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International Society For Frontotemporal Dementias Inc

  • Burnsville, MN
  • Tax-exempt since June 2013
  • EIN: 61-1581848

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Neurology, Neuroscience (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$134k (2024)

Expenses
$26k (2024)

Total Assets
$174k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2012 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$134,293
Expenses
$25,987
Net Income
$108,306
Net Assets
$173,619
Notable Sources of Revenue Percent of Total Revenue
Contributions $93,491
69.6%
Program Services $0
Investment Income $2
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $173,619
Total Liabilities $0
Net Assets $173,619
Compensation
Key Employees and Officers Compensation Other
John Van Swieten (President) $0 $0
Olivier Piguet (President Elect) $0 $0
Chiadi Onyike (Chair Finance/Membership Committee) $0 $0
Howie Rosen (Elect Finance/Membership Committe) $0 $0
Ian Mac Kenzie (Chair Prog/Site/Selection Committee) $0 $0
Manuela Neumann (Elect Prog/Site/Selection Committee) $0 $0
Carmela Tartaglia (Chair Publication/Commun Committee) $0 $0
Kyrana Tsapkini (Elect Publication/Commun Committee) $0 $0
Bernardino Ghetti (Treasurer/Secretary) $0 $0
David Casalod (Executive Director) $0 $0
Tessa Benitez (Associate Executive Director) $0 $0
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Document Links

990-EZ
Filed on May 19, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$28,638
Expenses
$38,652
Net Income
-$10,014
Net Assets
$65,313
Notable Sources of Revenue Percent of Total Revenue
Contributions $698
2.4%
Program Services $0
Investment Income $4
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $65,313
Total Liabilities $0
Net Assets $65,313
Compensation
Key Employees and Officers Compensation Other
Bernardino Ghetti Md (Secretary/Tr) $0 $0
John Van Swieten Phd (President) $0 $0
Chiadi Onyike Md (Chair Financ) $0 $0
Rosen Howie Md (Chair Elect) $0 $0
Ian Mackenzie (Chair Progra) $0 $0
Manuela Neumann Md (Chair Elect) $0 $0
Carmela Tartaglia Md (Chair Public) $0 $0
Oliver Piguet Phd (President El) $0 $0
Kyrana Tsapkini Phd (Chair Elect) $0 $0
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990-EZ
Filed on Oct. 10, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$38,006
Expenses
$20,980
Net Income
$17,026
Net Assets
$75,327
Notable Sources of Revenue Percent of Total Revenue
Contributions $8,653
22.8%
Program Services $0
Investment Income $4
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $75,327
Total Liabilities $0
Net Assets $75,327
Compensation
Key Employees and Officers Compensation Other
Rosa Rademakers Phd (Interim Pres) $0 $0
Bernardino Ghetti Md (Secretary/Tr) $0 $0
Fiona Kumfor (Chair Financ) $0 $0
Emily Rogalski (Chair Site S) $0 $0
Manabu Ikeda (Chair Scient) $0 $0
Yolande Pijnenburg (Chair Public) $0 $0
John Van Swieten Phd (President) $0 $0
Chiadi Onyike Md (Chair Elect) $0 $0
Ian Mackenzie (Chair Elect) $0 $0
Carmela Tartaglia Md (Chair Elect) $0 $0
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990-EZ
Filed on Nov. 14, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$47,567
Expenses
$21,754
Net Income
$25,813
Net Assets
$58,300
Notable Sources of Revenue Percent of Total Revenue
Contributions $959
2.0%
Program Services $0
Investment Income $4
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $30,000
63.1%
Assets/Debt
Total Assets $58,300
Total Liabilities $0
Net Assets $58,300
Compensation
Key Employees and Officers Compensation Other
Rosa Rademakers Phd (Interim Pres) $0 $0
Bernardino Ghetti Md (Secretary/Tr) $0 $0
Fiona Kumfor (Chair Financ) $0 $0
Emily Rogalski (Chair Site S) $0 $0
Manabu Ikeda (Chair Scient) $0 $0
Yolande Pijnenburg (Chair Public) $0 $0
John Van Swieten Phd (President) $0 $0
Chiadi Onyike Md (Chair Elect) $0 $0
Ian Mackenzie (Chair Elect) $0 $0
Carmela Tartaglia Md (Chair Elect) $0 $0
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Document Links

990-EZ
Filed on Nov. 10, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$15,455
Expenses
$14,217
Net Income
$1,238
Net Assets
$32,487
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,449
100.0%
Program Services $0
Investment Income $6
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $32,487
Total Liabilities $0
Net Assets $32,487
Compensation
Key Employees and Officers Compensation Other
Murray Grossman Md (Chair Financ) $0 $0
Bruce Miller Md (Past Preside) $0 $0
Facundo Manes (President El) $0 $0
Rosa Rademakers Phd (President) $0 $0
Glenda Halliday Phd (Chair Site S) $0 $0
Mario Mendez Md Phd (Chair Scient) $0 $0
Masaki Takao Md Phd (Chair Member) $0 $0
Bernardino Ghetti Md (Secretary/Tr) $0 $0
Fiona Kumfor (Chair Elect) $0 $0
Emily Rogalski (Chair Elect) $0 $0
Manabu Ikeda (Chair Elect) $0 $0
Yolande Pijnenburg (Chair Elect) $0 $0
Marsel Mesulam (Nominations) $0 $0
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Document Links

990-EZ
Filed on Oct. 8, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$17,411
Expenses
$30,085
Net Income
-$12,674
Net Assets
$31,249
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,404
100.0%
Program Services $0
Investment Income $7
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $31,249
Total Liabilities $0
Net Assets $31,249
Compensation
Key Employees and Officers Compensation Other
Murray Grossman Md (Chair Financ) $0 $0
Bruce Miller Md (Past Preside) $0 $0
Facundo Manes (President El) $0 $0
Rosa Rademakers Phd (President) $0 $0
Glenda Halliday Phd (Chair Site S) $0 $0
Mario Mendez Md Phd (Chair Scient) $0 $0
Masaki Takao Md Phd (Chair Member) $0 $0
Bernardino Ghetti Md (Secretary/Tr) $0 $0
Fiona Kumfor (Chair Elect) $0 $0
Emily Rogalski (Chair Elect) $0 $0
Manabu Ikeda (Chair Elect) $0 $0
Yolande Pijnenburg (Chair Elect) $0 $0
Marsel Mesulam (Nominations) $0 $0
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Document Links

990-EZ
Filed on Dec. 20, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$21,140
Expenses
$16,527
Net Income
$4,613
Net Assets
$43,937
Notable Sources of Revenue Percent of Total Revenue
Contributions $21,133
100.0%
Program Services $0
Investment Income $7
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $43,937
Total Liabilities $0
Net Assets $43,937
Compensation
Key Employees and Officers Compensation Other
Bradley Boeve Md (Director) $0 $0
Murray Grossman Md (Director) $0 $0
Bruce Miller Md (President) $0 $0
Stuart Pickering Brown Phd (Director) $0 $0
Rosa Rademakers Phd (Director) $0 $0
James Rowe Md Phd (Director) $0 $0
Glenda Halliday Phd (Director) $0 $0
Mario Mendez Md Phd (Director) $0 $0
Chiadi Oynike Md (Director) $0 $0
Masaki Takao Md Phd (Director) $0 $0
Bernardino Ghetti Md (Member) $0 $0
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990-EZ
Filed on Nov. 6, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$21,405
Expenses
$23,530
Net Income
-$2,125
Net Assets
$39,324
Notable Sources of Revenue Percent of Total Revenue
Contributions $21,393
99.9%
Program Services $0
Investment Income $12
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $39,324
Total Liabilities $0
Net Assets $39,324
Compensation
Key Employees and Officers Compensation Other
Bradley Boeve Md (Director) $0 $0
Murray Grossman Md (Director) $0 $0
Bruce Miller Md (President) $0 $0
Stuart Pickering Brown Phd (Director) $0 $0
Rosa Rademakers Phd (Director) $0 $0
James Rowe Md Phd (Director) $0 $0
Glenda Halliday Phd (Director) $0 $0
Mario Mendez Md Phd (Director) $0 $0
Chiadi Oynike Md (Director) $0 $0
Nasaki Takao Md Phd (Director) $0 $0
Bernardino Ghetti Md (Secretary/Tr) $0 $0
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990-EZ
Filed on Oct. 18, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$24,442
Expenses
$16,579
Net Income
$7,863
Net Assets
$41,449
Notable Sources of Revenue Percent of Total Revenue
Contributions $24,431
100.0%
Program Services $0
Investment Income $11
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $41,449
Total Liabilities $0
Net Assets $41,449
Compensation
Key Employees and Officers Compensation Other
Bernardino Ghetti Md (President) $0 $0
Ian Mackenzie Md (Vice Preside) $0 $0
Bradley Boeve Md (Director) $0 $0
Emanuele Buratti Phd (Director) $0 $0
Murray Grossman Md (Director) $0 $0
John Hodges Md Phd (Director) $0 $0
David Knopman Md (Director) $0 $0
Marsel Mesulam Md Phd (Director) $0 $0
Bruce Miller Md (Director) $0 $0
Manuela Neumann Md (Director) $0 $0
Allessandro Padovani Md Phd (Director) $0 $0
Stuart Pickering Brown Phd (Director) $0 $0
Olivier Piguet Phd (Director) $0 $0
Rosa Rademakers Phd (Director) $0 $0
Julie Snowden Phd (Director) $0 $0
Christine Van Broeckhoven Phd (Director) $0 $0
John C Van Swieten Md Phd (Director) $0 $0
Zbigniew Wszolek Md (Director) $0 $0
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990-EZ
Filed on Feb. 8, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$25,635
Expenses
$22,062
Net Income
$3,573
Net Assets
$33,586
Notable Sources of Revenue Percent of Total Revenue
Contributions $25,626
100.0%
Program Services $0
Investment Income $9
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $33,586
Total Liabilities $0
Net Assets $33,586

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$19,619
Expenses
$30,670
Net Income
-$11,051
Net Assets
$30,013
Notable Sources of Revenue Percent of Total Revenue
Contributions $19,608
99.9%
Program Services $0
Investment Income $11
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $30,013
Total Liabilities $0
Net Assets $30,013

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$26,517
Expenses
$9,504
Net Income
$17,013
Net Assets
$41,064
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,514
100.0%
Program Services $0
Investment Income $3
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $41,064
Total Liabilities $0
Net Assets $41,064

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$25,108
Expenses
$1,057
Net Income
$24,051
Net Assets
$24,051
Notable Sources of Revenue Percent of Total Revenue
Contributions $25,100
100.0%
Program Services $0
Investment Income $8
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $24,051
Total Liabilities $0
Net Assets $24,051

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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