Skip to content
ProPublica Donate
ProPublica Donate

Central Florida Down Syndrome Association Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Human Services — Multipurpose and Other / Human Service Organizations - Multipurpose (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$640k (2023)

Expenses
$602k (2023)

Total Assets
$2.08M (2023)

Total Liabilities
$350k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending July
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$639,623
Expenses
$602,383
Net Income
$37,240
Net Assets
$1,732,990
Notable Sources of Revenue Percent of Total Revenue
Contributions $640,182
> 100%
Program Services $0
Investment Income $28,340
4.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$34,669
Net Inventory Sales $0
Other Revenue $5,770
0.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $281,426
46.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,082,738
Total Liabilities $349,748
Net Assets $1,732,990
Compensation
Key Employees and Officers Compensation Related Other
Heather Barnes (Executive Director) $102,505 $0 $0
Diane Levine (Board Chair) $0 $0 $0
Catherine Davey (Vice Chair) $0 $0 $0
Troy Culley (Treasurer) $0 $0 $0
Jeff Goodman (Director) $0 $0 $0
Patricia Lewis (Director) $0 $0 $0
Ryan Rapolti (Director) $0 $0 $0
Zak Sultan (Secretary) $0 $0 $0
Sean Travis (Director) $0 $0 $0
Ben Strombeck (Director) $0 $0 $0
Catherine Mcwhorter (Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$775,933
Expenses
$427,998
Net Income
$347,935
Net Assets
$1,618,181
Notable Sources of Revenue Percent of Total Revenue
Contributions $721,121
92.9%
Program Services $0
Investment Income $21,646
2.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$46,147
Sales of Assets $29,917
3.9%
Net Inventory Sales $0
Other Revenue $49,396
6.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $80,192
18.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,975,458
Total Liabilities $357,277
Net Assets $1,618,181
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Heather Barnes (Executive Director) $84,031 $0 $0
Diane Levine (Board Chair) $0 $0 $0
Catherine Davey (Vice Chair) $0 $0 $0
Troy Culley (Treasurer) $0 $0 $0
Jeff Goodman (Director) $0 $0 $0
Patricia Lewis (Director) $0 $0 $0
Oryza Quiles (Director) $0 $0 $0
Ryan Rapoldi (Director) $0 $0 $0
Zak Sultan (Director) $0 $0 $0
Sean Travis (Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$382,726
Expenses
$377,946
Net Income
$4,780
Net Assets
$1,262,506
Notable Sources of Revenue Percent of Total Revenue
Contributions $363,557
95.0%
Program Services $0
Investment Income $16,853
4.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$12,016
Sales of Assets $12,130
3.2%
Net Inventory Sales $0
Other Revenue $2,202
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $80,192
21.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,636,851
Total Liabilities $374,345
Net Assets $1,262,506
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Heather Barnes (Executive Director) $36,923 $0 $0
Diane Levine (Board Chair) $0 $0 $0
Catherine Davey (Vice Chair) $0 $0 $0
Troy Culley (Treasurer) $0 $0 $0
Byron Lawson (Outgoing Chair/Secretary) $0 $0 $0
Jeff Goodman (Director) $0 $0 $0
Patricia Lewis (Director) $0 $0 $0
Oryza Quiles (Director) $0 $0 $0
Ryan Rapoldi (Director) $0 $0 $0
Zak Sultan (Director) $0 $0 $0
Sean Travis (Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$549,128
Expenses
$565,124
Net Income
-$15,996
Net Assets
$1,179,852
Notable Sources of Revenue Percent of Total Revenue
Contributions $571,793
> 100%
Program Services $0
Investment Income $20,788
3.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$38,562
Sales of Assets -$4,891
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $76,577
13.6%
Professional Fundraising Fees $0
Other Salaries and Wages $111,182
19.7%
Assets/Debt
Total Assets $1,574,196
Total Liabilities $394,344
Net Assets $1,179,852
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Williams Through 720 (Interim Executive Director) $34,425 $0 $0
Byron Lawson (Chair) $0 $0 $0
Diane Levine (Vice Chair) $0 $0 $0
Catherine Davey (Secretary) $0 $0 $0
Troy Culley (Treasurer) $0 $0 $0
Sean Dimercurio (Director/Former Treasurer) $0 $0 $0
Corey Aspeletier (Director) $0 $0 $0
Allison Salamone (Director/Former Secretary) $0 $0 $0
Ryan Rapolti (Director) $0 $0 $0
Patricia Lewis (Director) $0 $0 $0
Oryza Quiles (Director) $0 $0 $0
Heather Barnes From 720 (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$670,848
Expenses
$628,695
Net Income
$42,153
Net Assets
$1,168,914
Notable Sources of Revenue Percent of Total Revenue
Contributions $652,593
97.3%
Program Services $28,248
4.2%
Investment Income $19,025
2.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$35,532
Sales of Assets $6,514
1.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $58,535
9.3%
Professional Fundraising Fees $0
Other Salaries and Wages $127,632
20.3%
Assets/Debt
Total Assets $1,379,642
Total Liabilities $210,728
Net Assets $1,168,914
Compensation
Key Employees and Officers Compensation Related Other
Janet Caramello Ed Through 1719 (Executive Di) $89,150 $0 $1,662
Byron Lawson (Chair) $0 $0 $0
Janet Benge (Former Chair) $0 $0 $0
Sean Dimercurio Cpa (Treasurer) $0 $0 $0
Allison Salamone (Secretary) $0 $0 $0
Catherine Davey (Director) $0 $0 $0
Ben Johnson Markve (Director) $0 $0 $0
Diane Levine (Director) $0 $0 $0
Erin Hagood (Director) $0 $0 $0
Ryan Rapolti (Director) $0 $0 $0
Cory Aspelieter (Director) $0 $0 $0
Part Vii Is 2018 Calendar Year Comp ((2018 Forms) $0 $0 $0
Amy Drow (Interim Exec) $0 $0 $0

Document Links

Fiscal Year Ending July
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$593,290
Expenses
$570,738
Net Income
$22,552
Net Assets
$1,148,445
Notable Sources of Revenue Percent of Total Revenue
Contributions $540,201
91.1%
Program Services $21,623
3.6%
Investment Income $11,663
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $12,607
2.1%
Sales of Assets $7,196
1.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,461
13.7%
Professional Fundraising Fees $0
Other Salaries and Wages $99,062
17.4%
Assets/Debt
Total Assets $1,347,280
Total Liabilities $198,835
Net Assets $1,148,445
Compensation
Key Employees and Officers Compensation Related Other
Janet Caramello (Executive Di) $78,461 $0 $15,471
Janet Benge (Chair) $0 $0 $0
Sean Dimercurio Cpa (Treasurer) $0 $0 $0
Allison Salamone (Secretary) $0 $0 $0
Catherine Davey (Director) $0 $0 $0
Eddie Schwob Esq (Director) $0 $0 $0
Ben Johnson Markve (Director) $0 $0 $0
Diane Levine (Director) $0 $0 $0
Byron Lawson (Director) $0 $0 $0
Erin Hagood (Director) $0 $0 $0
Part Vii Is 2017 Calendar Year Comp ((2017 Forms) $0 $0 $0

Document Links

Fiscal Year Ending July
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$433,461
Expenses
$539,636
Net Income
-$106,175
Net Assets
$1,113,874
Notable Sources of Revenue Percent of Total Revenue
Contributions $392,286
90.5%
Program Services $0
Investment Income $11,099
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $15,782
3.6%
Sales of Assets $8,527
2.0%
Net Inventory Sales $5,767
1.3%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $128,631
23.8%
Professional Fundraising Fees $0
Other Salaries and Wages $77,613
14.4%
Assets/Debt
Total Assets $1,334,207
Total Liabilities $220,333
Net Assets $1,113,874
Compensation
Key Employees and Officers Compensation Related Other
Ed Deaguilera (Interim Exec) $51,723 $0 $2,631
Janet Caramello Started 82916 (Ceo/Exec Dir) $26,154 $0 $4,046
Amy Van Bergen See Sch J (Former Execu) $22,590 $0 $23,157
Mary Beth Eliason (President) $0 $0 $0
Adam Pickett (Vice Preside) $0 $0 $0
Janet Benge (Secretary) $0 $0 $0
Sean Dimercurio (Treaurer) $0 $0 $0
Lynn Cyr (Director) $0 $0 $0
Catherine Davey (Director) $0 $0 $0
Brad Gornto (Director) $0 $0 $0
Mike Guiliano (Director) $0 $0 $0
Kieran Hill (Director) $0 $0 $0
Kristi Koester (Director) $0 $0 $0
John Magaw (Director) $0 $0 $0
Allison Mitchell (Director) $0 $0 $0
Eddie Schwob (Director) $0 $0 $0
Part Vii Is 2016 Calendar Year Comp ((Per 2016 Fo) $0 $0 $0

Document Links

Fiscal Year Ending July
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$386,787
Expenses
$403,232
Net Income
-$16,445
Net Assets
$1,193,067
Notable Sources of Revenue Percent of Total Revenue
Contributions $439,855
> 100%
Program Services $0
Investment Income $20,026
5.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$72,296
Sales of Assets -$798
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $88,813
22.0%
Professional Fundraising Fees $0
Other Salaries and Wages $62,119
15.4%
Assets/Debt
Total Assets $1,409,159
Total Liabilities $216,092
Net Assets $1,193,067
Compensation
Key Employees and Officers Compensation Related Other
Amy Van Bergen Retired 042016 (Executive Director) $73,419 $0 $11,813
Mary Beth Eliason (President) $0 $0 $0
Adam Pickett (Vice President) $0 $0 $0
Pablo Abreu (Treasurer) $0 $0 $0
Brad Gornto (Secretary) $0 $0 $0
James Walson (Director) $0 $0 $0
Joseph Gavigan (Director) $0 $0 $0
Chris Chandler (Director) $0 $0 $0
Kieran Hill (Director) $0 $0 $0
Kristi Koester (Director) $0 $0 $0
Ed Deaguilera (Interim Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$269,259
Expenses
$366,006
Net Income
-$96,747
Net Assets
$1,209,567
Notable Sources of Revenue Percent of Total Revenue
Contributions $321,407
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$60,327
Sales of Assets $8,179
3.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $83,022
22.7%
Professional Fundraising Fees $0
Other Salaries and Wages $86,402
23.6%
Assets/Debt
Total Assets $1,440,987
Total Liabilities $231,420
Net Assets $1,209,567
Compensation
Key Employees and Officers Compensation Related Other
Amy Van Bergen (Executive Director) $73,419 $0 $11,232
Adam Pickett (Director) $0 $0 $0
Stacy Taylor (Vice President) $0 $0 $0
Pablo Abreu (Treasurer) $0 $0 $0
Ryan Hayes (President) $0 $0 $0
Joseph Gavigan (Secretary) $0 $0 $0
James Walson (Director) $0 $0 $0
Mary Beth Eliason (Director) $0 $0 $0
Chris Chandler (Director) $0 $0 $0
Kieran Hill (Director) $0 $0 $0
Kristi Koester (Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$382,049
Expenses
$383,433
Net Income
-$1,384
Net Assets
$1,307,558
Notable Sources of Revenue Percent of Total Revenue
Contributions $383,871
> 100%
Program Services $0
Investment Income $7,000
1.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$65,938
Sales of Assets $57,116
14.9%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $85,960
22.4%
Professional Fundraising Fees $0
Other Salaries and Wages $84,291
22.0%
Assets/Debt
Total Assets $1,552,463
Total Liabilities $244,905
Net Assets $1,307,558
Compensation
Key Employees and Officers Compensation Related Other
Amy Van Bergen (Executive Director) $73,748 $0 $10,627
Rebecca Samaan (Vice President) $0 $0 $0
Omar Nieves (Director) $0 $0 $0
Stacy Taylor (President) $0 $0 $0
Pablo Abreu (Treasurer) $0 $0 $0
Ryan Hayes (Secretary) $0 $0 $0
Joseph Gavigan (Director) $0 $0 $0
James Walson (Director) $0 $0 $0
Marta Santoni (Director) $0 $0 $0

Document Links

Fiscal Year Ending July
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$380,169
Expenses
$409,963
Net Income
-$29,794
Net Assets
$1,318,702
Notable Sources of Revenue Percent of Total Revenue
Contributions $366,718
96.5%
Program Services $0
Investment Income $36,844
9.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$57,393
Sales of Assets $34,000
8.9%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $82,616
20.2%
Professional Fundraising Fees $0
Other Salaries and Wages $95,158
23.2%
Assets/Debt
Total Assets $1,562,350
Total Liabilities $243,648
Net Assets $1,318,702

Document Links

Fiscal Year Ending July
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$265,566
Expenses
$395,729
Net Income
-$130,163
Net Assets
$1,354,935
Notable Sources of Revenue Percent of Total Revenue
Contributions $328,428
> 100%
Program Services $0
Investment Income $34,087
12.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$86,076
Sales of Assets -$10,873
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $80,086
20.2%
Professional Fundraising Fees $0
Other Salaries and Wages $100,285
25.3%
Assets/Debt
Total Assets $1,606,552
Total Liabilities $251,617
Net Assets $1,354,935

Document Links

Fiscal Year Ending July
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$239,628
Expenses
$321,103
Net Income
-$81,475
Net Assets
$1,462,941
Notable Sources of Revenue Percent of Total Revenue
Contributions $251,116
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$6,098
Sales of Assets -$5,390
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,486
23.5%
Professional Fundraising Fees $0
Other Salaries and Wages $71,382
22.2%
Assets/Debt
Total Assets $1,721,328
Total Liabilities $258,387
Net Assets $1,462,941

Document Links

Fiscal Year Ending July
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending July
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »