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Cystic Fibrosis Lifestyle Foundation

  • Bay Harbor Is, FL
  • Tax-exempt since July 2004
  • EIN: 57-1163801

Organization summary

Organization summary might be incomplete or out of date

This organization is not listed in the IRS's most recent list of tax exempt organizations, but we have data associated with this Employer Identification Number.

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health — General and Rehabilitative / Patient Services - Entertainment, Recreation (NTEE)

Summary charts: organization finances over time

Revenue
$202k (2023)

Expenses
$259k (2023)

Total Assets
$0 (2023)

Total Liabilities
$0 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$201,515
Expenses
$259,424
Net Income
-$57,909
Net Assets
$0
Notable Sources of Revenue Percent of Total Revenue
Contributions $205,851
> 100%
Program Services $0
Investment Income $1,336
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$5,672
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $95,788
36.9%
Assets/Debt
Total Assets $0
Total Liabilities $0
Net Assets $0
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $59,358 $0 $0
Brad Riemer (Chariperson) $0 $0 $0
Barbara Harison (Treasurer) $0 $0 $0
Lauren Lyons (Secretary) $0 $0 $0
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Document Links

990
Filed on Aug. 16, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$425,069
Expenses
$371,992
Net Income
$53,077
Net Assets
$247,205
Notable Sources of Revenue Percent of Total Revenue
Contributions $425,610
> 100%
Program Services $0
Investment Income $1,093
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $4,803
1.1%
Sales of Assets -$6,437
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $94,985
25.5%
Professional Fundraising Fees $0
Other Salaries and Wages $67,696
18.2%
Assets/Debt
Total Assets $247,205
Total Liabilities $0
Net Assets $247,205
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $94,985 $0 $0
Brad Riemer (Chariperson) $0 $0 $0
Barbara Harison (Treasurer) $0 $0 $0
Lauren Lyons (Secretary) $0 $0 $0
Joan Decelie Germana (Director) $0 $0 $0
Thomas Lahiri (Director) $0 $0 $0
Laurie Leclair (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on May 3, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$230,214
Expenses
$328,532
Net Income
-$98,318
Net Assets
$196,416
Notable Sources of Revenue Percent of Total Revenue
Contributions $233,005
> 100%
Program Services $0
Investment Income $199
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$2,990
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $132,067
40.2%
Assets/Debt
Total Assets $196,416
Total Liabilities $0
Net Assets $196,416
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $0 $0 $0
Brad Riemer (Director) $0 $0 $0
Barbara Harison (Director) $0 $0 $0
Lauren Lyons (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 7, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$540,194
Expenses
$322,914
Net Income
$217,280
Net Assets
$294,734
Notable Sources of Revenue Percent of Total Revenue
Contributions $458,725
84.9%
Program Services $0
Investment Income $325
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $81,144
15.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $73,849
22.9%
Professional Fundraising Fees $0
Other Salaries and Wages $110,969
34.4%
Assets/Debt
Total Assets $294,734
Total Liabilities $0
Net Assets $294,734
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $73,849 $0 $0
Brad Riemer (Director) $0 $0 $0
Barbara Harison (Director) $0 $0 $0
Roderick Spadinger (Treasurer) $0 $0 $0
Laura Spiegel (President) $0 $0 $0
Lauren Lyons (Director) $0 $0 $0
Rima Manomaitis (Director) $0 $0 $0
Tiffany Monique (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 22, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$401,806
Expenses
$364,986
Net Income
$36,820
Net Assets
$77,454
Notable Sources of Revenue Percent of Total Revenue
Contributions $293,289
73.0%
Program Services $0
Investment Income $322
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $108,195
26.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,298
19.0%
Professional Fundraising Fees $0
Other Salaries and Wages $113,533
31.1%
Assets/Debt
Total Assets $77,454
Total Liabilities $0
Net Assets $77,454
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $69,227 $0 $0
Andrew Colin (Director) $0 $0 $0
Barbara Harison (Director) $0 $0 $0
Roderick Spadinger (Treasurer) $0 $0 $0
Laura Spiegel (Director) $0 $0 $0
Joan Decelie Germana (Director) $0 $0 $0
Thomas Lahiri (Director) $0 $0 $0
Laurie Leclaire (Director) $0 $0 $0
Greg Sawicki (Director) $0 $0 $0
Gabriela Tupayachi (Director) $0 $0 $0
Ahmet Uluer (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$302,652
Expenses
$344,807
Net Income
-$42,155
Net Assets
$40,634
Notable Sources of Revenue Percent of Total Revenue
Contributions $273,089
90.2%
Program Services $0
Investment Income $231
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $29,332
9.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,299
20.1%
Professional Fundraising Fees $0
Other Salaries and Wages $93,658
27.2%
Assets/Debt
Total Assets $40,634
Total Liabilities $0
Net Assets $40,634
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $69,299 $0 $0
Mark Sturgeon (Vice Chairman) $0 $0 $0
Barbara Harison (Director) $0 $0 $0
Roderick Spadinger (Treasurer) $0 $0 $0
Laura Spiegel (Director) $0 $0 $0
Joan Decelie Germana (Director) $0 $0 $0
Thomas Lahiri (Director) $0 $0 $0
Laurie Whittaker Leclaire (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 28, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$228,617
Expenses
$317,645
Net Income
-$89,028
Net Assets
$82,789
Notable Sources of Revenue Percent of Total Revenue
Contributions $218,279
95.5%
Program Services $0
Investment Income $338
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $10,000
4.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,305
21.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $82,789
Total Liabilities $0
Net Assets $82,789
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $69,304 $0 $0
Mark Sturgeon (Vice Chairman) $0 $0 $0
Michael Mancini (Director) $0 $0 $0
Roderick Spadinger (Treasurer) $0 $0 $0
Laura Spiegel (Director) $0 $0 $0
Joan Decelie Germana (Director) $0 $0 $0
Thomas Lahiri (Director) $0 $0 $0
Laurie Whittaker Leclaire (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$308,385
Expenses
$254,138
Net Income
$54,247
Net Assets
$171,815
Notable Sources of Revenue Percent of Total Revenue
Contributions $233,430
75.7%
Program Services $0
Investment Income $159
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $74,796
24.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,302
27.3%
Professional Fundraising Fees $0
Other Salaries and Wages $3,700
1.5%
Assets/Debt
Total Assets $171,815
Total Liabilities $0
Net Assets $171,815
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $69,302 $0 $0
Daryl Andrews (Director) $0 $0 $0
David Theran (Director) $0 $0 $0
Mark Sturgeon (Director) $0 $0 $0
Dawn Yardis (Director) $0 $0 $0
Aimee Giselle Lecointre (Director) $0 $0 $0
Barbara Harison (Director) $0 $0 $0
Danielle Fiegel (Director) $0 $0 $0
Michael Mancini (Director) $0 $0 $0
Roderick Spadinger (Director) $0 $0 $0
Laura Spiegel (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on May 11, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$398,954
Expenses
$314,308
Net Income
$84,646
Net Assets
$117,568
Notable Sources of Revenue Percent of Total Revenue
Contributions $333,967
83.7%
Program Services $0
Investment Income $29
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $64,958
16.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $110,589
35.2%
Professional Fundraising Fees $0
Other Salaries and Wages $28,494
9.1%
Assets/Debt
Total Assets $117,568
Total Liabilities $0
Net Assets $117,568
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $69,295 $0 $0
Erin Evans (Program Coordinator) $41,295 $0 $0
Daryl Andrews (Chairwomen) $0 $0 $0
David Theran (Director) $0 $0 $0
Mark Sturgeon (Director) $0 $0 $0
Bridget Burns (Director) $0 $0 $0
Victoria Thompson (Secretary) $0 $0 $0
Dawn Yardis (Director) $0 $0 $0
Patrick Dougherty (Treasurer) $0 $0 $0
Aimee Giselle Lecointre (Director) $0 $0 $0
Barbar Harison (Director) $0 $0 $0
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Document Links

990
Filed on Aug. 15, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$141,342
Expenses
$389,970
Net Income
-$248,628
Net Assets
$32,922
Notable Sources of Revenue Percent of Total Revenue
Contributions $104,094
73.6%
Program Services $0
Investment Income $325
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $36,923
26.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $94,854
24.3%
Professional Fundraising Fees $0
Other Salaries and Wages $36,316
9.3%
Assets/Debt
Total Assets $32,922
Total Liabilities $0
Net Assets $32,922
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $63,600 $0 $0
Erin Evans (Program Coordinator) $35,752 $0 $0
Ken Wiehe (Chairman) $0 $0 $0
Daryl Andrews (Vice Chairwomen) $0 $0 $0
Barbara Harison (Treasurer) $0 $0 $0
Klyn Elsbury (Secretary) $0 $0 $0
David Theran (Director) $0 $0 $0
Mark Sturgeon (Director) $0 $0 $0
Bridget Burns (Director) $0 $0 $0
Victoria Thompson (Director) $0 $0 $0
Dawn Yardis (Director) $0 $0 $0
Cindy Fortunato (Director) $0 $0 $0
Patrick Dougherty (Director) $0 $0 $0
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Document Links

990
Filed on May 28, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$477,265
Expenses
$261,686
Net Income
$215,579
Net Assets
$281,550
Notable Sources of Revenue Percent of Total Revenue
Contributions $447,776
93.8%
Program Services $0
Investment Income $633
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $28,856
6.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,757
26.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $287,171
Total Liabilities $5,621
Net Assets $281,550
Compensation
Key Employees and Officers Compensation Related Other
Brian Callanan (Executive Director) $56,173 $0 $0
Erin Evans (Program Coordinator) $24,486 $0 $0
Ken Wiehe (Vice Chariman) $0 $0 $0
Eric Fleming (Chairman) $0 $0 $0
Barbara Harison (Treasurer) $0 $0 $0
Amanda Barna (Secretary) $0 $0 $0
David Theran (Director) $0 $0 $0
George Kelly (Director) $0 $0 $0
Edward Norton (Director) $0 $0 $0
Thomas Schervish Ii (Director) $0 $0 $0
Dawn Yardis (Director) $0 $0 $0
Cindy Fortunato (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 28, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$165,178
Expenses
$166,159
Net Income
-$981
Net Assets
$34,398
Notable Sources of Revenue Percent of Total Revenue
Contributions $128,908
78.0%
Program Services $0
Investment Income $0
Net Fundraising $36,270
22.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $34,398
Total Liabilities $0
Net Assets $34,398

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$134,815
Expenses
$131,850
Net Income
$2,965
Net Assets
$35,379
Notable Sources of Revenue Percent of Total Revenue
Contributions $92,166
68.4%
Program Services $0
Investment Income $0
Net Fundraising $43,024
31.9%
Sales of Assets $0
Net Inventory Sales -$375
Other Revenue $0
Assets/Debt
Total Assets $35,379
Total Liabilities $0
Net Assets $35,379

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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