total Liabilities $77,171
Net Assets $5,240,761
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Newton Guerin (President & Ceo) $130,948 $0 $1,814
Peter Denardis (Board Chair) $0 $0 $0
Beverly Docteur (Secretary/Treasurer) $0 $0 $0
Lisa J Wise Med (Vice President For Member) $0 $0 $0
Michael Sesnowitz (Vice President For Fundrai) $0 $0 $0
Thomas H Hoffmann Md Facsaccp (Vice President For Researc) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Ron Branscome (Trustee) $0 $0 $0
Glenn Cantor (Trustee) $0 $0 $0
Shirley Ganse (Trustee) $0 $0 $0
Paul Kitchen (Trustee) $0 $0 $0
Carl Lisman (Trustee) $0 $0 $0
Meg Mangin (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,960,681
Expenses
$2,534,663
Net Income
$426,018
Net Assets
$3,756,706
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,754,524
93.0%
Program Services $201,598
6.8%
Investment Income $4,559
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $43,216
1.7%
Professional Fundraising Fees $0
Other Salaries and Wages $341,559
13.5%
Assets/Debt
Total Assets $3,831,217
Total Liabilities $74,511
Net Assets $3,756,706
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Jason Watkins (Individual Giving Director) $102,551 $0 $0
Rex Smith (Ceo) $43,215 $0 $0
Carl Harrington (President) $0 $0 $0
Beverly Docteur (Secretary/Treasurer) $0 $0 $0
Elena Malunis (Vice President For Member) $0 $0 $0
Michael Sesnowitz (Vice President For Fundrai) $0 $0 $0
Thomas H Hoffmann Md Facsaccp (Vice President For Researc) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Marlyn Friedlander (Trustee) $0 $0 $0
Ron Branscome (Trustee) $0 $0 $0
Shirley Ganse (Trustee) $0 $0 $0
Robert A Kyle Md (Trustee) $0 $0 $0
Barry Nelson (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0
Lisa J Wise Med (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,462,792
Expenses
$2,838,627
Net Income
-$375,835
Net Assets
$3,330,688
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,301,516
93.5%
Program Services $153,209
6.2%
Investment Income $8,067
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $66,582
2.3%
Professional Fundraising Fees $14,430
0.5%
Other Salaries and Wages $363,020
12.8%
Assets/Debt
Total Assets $3,381,063
Total Liabilities $50,375
Net Assets $3,330,688
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
David Benson (Senior Development Officer) $144,692 $0 $0
Jennifer Silva (Operations Manager) $64,235 $0 $0
Carl Harrington (President) $0 $0 $0
Beverly Docteur (Secretary/Treasurer) $0 $0 $0
Elena Malunis (Vice President For Member) $0 $0 $0
Michael Sesnowitz (Vice President For Fundrai) $0 $0 $0
Thomas H Hoffmann Md Facsaccp (Vice President For Researc) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Marlyn Friedlander (Trustee) $0 $0 $0
Ron Branscome (Trustee) $0 $0 $0
Shirley Ganse (Trustee) $0 $0 $0
Robert A Kyle Md (Trustee) $0 $0 $0
Barry Nelson (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0
Lisa J Wise Med (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,810,867
Expenses
$2,762,604
Net Income
$48,263
Net Assets
$3,706,523
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,686,589
95.6%
Program Services $114,669
4.1%
Investment Income $9,609
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,747
2.5%
Professional Fundraising Fees $8,881
0.3%
Other Salaries and Wages $295,718
10.7%
Assets/Debt
Total Assets $3,812,999
Total Liabilities $106,476
Net Assets $3,706,523
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
David Benson (Senior Development Officer) $117,681 $0 $0
Jennifer Silva (Operations Manager) $58,570 $0 $0
Carl Harrington (President) $0 $0 $0
Beverly Docteur (Secretary/Treasurer) $0 $0 $0
Elena Malunis (Vice President For Member Services) $0 $0 $0
Michael Sesnowitz (Vice President For Fundraising) $0 $0 $0
Guy Sherwood Md (Vice President For Research) $0 $0 $0
Stephen Ansell Md Phd (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Marlyn Friedlander (Trustee) $0 $0 $0
Sue Herms (Trustee) $0 $0 $0
Marcia Klepac (Trustee) $0 $0 $0
Robert A Kyle Md (Trustee) $0 $0 $0
Barry Nelson (Trustee) $0 $0 $0
Linda Nelson (Trustee) $0 $0 $0
Lisa J Wise Med (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,651,070
Expenses
$1,754,926
Net Income
$896,144
Net Assets
$3,658,260
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,484,470
93.7%
Program Services $158,054
6.0%
Investment Income $8,546
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $246,928
14.1%
Assets/Debt
Total Assets $3,769,871
Total Liabilities $111,611
Net Assets $3,658,260

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,835,571
Expenses
$1,364,627
Net Income
$470,944
Net Assets
$2,762,116
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,672,502
91.1%
Program Services $158,250
8.6%
Investment Income $4,819
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,792,931
Total Liabilities $30,815
Net Assets $2,762,116
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Ruhl (Sectrtary/Treasurer) $0 $0 $0
Elena Malunis (Vice President For Member Services) $0 $0 $0
Stephen Ansell (Trustee) $0 $0 $0
Wanda Huskins (Trustee) $0 $0 $0
Marcia Klepac (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Michael Sesnowitz (Vice President For Fundraising) $0 $0 $0
Carl Harrington (President) $0 $0 $0
Sue Herms (Trustee) $0 $0 $0
Robert Kyle (Trustee) $0 $0 $0
Guy Sherwood (Vice President For Research) $0 $0 $0
Marilyn Friedlander (Trustee) $0 $0 $0
Barry Nelson (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,142,519
Expenses
$1,541,936
Net Income
$600,583
Net Assets
$2,291,172
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,023,745
94.5%
Program Services $114,994
5.4%
Investment Income $3,780
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $167,221
10.8%
Assets/Debt
Total Assets $2,332,493
Total Liabilities $41,321
Net Assets $2,291,172
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Ruhl (Treasurer) $0 $0 $0
Elena Malunis (Vice President) $0 $0 $0
Eileen Frishman (Trustee) $0 $0 $0
Gayle Backmeyer (Trustee) $0 $0 $0
Marcia Klepac (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Michael Sesnowitz (Vice President) $0 $0 $0
Carl Harrington (President) $0 $0 $0
Sue Herms (Trustee) $0 $0 $0
Robert Kyle (Trustee) $0 $0 $0
Guy Sherwood (Vice President) $0 $0 $0
Ron Yee (Trustee) $0 $0 $0
Marilyn Friedlander (Trustee) $0 $0 $0
Barry Nelson (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,620,474
Expenses
$1,177,755
Net Income
$442,719
Net Assets
$1,690,589
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,579,036
97.4%
Program Services $38,962
2.4%
Investment Income $1,787
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $689
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $183,559
15.6%
Assets/Debt
Total Assets $1,728,344
Total Liabilities $37,755
Net Assets $1,690,589
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Ruhl (Treasurer) $0 $0 $0
Elena Malunis (Vice President) $0 $0 $0
Marty Glassman (Trustee) $0 $0 $0
Marcia Klepac (Trustee) $0 $0 $0
Peter Denardis (Trustee) $0 $0 $0
Michael Sesnowitz (Vice President) $0 $0 $0
Carl Harrington (President) $0 $0 $0
Sue Herms (Trustee) $0 $0 $0
Robert Kyle (Trustee) $0 $0 $0
Guy Sherwood (Vice President) $0 $0 $0
Ron Yee (Trustee) $0 $0 $0
Marilyn Friedlander (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,292,210
Expenses
$1,274,792
Net Income
$17,418
Net Assets
$1,247,070
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,244,247
96.3%
Program Services $34,812
2.7%
Investment Income $2,864
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $10,287
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $138,986
10.9%
Assets/Debt
Total Assets $1,277,409
Total Liabilities $30,339
Net Assets $1,247,070

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,068,450
Expenses
$1,335,562
Net Income
-$267,112
Net Assets
$1,229,652
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,027,030
96.1%
Program Services $28,240
2.6%
Investment Income $4,868
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $8,312
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $63,098
4.7%
Other Salaries and Wages $44,733
3.3%
Assets/Debt
Total Assets $1,272,983
Total Liabilities $43,331
Net Assets $1,229,652

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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