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Restless Legs Syndrome Foundation Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research N.E.C. (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$939k (2023)

Expenses
$874k (2023)

Total Assets
$923k (2023)

Total Liabilities
$116k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$938,927
Expenses
$873,955
Net Income
$64,972
Net Assets
$807,022
Notable Sources of Revenue Percent of Total Revenue
Contributions $927,482
98.8%
Program Services $0
Investment Income $11,865
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$504
Net Inventory Sales $0
Other Revenue $84
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $125,442
14.4%
Professional Fundraising Fees $41,498
4.7%
Other Salaries and Wages $108,292
12.4%
Assets/Debt
Total Assets $923,433
Total Liabilities $116,411
Net Assets $807,022
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Di) $90,000 $0 $9,000
Shalini Paruthi (Chair) $0 $0 $0
David Loskutoff (Secretary) $0 $0 $0
Greg Oberland (Treasurer) $0 $0 $0
Lewis Phelps (Chair Emerit) $0 $0 $0
Marcia Ball (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Jeffrey Durmer (Director) $0 $0 $0
Laura Scott Hoffman (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0
Paul Vicary (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$944,438
Expenses
$777,191
Net Income
$167,247
Net Assets
$736,918
Notable Sources of Revenue Percent of Total Revenue
Contributions $936,197
99.1%
Program Services $0
Investment Income $6,186
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $830
0.1%
Net Inventory Sales $0
Other Revenue $1,225
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $98,788
12.7%
Professional Fundraising Fees $36,483
4.7%
Other Salaries and Wages $67,005
8.6%
Assets/Debt
Total Assets $795,669
Total Liabilities $58,751
Net Assets $736,918
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Di) $90,000 $0 $9,000
Carla Rahn Phillips (Chairman) $0 $0 $0
Linda Secretan (Secretary) $0 $0 $0
Greg Oberland (Treasurer) $0 $0 $0
Lewis Phelps (Chairman Eme) $0 $0 $0
Marcia Ball (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Jeffrey Durmer (Director) $0 $0 $0
Laura Scott Hoffman (Director) $0 $0 $0
Peter Nussbaum (Director) $0 $0 $0
David J Loskutoff (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$851,464
Expenses
$717,434
Net Income
$134,030
Net Assets
$593,846
Notable Sources of Revenue Percent of Total Revenue
Contributions $844,293
99.2%
Program Services $0
Investment Income $2,966
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $3,550
0.4%
Net Inventory Sales $0
Other Revenue $655
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $93,501
13.0%
Professional Fundraising Fees $39,600
5.5%
Other Salaries and Wages $81,955
11.4%
Assets/Debt
Total Assets $718,099
Total Liabilities $124,253
Net Assets $593,846
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Director) $85,962 $0 $8,596
Carla Rahn Phillips (Chairman) $0 $0 $0
Linda Secretan (Secretary) $0 $0 $0
Ronald W Barrett (Treasurer) $0 $0 $0
Lewis Phelps (Chairman Emeritus) $0 $0 $0
Ronald Anderson (Director (Oct 20 Dec 20)) $0 $0 $0
Marcia Ball (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Jeffrey Durmer (Director) $0 $0 $0
Steve Mccann (Director (Oct 20 Jul 21)) $0 $0 $0
Greg Oberland (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$900,436
Expenses
$780,802
Net Income
$119,634
Net Assets
$442,155
Notable Sources of Revenue Percent of Total Revenue
Contributions $889,136
98.7%
Program Services $0
Investment Income $7,147
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2,148
0.2%
Net Inventory Sales $0
Other Revenue $2,005
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $97,322
12.5%
Professional Fundraising Fees $37,931
4.9%
Other Salaries and Wages $112,647
14.4%
Assets/Debt
Total Assets $718,377
Total Liabilities $276,222
Net Assets $442,155
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Director) $85,000 $0 $8,500
Carla Rahn Phillips (Chairman) $0 $0 $0
Linda Secretan (Secretary) $0 $0 $0
Ronald W Barrett (Treasurer) $0 $0 $0
Lewis Phelps (Chairman Emeritus) $0 $0 $0
Ronald Anderson (Director) $0 $0 $0
Marcia Ball (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Jeffrey Durmer (Director) $0 $0 $0
Steve Mccann (Director) $0 $0 $0
Greg Oberland (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$800,307
Expenses
$842,357
Net Income
-$42,050
Net Assets
$327,973
Notable Sources of Revenue Percent of Total Revenue
Contributions $777,052
97.1%
Program Services $12,500
1.6%
Investment Income $8,364
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2,364
0.3%
Net Inventory Sales $0
Other Revenue $27
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $93,808
11.1%
Professional Fundraising Fees $44,290
5.3%
Other Salaries and Wages $101,050
12.0%
Assets/Debt
Total Assets $404,578
Total Liabilities $76,605
Net Assets $327,973
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Director) $85,280 $0 $8,528
Lewis Phelps (Chairman) $0 $0 $0
Linda Secretan (Secretary) $0 $0 $0
Ronald W Barrett (Treasurer) $0 $0 $0
Ronald Anderson (Director) $0 $0 $0
Marcia Ball (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Jeffrey Durmer (Director) $0 $0 $0
Steve Mccann (Director) $0 $0 $0
Greg Oberland (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0
Carla Rahn Phillips (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0
Ellen Spoehr (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$799,084
Expenses
$830,416
Net Income
-$31,332
Net Assets
$378,549
Notable Sources of Revenue Percent of Total Revenue
Contributions $779,162
97.5%
Program Services $0
Investment Income $16,873
2.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2,787
0.3%
Net Inventory Sales $0
Other Revenue $262
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $92,443
11.1%
Professional Fundraising Fees $87,600
10.5%
Other Salaries and Wages $99,026
11.9%
Assets/Debt
Total Assets $494,550
Total Liabilities $116,001
Net Assets $378,549
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Director) $80,384 $0 $8,038
Lewis Phelps (Chairman) $0 $0 $0
Robert Waterman (Chairman Emeritus) $0 $0 $0
Linda Secretan (Secretary) $0 $0 $0
Ronald W Barrett (Treasurer) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Steve Mccann (Director) $0 $0 $0
Sandra Katanick (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0
Carla Rahn Phillips (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0
Michael J Zigmond (Director) $0 $0 $0
Starla Phelps (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$792,764
Expenses
$907,448
Net Income
-$114,684
Net Assets
$417,910
Notable Sources of Revenue Percent of Total Revenue
Contributions $751,667
94.8%
Program Services $0
Investment Income $39,390
5.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,707
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $80,000
8.8%
Professional Fundraising Fees $86,500
9.5%
Other Salaries and Wages $108,626
12.0%
Assets/Debt
Total Assets $580,715
Total Liabilities $162,805
Net Assets $417,910
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Director) $80,000 $0 $0
Lewis Phelps (Chairman) $0 $0 $0
Robert Waterman (Chairman Emeritus) $0 $0 $0
Linda Secretan (Director) $0 $0 $0
Ronald W Barrett (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Starla Phelps (Director) $0 $0 $0
Michael J Zigmond (Director) $0 $0 $0
Paul Rochester (Director) $0 $0 $0
Shalini Paruthi (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$792,594
Expenses
$824,208
Net Income
-$31,614
Net Assets
$532,594
Notable Sources of Revenue Percent of Total Revenue
Contributions $760,670
96.0%
Program Services $0
Investment Income $31,785
4.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $139
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $80,000
9.7%
Professional Fundraising Fees $82,835
10.1%
Other Salaries and Wages $90,847
11.0%
Assets/Debt
Total Assets $619,823
Total Liabilities $87,229
Net Assets $532,594
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Executive Di) $80,000 $0 $8,000
Lewis Phelps (Chairman) $0 $0 $0
Robert Waterman (Chairman Eme) $0 $0 $0
Joseph Martin (Director) $0 $0 $0
Linda Secretan (Director) $0 $0 $0
John T Mcdevitt (Director) $0 $0 $0
Ronald W Barrett (Director) $0 $0 $0
Jacquelyn Bainbridge (Director) $0 $0 $0
Starla Phelps (Director) $0 $0 $0
Michael Brownstein (Director) $0 $0 $0
Michael J Zigmond (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$632,883
Expenses
$673,713
Net Income
-$40,830
Net Assets
$534,436
Notable Sources of Revenue Percent of Total Revenue
Contributions $625,490
98.8%
Program Services $0
Investment Income $17,772
2.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $5,718
0.9%
Net Inventory Sales $0
Other Revenue -$16,097
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $95,322
14.1%
Other Salaries and Wages $157,953
23.4%
Assets/Debt
Total Assets $569,829
Total Liabilities $35,393
Net Assets $534,436
Compensation
Key Employees and Officers Compensation Related Other
Karla Dzienkowski (Exec. Direct) $80,000 $0 $0
Jacquelyn Bainbridge (Chair) $0 $0 $0
Joseph Martin (Director) $0 $0 $0
Lewis Phelps (Director) $0 $0 $0
John T Mcdevitt (Director) $0 $0 $0
Linda Secretan (Director) $0 $0 $0
Michael J Zigmond (Director) $0 $0 $0
Michael Brownstein (Director) $0 $0 $0
Robert Waterman Jr (Chair Emerit) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$506,157
Expenses
$472,740
Net Income
$33,417
Net Assets
$611,055
Notable Sources of Revenue Percent of Total Revenue
Contributions $380,915
75.3%
Program Services $106,224
21.0%
Investment Income $18,724
3.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$37
Net Inventory Sales $331
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $186,508
39.5%
Assets/Debt
Total Assets $673,374
Total Liabilities $62,319
Net Assets $611,055

Document Links

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$718,100
Expenses
$536,970
Net Income
$181,130
Net Assets
$568,508
Notable Sources of Revenue Percent of Total Revenue
Contributions $604,868
84.2%
Program Services $100,721
14.0%
Investment Income $14,621
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$104
Net Inventory Sales -$2,006
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $239,251
44.6%
Assets/Debt
Total Assets $631,543
Total Liabilities $63,035
Net Assets $568,508

Document Links

Fiscal Year Ending Sept.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$545,527
Expenses
$584,694
Net Income
-$39,167
Net Assets
$378,674
Notable Sources of Revenue Percent of Total Revenue
Contributions $433,261
79.4%
Program Services $110,182
20.2%
Investment Income $12,348
2.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$11,138
Net Inventory Sales $874
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $260,032
44.5%
Assets/Debt
Total Assets $454,173
Total Liabilities $75,499
Net Assets $378,674

Document Links

Fiscal Year Ending Sept.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$492,508
Expenses
$616,246
Net Income
-$123,738
Net Assets
$371,805
Notable Sources of Revenue Percent of Total Revenue
Contributions $371,454
75.4%
Program Services $107,855
21.9%
Investment Income $12,107
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $882
0.2%
Other Revenue $210
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $267,316
43.4%
Assets/Debt
Total Assets $545,518
Total Liabilities $173,713
Net Assets $371,805

Document Links

Fiscal Year Ending Sept.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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