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Cornelia De Lange Syndrome Foundation Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.08M (2022)

Expenses
$1.08M (2022)

Total Assets
$2.93M (2022)

Total Liabilities
$47k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,084,533
Expenses
$1,077,537
Net Income
$6,996
Net Assets
$2,881,513
Notable Sources of Revenue Percent of Total Revenue
Contributions $947,009
87.3%
Program Services $0
Investment Income $32,915
3.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $97,321
9.0%
Sales of Assets $7,288
0.7%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $111,395
10.3%
Professional Fundraising Fees $0
Other Salaries and Wages $547,347
50.8%
Assets/Debt
Total Assets $2,928,508
Total Liabilities $46,995
Net Assets $2,881,513
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $111,395 $0 $0
Mike Feehan (Vice President) $0 $0 $0
Mike Christie (Director) $0 $0 $0
Arthur Lander (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Treasurer) $0 $0 $0
Steve Snodsmith (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Nicholas Jackson (Secretary) $0 $0 $0
Jennifer Gerton (Director) $0 $0 $0
Yvonne Alston (Director) $0 $0 $0
Paul Villani (Director) $0 $0 $0
Katherina Nikzah Terhune (President) $0 $0 $0
Mary Ann Ehlert (Director) $0 $0 $0
Tricia Wise (Director) $0 $0 $0
Antonie Kline Md (Md Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,245,385
Expenses
$921,430
Net Income
$323,955
Net Assets
$3,311,087
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,115,574
89.6%
Program Services $0
Investment Income $25,288
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $75,257
6.0%
Sales of Assets $29,266
2.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $109,650
11.9%
Professional Fundraising Fees $0
Other Salaries and Wages $495,895
53.8%
Assets/Debt
Total Assets $3,378,142
Total Liabilities $67,055
Net Assets $3,311,087
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $109,650 $0 $0
Mike Feehan (Vice President) $0 $0 $0
Mike Christie (President) $0 $0 $0
Arthur Lander (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Treasurer) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Nicholas Jackson (Secretary) $0 $0 $0
Jennifer Gerton (Director) $0 $0 $0
Yvonne Alston (Director) $0 $0 $0
Paul Villani (Director) $0 $0 $0
Katherina Nikzah Terhune (Vice President) $0 $0 $0
Mary Ann Ehlert (Director) $0 $0 $0
Tricia Wise (Director) $0 $0 $0
Antonie Kline Md (Md Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,004,423
Expenses
$932,863
Net Income
$71,560
Net Assets
$2,760,415
Notable Sources of Revenue Percent of Total Revenue
Contributions $932,228
92.8%
Program Services $0
Investment Income $22,078
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $52,086
5.2%
Sales of Assets -$1,969
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $108,250
11.6%
Professional Fundraising Fees $0
Other Salaries and Wages $465,871
49.9%
Assets/Debt
Total Assets $2,826,787
Total Liabilities $66,372
Net Assets $2,760,415
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $108,250 $0 $0
Mike Feehan (Treasurer) $0 $0 $0
Mike Christie (President) $0 $0 $0
Arthur Lander (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Vice President) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Lynn Kerr Md (Secretary) $0 $0 $0
Jennifer Gerton (Director) $0 $0 $0
Katherina Nikzah Terhune (Vice President) $0 $0 $0
Patrick Lyons (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,289,148
Expenses
$954,784
Net Income
$1,334,364
Net Assets
$2,430,453
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,188,976
95.6%
Program Services $0
Investment Income $14,243
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $89,693
3.9%
Sales of Assets -$3,764
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $104,726
11.0%
Professional Fundraising Fees $0
Other Salaries and Wages $477,848
50.0%
Assets/Debt
Total Assets $2,448,230
Total Liabilities $17,777
Net Assets $2,430,453
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $104,725 $0 $0
Antonie Kline Md (Med. Director) $13,000 $0 $0
Mike Feehan (Treasurer) $0 $0 $0
Mike Christie (Director) $0 $0 $0
Arthur Lander (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Vice President) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Lynn Kerr Md (Vice President) $0 $0 $0
Jennifer Gerton (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
Katherina Nikzad Terhune (Secretary) $0 $0 $0
Patrick Lyons (President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,031,258
Expenses
$1,187,690
Net Income
-$156,432
Net Assets
$975,121
Notable Sources of Revenue Percent of Total Revenue
Contributions $899,379
87.2%
Program Services $0
Investment Income $10,714
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $101,365
9.8%
Sales of Assets $19,800
1.9%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $98,396
8.3%
Professional Fundraising Fees $0
Other Salaries and Wages $470,611
39.6%
Assets/Debt
Total Assets $999,632
Total Liabilities $24,511
Net Assets $975,121
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $98,396 $0 $0
Mike Feehan (Treasurer) $0 $0 $0
Mike Christie (Director) $0 $0 $0
Arthur Lander (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Vice President) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Lynn Kerr Md (Vice President) $0 $0 $0
Jennifer Gerton (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
Katherina Nikzad Terhune (Secretary) $0 $0 $0
Patrick Lyons (President) $0 $0 $0
Antonie Kline Md (Med. Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$962,849
Expenses
$954,105
Net Income
$8,744
Net Assets
$1,203,182
Notable Sources of Revenue Percent of Total Revenue
Contributions $743,848
77.3%
Program Services $0
Investment Income $7,099
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $108,734
11.3%
Sales of Assets $103,168
10.7%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $99,000
10.4%
Professional Fundraising Fees $0
Other Salaries and Wages $426,187
44.7%
Assets/Debt
Total Assets $1,225,708
Total Liabilities $22,526
Net Assets $1,203,182
Compensation
Key Employees and Officers Compensation Related Other
Morrisette Royster (Executive Dir.) $99,000 $0 $0
Mike Feehan (Director) $0 $0 $0
David Barnes (Vice President) $0 $0 $0
Catherine Caron (Director) $0 $0 $0
Emily Turner (Director) $0 $0 $0
Eric Johnson (Treasurer) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Angie Young (Director) $0 $0 $0
Lynn Kerr Md (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
Katherina Nikzad Terhune (Director) $0 $0 $0
Patrick Lyons (Secretary) $0 $0 $0
Richard Haaland (President) $0 $0 $0
Wendy Miller (Vice President) $0 $0 $0
Antonie Kline Md (Med. Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$929,428
Expenses
$1,030,548
Net Income
-$101,120
Net Assets
$1,206,868
Notable Sources of Revenue Percent of Total Revenue
Contributions $839,906
90.4%
Program Services $0
Investment Income $7,302
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $85,818
9.2%
Sales of Assets -$3,598
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $115,718
11.2%
Professional Fundraising Fees $0
Other Salaries and Wages $320,521
31.1%
Assets/Debt
Total Assets $1,233,935
Total Liabilities $27,067
Net Assets $1,206,868
Compensation
Key Employees and Officers Compensation Related Other
Kelly Brown (Acting Ex. Dir.) $83,843 $0 $0
Susan Pribyson (Executive Dir.) $31,875 $0 $0
Michele Churchman (Director) $0 $0 $0
David Barnes (Vice President) $0 $0 $0
Catherine Caron (Director) $0 $0 $0
Michele Champion (Director) $0 $0 $0
Eric Johnson (Treasurer) $0 $0 $0
Jim Kesting (Director) $0 $0 $0
Dianne Lessa (Director) $0 $0 $0
Lynn Kerr Md (Director) $0 $0 $0
Carlos Madrid Esq (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
Katherina Nikzad Terhune (Director) $0 $0 $0
Patrick Lyons (Director) $0 $0 $0
Mary Opitz (Secretary) $0 $0 $0
Fran Rissland (Director) $0 $0 $0
Beth Smisloff (Director) $0 $0 $0
Richard Haaland (President) $0 $0 $0
Wendy Miller (Vice President) $0 $0 $0
Antonie Kline Md (Med. Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$840,918
Expenses
$749,945
Net Income
$90,973
Net Assets
$1,259,142
Notable Sources of Revenue Percent of Total Revenue
Contributions $736,238
87.6%
Program Services $0
Investment Income $11,572
1.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $98,174
11.7%
Sales of Assets -$5,066
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $141,392
18.9%
Professional Fundraising Fees $0
Other Salaries and Wages $260,169
34.7%
Assets/Debt
Total Assets $1,282,675
Total Liabilities $23,533
Net Assets $1,259,142
Compensation
Key Employees and Officers Compensation Related Other
Kelly Brown (Acting Ex. Dir.) $77,555 $0 $0
Marie Concklin Malloy (Former Ex. Dir.) $63,837 $0 $0
Michele Churchman (Director) $0 $0 $0
David Barnes (Treasurer) $0 $0 $0
Catherine Caron (Director) $0 $0 $0
Michele Champion (Director) $0 $0 $0
Eric Johnson (Director) $0 $0 $0
Robert Boneberg Esq (President) $0 $0 $0
Dianne Lessa (Director) $0 $0 $0
Lynn Kerr Md (Director) $0 $0 $0
Carlos Madrid Esq (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
David Harvey (Vice President) $0 $0 $0
Marc Needlman (Director) $0 $0 $0
Patrick Lyons (Director) $0 $0 $0
Mary Opitz (Director) $0 $0 $0
Fran Rissland (Director) $0 $0 $0
Beth Smisloff (Director) $0 $0 $0
Richard Haaland (Vice President) $0 $0 $0
Wendy Miller (Secretary) $0 $0 $0
Maegan Lowrey (Director) $0 $0 $0
Antonie Kline Md (Med. Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,147,755
Expenses
$974,527
Net Income
$173,228
Net Assets
$1,196,626
Notable Sources of Revenue Percent of Total Revenue
Contributions $994,437
86.6%
Program Services $0
Investment Income $12,499
1.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $105,755
9.2%
Sales of Assets $35,064
3.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $89,471
9.2%
Professional Fundraising Fees $0
Other Salaries and Wages $333,932
34.3%
Assets/Debt
Total Assets $1,237,230
Total Liabilities $40,604
Net Assets $1,196,626
Compensation
Key Employees and Officers Compensation Related Other
Marie Concklin Malloy (Executive Direc) $89,471 $0 $0
Michele Churchman (Director) $0 $0 $0
David Barnes (Treasurer) $0 $0 $0
Catherine Caron (Director) $0 $0 $0
Michele Champion (Director) $0 $0 $0
Eileen Ahearn Md (Director) $0 $0 $0
Robert Boneberg Esq (President) $0 $0 $0
Dianne Lessa (Director) $0 $0 $0
Carlos Madrid Esq (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Dennis Drislane (Director) $0 $0 $0
David Harvey (Vice President) $0 $0 $0
Marc Needlman (Director) $0 $0 $0
Mary Opitz (Director) $0 $0 $0
Fran Rissland (Director) $0 $0 $0
Beth Smisloff (Director) $0 $0 $0
Richard Haaland (Vice President) $0 $0 $0
Wendy Miller (Secretary) $0 $0 $0
Maegan Lowrey (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$905,367
Expenses
$791,543
Net Income
$113,824
Net Assets
$1,041,559
Notable Sources of Revenue Percent of Total Revenue
Contributions $792,620
87.5%
Program Services $0
Investment Income $10,273
1.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $104,903
11.6%
Sales of Assets -$2,429
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $86,000
10.9%
Professional Fundraising Fees $0
Other Salaries and Wages $333,352
42.1%
Assets/Debt
Total Assets $1,058,387
Total Liabilities $16,828
Net Assets $1,041,559
Compensation
Key Employees and Officers Compensation Related Other
Marie Concklin Malloy (Executive Direc) $86,000 $0 $0
Michele Churchman (Director) $0 $0 $0
David Barnes (Director) $0 $0 $0
Catherine Caron (Director) $0 $0 $0
Michele Champion (Director) $0 $0 $0
Eileen Ahearn Md (Vice President) $0 $0 $0
Robert Boneberg Esq (Vice President) $0 $0 $0
Dianne Lessa (Director) $0 $0 $0
Garth Black (Secretary) $0 $0 $0
Carlos Madrid Esq (Director) $0 $0 $0
Julia O'connor Ph D (Director) $0 $0 $0
Kari Cunningham Rosvik Mn (Vice President) $0 $0 $0
David Harvey (Director) $0 $0 $0
Marc Needlman (President) $0 $0 $0
Thomas O'brien (Treasurer) $0 $0 $0
Mary Opitz (Director) $0 $0 $0
Fran Rissland (Director) $0 $0 $0
Beth Smisloff (Director) $0 $0 $0
Richard Haaland (Director) $0 $0 $0
Wendy Miller (Director) $0 $0 $0
Maegan Lowrey (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$876,526
Expenses
$968,563
Net Income
-$92,037
Net Assets
$867,410
Notable Sources of Revenue Percent of Total Revenue
Contributions $762,526
87.0%
Program Services $0
Investment Income $10,217
1.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $93,514
10.7%
Sales of Assets $10,269
1.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,158
8.4%
Professional Fundraising Fees $0
Other Salaries and Wages $337,395
34.8%
Assets/Debt
Total Assets $886,638
Total Liabilities $19,228
Net Assets $867,410

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$913,959
Expenses
$860,704
Net Income
$53,255
Net Assets
$920,630
Notable Sources of Revenue Percent of Total Revenue
Contributions $741,415
81.1%
Program Services $0
Investment Income $13,808
1.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $149,523
16.4%
Sales of Assets $9,213
1.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $118,200
13.7%
Professional Fundraising Fees $0
Other Salaries and Wages $347,991
40.4%
Assets/Debt
Total Assets $946,676
Total Liabilities $26,046
Net Assets $920,630

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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