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The Joshua Frase Foundation For Congenital Myopathy Research Inc

  • Ponte Vedra, FL
  • Tax-exempt since July 1997
  • EIN: 59-7059890

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nerve, Muscle and Bone Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$139k (2024)

Expenses
$26.7k (2024)

Total Assets
$148k (2024)

Total Liabilities
$6.12k (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$138,527
Expenses
$26,715
Net Income
$111,812
Net Assets
$141,433
Notable Sources of Revenue Percent of Total Revenue
Contributions $138,526
100.0%
Program Services $0
Investment Income $1
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $147,556
Total Liabilities $6,123
Net Assets $141,433
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett (President) $0 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Secretary) $0 $0 $0
Scott Grant (Director) $0 $0 $0
Sean Klinkowize (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Angelica Townshend (Director) $0 $0 $0
Edward Costa (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$51,271
Expenses
$87,852
Net Income
-$36,581
Net Assets
$29,621
Notable Sources of Revenue Percent of Total Revenue
Contributions $51,221
99.9%
Program Services $0
Investment Income $50
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $54,855
62.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $47,901
Total Liabilities $18,280
Net Assets $29,621
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett (President) $54,855 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Secretary) $0 $0 $0
Scott Grant (Director) $0 $0 $0
Sean Klinkowize (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Angelica Townshend (Director) $0 $0 $0
Edward Costa (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Jan. 16, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$67,138
Expenses
$89,704
Net Income
-$22,566
Net Assets
$66,202
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,123
100.0%
Program Services $0
Investment Income $15
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $55,295
61.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $75,171
Total Liabilities $8,969
Net Assets $66,202
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett Frase (President) $55,295 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Sean Klinkowize (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Angelica Townshend (Director) $0 $0 $0
Scott Grant (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Dec. 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$213,958
Expenses
$155,324
Net Income
$58,634
Net Assets
$88,768
Notable Sources of Revenue Percent of Total Revenue
Contributions $200,551
93.7%
Program Services $0
Investment Income $7
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $13,400
6.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $95,207
61.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $93,224
Total Liabilities $4,456
Net Assets $88,768
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett Frase (President) $95,207 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Sean Klinkowize (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Jan. 26, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$67,348
Expenses
$149,492
Net Income
-$82,144
Net Assets
$30,134
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,331
100.0%
Program Services $0
Investment Income $17
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $95,440
63.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $49,428
Total Liabilities $19,294
Net Assets $30,134
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett Frase (President) $95,440 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Director) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Angela Townshend (Director) $0 $0 $0
Sean Klinkowize (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$85,200
Expenses
$154,269
Net Income
-$69,069
Net Assets
$112,278
Notable Sources of Revenue Percent of Total Revenue
Contributions $85,075
99.9%
Program Services $0
Investment Income $125
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $64,168
41.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $128,020
Total Liabilities $15,742
Net Assets $112,278
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett Frase (President) $64,168 $0 $0
Lisa Nickerson (Vice President) $0 $0 $0
Paul Frase (Director) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Angela Townshend (Director) $0 $0 $0
Darren Blanton (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Jim Ervin (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$184,667
Expenses
$131,560
Net Income
$53,107
Net Assets
$181,347
Notable Sources of Revenue Percent of Total Revenue
Contributions $184,599
100.0%
Program Services $0
Investment Income $68
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $46,341
35.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $182,211
Total Liabilities $864
Net Assets $181,347
Compensation
Key Employees and Officers Compensation Related Other
Alison Rockett Frase (President) $46,341 $0 $0
Teri Dixon (Director (Until 11/2018)) $0 $0 $0
Jeff Dixon (Secretary (Until 11/2018)) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$210,309
Expenses
$141,054
Net Income
$69,255
Net Assets
$128,240
Notable Sources of Revenue Percent of Total Revenue
Contributions $210,258
100.0%
Program Services $0
Investment Income $51
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $55,130
39.1%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $138,143
Total Liabilities $9,903
Net Assets $128,240
Compensation
Key Employees and Officers Compensation Related Other
Alison Frase (President) $55,130 $0 $0
Teri Dixon (Director) $0 $0 $0
Jeff Dixon (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 13, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$171,852
Expenses
$204,915
Net Income
-$33,063
Net Assets
$58,985
Notable Sources of Revenue Percent of Total Revenue
Contributions $171,791
100.0%
Program Services $0
Investment Income $61
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $32,526
15.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $110,965
Total Liabilities $51,980
Net Assets $58,985
Compensation
Key Employees and Officers Compensation Related Other
Alison Frase (President) $32,526 $0 $0
Teri Dixon (Director) $0 $0 $0
Jeff Dixon (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Jan. 26, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$102,457
Expenses
$113,874
Net Income
-$11,417
Net Assets
$92,048
Notable Sources of Revenue Percent of Total Revenue
Contributions $102,391
99.9%
Program Services $0
Investment Income $66
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $32,049
28.1%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $121,753
Total Liabilities $29,705
Net Assets $92,048
Compensation
Key Employees and Officers Compensation Related Other
Alison Frase (President) $32,049 $0 $0
Teri Dixon (Director) $0 $0 $0
Jeff Dixon (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$111,507
Expenses
$97,741
Net Income
$13,766
Net Assets
$103,465
Notable Sources of Revenue Percent of Total Revenue
Contributions $111,445
99.9%
Program Services $0
Investment Income $62
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $23,552
24.1%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $110,301
Total Liabilities $6,836
Net Assets $103,465
Compensation
Key Employees and Officers Compensation Related Other
Alison Frase (President) $23,552 $0 $0
Teri Dixon (Director) $0 $0 $0
Jeff Dixon (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 12, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$121,599
Expenses
$132,719
Net Income
-$11,120
Net Assets
$89,699
Notable Sources of Revenue Percent of Total Revenue
Contributions $121,530
99.9%
Program Services $0
Investment Income $69
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $15,576
11.7%
Assets/Debt
Total Assets $98,388
Total Liabilities $8,689
Net Assets $89,699
Compensation
Key Employees and Officers Compensation Related Other
Alison Frase (Vp/Treasurer) $15,576 $0 $0
Paul Frase (President) $0 $0 $0
Teri Dixon (Director) $0 $0 $0
Jeff Dixon (Secretary) $0 $0 $0
Chad Hennings (Director) $0 $0 $0
Daryl Johnston (Director) $0 $0 $0
Alex Zecca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 12, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$102,667
Expenses
$91,493
Net Income
$11,174
Net Assets
$100,819
Notable Sources of Revenue Percent of Total Revenue
Contributions $102,566
99.9%
Program Services $0
Investment Income $101
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $3,800
4.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $100,956
Total Liabilities $137
Net Assets $100,819

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$111,669
Expenses
$96,784
Net Income
$14,885
Net Assets
$89,645
Notable Sources of Revenue Percent of Total Revenue
Contributions $111,527
99.9%
Program Services $0
Investment Income $142
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $94,616
Total Liabilities $4,971
Net Assets $89,645

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated