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The Neuromuscular Disease Foundation

  • Beverly Hills, CA
  • Tax-exempt since Jan. 2007
  • EIN: 06-1789643

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$65.4k (2024)

Expenses
$352k (2024)

Total Assets
$660k (2024)

Total Liabilities
$1.27k (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$65,419
Expenses
$352,447
Net Income
-$287,028
Net Assets
$659,048
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,471
42.0%
Program Services $0
Investment Income $37,948
58.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $660,321
Total Liabilities $1,273
Net Assets $659,048
Compensation
Key Employees and Officers Compensation Related Other
Navid Rachman (Director) $0 $0 $0
Tara Voogel (Secretary) $0 $0 $0
Amy Curran (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
Coleman Kennedy (Ceo) $0 $0 $0
David Golden (Cfo) $0 $0 $0
Suma Rao Gupta (Director) $0 $0 $0
David Haverim (Director) $0 $0 $0
Isabella Tyszler (Director) $0 $0 $0
David Dahl (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 17, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$561,017
Expenses
$499,650
Net Income
$61,367
Net Assets
$946,095
Notable Sources of Revenue Percent of Total Revenue
Contributions $491,595
87.6%
Program Services $0
Investment Income $39,034
7.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $30,388
5.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $91,568
18.3%
Assets/Debt
Total Assets $948,612
Total Liabilities $2,517
Net Assets $946,095
Compensation
Key Employees and Officers Compensation Related Other
Navid Rachman (Director) $0 $0 $0
Suma Rao Gupta (Director) $0 $0 $0
Tara Voogel (Secretary) $0 $0 $0
Nasser David Haverim (Treasurer) $0 $0 $0
Isabella Tyszler (Director) $0 $0 $0
David Dahl (Director) $0 $0 $0
Amy Curran (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$442,823
Expenses
$1,031,908
Net Income
-$589,085
Net Assets
$884,646
Notable Sources of Revenue Percent of Total Revenue
Contributions $362,522
81.9%
Program Services $0
Investment Income $14,437
3.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $65,864
14.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $886,359
Total Liabilities $1,713
Net Assets $884,646
Compensation
Key Employees and Officers Compensation Related Other
Ralph Loren (Co Chair) $0 $0 $0
Tricia Mullins (Co Chair) $0 $0 $0
Carolyn Becher (Secretary) $0 $0 $0
David Dahl (Treasurer) $0 $0 $0
Alex Monsef (Director) $0 $0 $0
David Haverim (Director) $0 $0 $0
Maria Montgomery (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
Jason Taban (Director) $0 $0 $0
Geoffrey Gee (Executive Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 24, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$439,105
Expenses
$1,152,206
Net Income
-$713,101
Net Assets
$1,473,840
Notable Sources of Revenue Percent of Total Revenue
Contributions $438,588
99.9%
Program Services $0
Investment Income $517
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $308,856
26.8%
Professional Fundraising Fees $0
Other Salaries and Wages $125,000
10.8%
Assets/Debt
Total Assets $1,475,338
Total Liabilities $1,498
Net Assets $1,473,840
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Ceo) $207,667 $0 $0
Nancy Lurie (Coo) $87,500 $0 $0
Geoffrey Gee (Executive Director) $13,689 $0 $0
Ralph Loren (Co Chair) $0 $0 $0
Tricia Mullins (Co Chair) $0 $0 $0
Carolyn Becher (Secretary) $0 $0 $0
David Dahl (Treasurer) $0 $0 $0
Alex Monsef (Director) $0 $0 $0
David Haverim (Director) $0 $0 $0
Maria Montgomery (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
Jason Taban (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Sept. 15, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$438,953
Expenses
$1,383,468
Net Income
-$944,515
Net Assets
$2,188,038
Notable Sources of Revenue Percent of Total Revenue
Contributions $418,257
95.3%
Program Services $0
Investment Income $14,168
3.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $6,528
1.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $386,000
27.9%
Professional Fundraising Fees $0
Other Salaries and Wages $105,455
7.6%
Assets/Debt
Total Assets $2,223,549
Total Liabilities $35,511
Net Assets $2,188,038
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Ceo) $276,000 $0 $0
Nancy Lurie (Coo) $110,000 $0 $0
Carolyn Becher Esq (Secretary) $0 $0 $0
Michael Banayan (Director) $0 $0 $0
Doran Adhami (Treasurer) $0 $0 $0
Ralph Loren (Co Chair) $0 $0 $0
Tricia Mullins (Co Chair) $0 $0 $0
David Havarim (Director) $0 $0 $0
Jason Taban (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
Maria Montgomery (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 5, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,630,649
Expenses
$1,224,659
Net Income
$1,405,990
Net Assets
$3,132,553
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,593,652
98.6%
Program Services $0
Investment Income $23,459
0.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $13,538
0.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $290,000
23.7%
Professional Fundraising Fees $0
Other Salaries and Wages $30,000
2.4%
Assets/Debt
Total Assets $3,137,885
Total Liabilities $5,332
Net Assets $3,132,553
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Ceo) $180,000 $0 $0
Nancy Lurie (Dir Of Oper) $110,000 $0 $0
Carolyn Becher Esq (Secretary) $0 $0 $0
Michael Banayan (Director) $0 $0 $0
Carol Gelbard (Director) $0 $0 $0
Doran Adhami (Treasurer) $0 $0 $0
Ralph Loren (Co Chair) $0 $0 $0
Tricia Mullins (Co Chair) $0 $0 $0
David Havarim (Director) $0 $0 $0
Jason Taban (Director) $0 $0 $0
Michelle Halloosim (Director) $0 $0 $0
Tahseen Mozaffar (Director) $0 $0 $0
Sogol Ashourpour (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,777,080
Expenses
$606,109
Net Income
$1,170,971
Net Assets
$1,697,028
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,871,932
> 100%
Program Services $0
Investment Income $1,186
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$96,038
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $160,000
26.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,714,349
Total Liabilities $17,321
Net Assets $1,697,028
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Ceo) $120,000 $0 $0
Nancy Lurie (Dir Of Oper) $40,000 $0 $0
Carolyn Becher Esq (President) $0 $0 $0
Michael Banayan (Director) $0 $0 $0
Carol Gelbard (Secretary) $0 $0 $0
Doran Adhami (Treasurer) $0 $0 $0
Ralph Loren (Director) $0 $0 $0
Tricia Mullins (Director) $0 $0 $0
Dr Sepideh Tabibian (Director) $0 $0 $0
Jason Taban (Director) $0 $0 $0
Michelle Halloosim (Director) $0 $0 $0
Amy Fisher (Director) $0 $0 $0
Rob Becher (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 17, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$373,718
Expenses
$675,779
Net Income
-$302,061
Net Assets
$526,057
Notable Sources of Revenue Percent of Total Revenue
Contributions $351,872
94.2%
Program Services $0
Investment Income $1,248
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $20,598
5.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,000
14.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $533,631
Total Liabilities $7,574
Net Assets $526,057
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Executive Dir.) $100,000 $0 $0
Carolyn Becher Esq (President) $0 $0 $0
Michael Banayan (Director) $0 $0 $0
Carol Gelbard (Secretary) $0 $0 $0
Doran Adhami (Treasurer) $0 $0 $0
Ralph Loren (Director) $0 $0 $0
Tricia Mullins (Director) $0 $0 $0
Dr Sepideh Tabibian (Director) $0 $0 $0
Dr Roxana Rahban (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$218,449
Expenses
$452,736
Net Income
-$234,287
Net Assets
$828,161
Notable Sources of Revenue Percent of Total Revenue
Contributions $206,973
94.7%
Program Services $0
Investment Income $1,319
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $10,157
4.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,925
22.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $831,714
Total Liabilities $3,553
Net Assets $828,161
Compensation
Key Employees and Officers Compensation Related Other
Lale Jackson Welsh (Executive Director) $100,925 $0 $0
Carolyn Becher Esq (Co President) $0 $0 $0
Emanuel Yashari (Co President) $0 $0 $0
Michael Banayan (Board Director) $0 $0 $0
Carol Gelbard (Secretary) $0 $0 $0
Doran Adhami (Treasurer) $0 $0 $0
Ralph Loren (Board Dir Ector) $0 $0 $0
Tricia Mullins (B Oard Director) $0 $0 $0
Dr Sepideh Tabibian (B Oard Director) $0 $0 $0
Dr Roxana Rahban (Boa Rd Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 14, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$421,174
Expenses
$459,338
Net Income
-$38,164
Net Assets
$1,039,057
Notable Sources of Revenue Percent of Total Revenue
Contributions $439,620
> 100%
Program Services $0
Investment Income $1,404
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$19,850
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $83,333
18.1%
Professional Fundraising Fees $0
Other Salaries and Wages $1,080
0.2%
Assets/Debt
Total Assets $1,039,389
Total Liabilities $332
Net Assets $1,039,057

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$606,733
Expenses
$317,615
Net Income
$289,118
Net Assets
$1,103,752
Notable Sources of Revenue Percent of Total Revenue
Contributions $605,655
99.8%
Program Services $0
Investment Income $1,078
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,103,752
Total Liabilities $0
Net Assets $1,103,752

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$713,168
Expenses
$382,438
Net Income
$330,730
Net Assets
$814,634
Notable Sources of Revenue Percent of Total Revenue
Contributions $712,278
99.9%
Program Services $0
Investment Income $890
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $814,634
Total Liabilities $0
Net Assets $814,634

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$361,574
Expenses
$116,372
Net Income
$245,202
Net Assets
$483,904
Notable Sources of Revenue Percent of Total Revenue
Contributions $360,689
99.8%
Program Services $0
Investment Income $885
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $483,904
Total Liabilities $0
Net Assets $483,904

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$34,049
Expenses
$83,749
Net Income
-$49,700
Net Assets
$238,702
Notable Sources of Revenue Percent of Total Revenue
Contributions $33,168
97.4%
Program Services $0
Investment Income $881
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $238,702
Total Liabilities $0
Net Assets $238,702

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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