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Xeroderma Pigmentosum Family Support Group

Xp Family Support Group
  • Sacramento, CA
  • Tax-exempt since March 2006
  • EIN: 59-3824809

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$78.5k (2023)

Expenses
$50.2k (2023)

Total Assets
$188k (2023)

Total Liabilities
$1.86k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$78,470
Expenses
$50,199
Net Income
$28,271
Net Assets
$185,934
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,974
48.4%
Program Services $0
Investment Income $59
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $40,437
51.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $25,000
49.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $187,794
Total Liabilities $1,860
Net Assets $185,934
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Director) $25,000 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Treasurer) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Johanna Sweet (Trustee) $0 $0 $0
Jeff Lester (Trustee) $0 $0 $0
Cindy Cassinat (Trustee) $0 $0 $0
Laura Niedernhofer (Trustee) $0 $0 $0
Hal Paldrmann (Trustee) $0 $0 $0
Aimee Milota (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$59,106
Expenses
$50,575
Net Income
$8,531
Net Assets
$157,663
Notable Sources of Revenue Percent of Total Revenue
Contributions $28,884
48.9%
Program Services $0
Investment Income $194
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $14,872
25.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $15,156
25.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $14,726
29.1%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $160,291
Total Liabilities $2,628
Net Assets $157,663
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $14,726 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Treasurer) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Johanna Sweet (Trustee) $0 $0 $0
Jeff Lester (Trustee) $0 $0 $0
Cindy Cassinat (Trustee) $0 $0 $0
Laura Niedernhofer (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 8, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$70,556
Expenses
$50,127
Net Income
$20,429
Net Assets
$149,132
Notable Sources of Revenue Percent of Total Revenue
Contributions $35,445
50.2%
Program Services $0
Investment Income $39
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $35,072
49.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $23,500
46.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $150,865
Total Liabilities $1,733
Net Assets $149,132
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $23,500 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Treasurer) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Amanda Davis (Trustee) $0 $0 $0
Cindy Cassinat (Trustee) $0 $0 $0
Laura Niedernhofer (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 9, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$45,563
Expenses
$46,788
Net Income
-$1,225
Net Assets
$128,703
Notable Sources of Revenue Percent of Total Revenue
Contributions $22,094
48.5%
Program Services $0
Investment Income $13
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $22,777
50.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $679
1.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $24,416
52.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $133,716
Total Liabilities $5,013
Net Assets $128,703
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $24,415 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Treasurer) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Amanda Davis (Trustee) $0 $0 $0
Cindy Cassinat (Trustee) $0 $0 $0
Laura Niedernhofer (Trustee) $0 $0 $0
Erich James (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$70,570
Expenses
$57,723
Net Income
$12,847
Net Assets
$129,928
Notable Sources of Revenue Percent of Total Revenue
Contributions $32,583
46.2%
Program Services $0
Investment Income $53
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $37,934
53.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $22,624
39.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $134,214
Total Liabilities $4,286
Net Assets $129,928
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $22,625 $0 $0
Cindy Cassinat (Trustee) $0 $0 $0
Amanda Davis (Trustee) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Todd Feltner (Chair) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Erich James (Trustee) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Laura Niedernhofer (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$95,948
Expenses
$102,865
Net Income
-$6,917
Net Assets
$117,081
Notable Sources of Revenue Percent of Total Revenue
Contributions $28,689
29.9%
Program Services $14,592
15.2%
Investment Income $73
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $52,594
54.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $22,037
21.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $123,727
Total Liabilities $6,646
Net Assets $117,081
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $22,037 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Kittie Tenney (Trustee) $0 $0 $0
Rossi Byrne (Trustee) $0 $0 $0
Cathy Hancock (Trustee) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Miranda Murphy (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$70,397
Expenses
$60,393
Net Income
$10,004
Net Assets
$123,998
Notable Sources of Revenue Percent of Total Revenue
Contributions $19,406
27.6%
Program Services $5,631
8.0%
Investment Income $61
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $45,299
64.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $22,569
37.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $132,119
Total Liabilities $8,121
Net Assets $123,998
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $22,569 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Noelle Kei (Trustee) $0 $0 $0
Rossi Byrne (Trustee) $0 $0 $0
Cathy Hancock (Trustee) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
Miranda Murphy (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 2, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$190,583
Expenses
$126,077
Net Income
$64,506
Net Assets
$113,994
Notable Sources of Revenue Percent of Total Revenue
Contributions $103,547
54.3%
Program Services $0
Investment Income $53
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $86,983
45.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $20,790
16.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $119,485
Total Liabilities $5,491
Net Assets $113,994
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $20,790 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Trustee) $0 $0 $0
Kim Beardslee (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Noelle Kei (Secretary) $0 $0 $0
Rossi Byrne (Trustee) $0 $0 $0
Cathy Hancock (Trustee) $0 $0 $0
Kyle Madden (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$46,466
Expenses
$69,795
Net Income
-$23,329
Net Assets
$49,488
Notable Sources of Revenue Percent of Total Revenue
Contributions $20,874
44.9%
Program Services $0
Investment Income $27
0.1%
Net Fundraising $25,565
55.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $60,982
Total Liabilities $11,494
Net Assets $49,488
Compensation
Key Employees and Officers Compensation Other
Michele Milota (Executive Di) $20,633 $0
Todd Feltner (Chair) $0 $0
Jennifer Feltner (Secretary) $0 $0
Kim Beardslee (Trustee) $0 $0
Richard Bricker (Trustee) $0 $0
Sarah Madden (Trustee) $0 $0
Alan Jakovac (Trustee) $0 $0
Kim Deguzman (Trustee) $0 $0
Noelle Kei (Trustee) $0 $0
Rossi Byrne (Trustee) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 10, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$74,191
Expenses
$119,321
Net Income
-$45,130
Net Assets
$72,817
Notable Sources of Revenue Percent of Total Revenue
Contributions $34,310
46.2%
Program Services $0
Investment Income $60
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $39,821
53.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $18,647
15.6%
Professional Fundraising Fees $0
Other Salaries and Wages $6,350
5.3%
Assets/Debt
Total Assets $77,279
Total Liabilities $4,462
Net Assets $72,817
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $18,647 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Secretary) $0 $0 $0
Kim Beardslee (Trustee) $0 $0 $0
Richard Bricker (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Kim Deguzman (Trustee) $0 $0 $0
Noelle Kei (Trustee) $0 $0 $0
Rossi Byrne (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 16, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$93,647
Expenses
$95,221
Net Income
-$1,574
Net Assets
$117,947
Notable Sources of Revenue Percent of Total Revenue
Contributions $33,224
35.5%
Program Services $0
Investment Income $73
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $44,406
47.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $18,825
19.8%
Professional Fundraising Fees $0
Other Salaries and Wages $6,165
6.5%
Assets/Debt
Total Assets $124,116
Total Liabilities $6,169
Net Assets $117,947
Compensation
Key Employees and Officers Compensation Related Other
Michele Milota (Executive Di) $18,825 $0 $0
Todd Feltner (Chair) $0 $0 $0
Jennifer Feltner (Secretary) $0 $0 $0
Candus Tibbitts (Treasurer) $0 $0 $0
Bary Cunningham (Trustee) $0 $0 $0
Kim Beardslee (Trustee) $0 $0 $0
Richard Bricker (Trustee) $0 $0 $0
Sarah Madden (Trustee) $0 $0 $0
Alan Jakovac (Trustee) $0 $0 $0
Kim Deguzman (Trustee) $0 $0 $0
Robert Mccabe (Trustee) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 4, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$113,322
Expenses
$127,348
Net Income
-$14,026
Net Assets
$119,521
Notable Sources of Revenue Percent of Total Revenue
Contributions $49,155
43.4%
Program Services $0
Investment Income $181
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $63,986
56.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $21,600
17.0%
Professional Fundraising Fees $0
Other Salaries and Wages $2,000
1.6%
Assets/Debt
Total Assets $123,778
Total Liabilities $4,257
Net Assets $119,521

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$142,879
Expenses
$129,101
Net Income
$13,778
Net Assets
$133,547
Notable Sources of Revenue Percent of Total Revenue
Contributions $100,823
70.6%
Program Services $0
Investment Income $341
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $31,481
22.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $22,800
17.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $144,986
Total Liabilities $11,439
Net Assets $133,547

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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