Skip to content
ProPublica Donate
ProPublica Donate

Lymedisease Org

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$697k (2022)

Expenses
$619k (2022)

Total Assets
$1.65M (2022)

Total Liabilities
$13.8k (2022)

Source: Form 990 tax filings from 2010 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$697,297
Expenses
$619,251
Net Income
$78,046
Net Assets
$1,637,198
Notable Sources of Revenue Percent of Total Revenue
Contributions $586,115
84.1%
Program Services $0
Investment Income $50,916
7.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $60,266
8.6%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $205,265
33.1%
Professional Fundraising Fees $0
Other Salaries and Wages $128,314
20.7%
Assets/Debt
Total Assets $1,650,988
Total Liabilities $13,790
Net Assets $1,637,198
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $92,934 $0 $0
Dorothy Kupcha Leland (President) $23,000 $0 $0
Christine Green (Director) $0 $0 $0
Mitchell Hoggard (Treasurer) $0 $0 $0
Erica Lehman (Director) $0 $0 $0
Ron Lindorf (Chairman) $0 $0 $0
Caleb Manscill (Cto) $0 $0 $0
Raphael Stricker Md (Medical Dire) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$619,817
Expenses
$534,560
Net Income
$85,257
Net Assets
$1,812,497
Notable Sources of Revenue Percent of Total Revenue
Contributions $554,832
89.5%
Program Services $0
Investment Income $64,985
10.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,157
17.2%
Professional Fundraising Fees $0
Other Salaries and Wages $172,142
32.2%
Assets/Debt
Total Assets $1,816,385
Total Liabilities $3,888
Net Assets $1,812,497
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $92,157 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Chair) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Mitchell Hoggard (Treasurer) $0 $0 $0
Christine Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Caleb Manscill (Director) $0 $0 $0
Erica Lehman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,243,802
Expenses
$559,039
Net Income
$684,763
Net Assets
$1,658,687
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,132,194
91.0%
Program Services $0
Investment Income $111,608
9.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $98,040
17.5%
Professional Fundraising Fees $0
Other Salaries and Wages $164,096
29.4%
Assets/Debt
Total Assets $1,668,448
Total Liabilities $9,761
Net Assets $1,658,687
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $98,040 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Chair) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Mitchell Hoggard (Treasurer) $0 $0 $0
Christine Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Caleb Manscill (Director) $0 $0 $0
Erica Lehman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$624,011
Expenses
$621,178
Net Income
$2,833
Net Assets
$920,659
Notable Sources of Revenue Percent of Total Revenue
Contributions $622,320
99.7%
Program Services $0
Investment Income $1,691
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $95,000
15.3%
Professional Fundraising Fees $0
Other Salaries and Wages $168,312
27.1%
Assets/Debt
Total Assets $928,212
Total Liabilities $7,553
Net Assets $920,659
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $95,000 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Chair) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Mitchell Hoggard (Treasurer) $0 $0 $0
Christine Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Caleb Manscill (Director) $0 $0 $0
Erica Lehman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$626,533
Expenses
$637,582
Net Income
-$11,049
Net Assets
$854,600
Notable Sources of Revenue Percent of Total Revenue
Contributions $611,425
97.6%
Program Services $6,267
1.0%
Investment Income $8,841
1.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $102,917
16.1%
Professional Fundraising Fees $0
Other Salaries and Wages $163,639
25.7%
Assets/Debt
Total Assets $886,446
Total Liabilities $31,846
Net Assets $854,600
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $102,917 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Chair) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Mitchell Hoggard (Treasurer) $0 $0 $0
Christine Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Caleb Manscill (Director) $0 $0 $0
Erica Lehman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$699,727
Expenses
$539,933
Net Income
$159,794
Net Assets
$850,746
Notable Sources of Revenue Percent of Total Revenue
Contributions $667,541
95.4%
Program Services $9,895
1.4%
Investment Income $22,291
3.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $87,083
16.1%
Professional Fundraising Fees $0
Other Salaries and Wages $153,392
28.4%
Assets/Debt
Total Assets $877,410
Total Liabilities $26,664
Net Assets $850,746
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $87,083 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Treas. & Chair) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Mitchell Hoggard (Director) $0 $0 $0
Chris Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Erica Lehman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$565,079
Expenses
$549,585
Net Income
$15,494
Net Assets
$648,835
Notable Sources of Revenue Percent of Total Revenue
Contributions $564,901
100.0%
Program Services $70
0.0%
Investment Income $108
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $93,333
17.0%
Professional Fundraising Fees $0
Other Salaries and Wages $100,669
18.3%
Assets/Debt
Total Assets $669,107
Total Liabilities $20,272
Net Assets $648,835
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Ceo) $93,333 $0 $0
Phyllis Mervine Edm (President) $0 $0 $0
Mitchell Hoggard (Chair) $0 $0 $0
Barbara Barsocchini (Vp & Secretary) $0 $0 $0
Ron Lindorf (Treas. & Chair) $0 $0 $0
Chris Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Nick Harris (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$458,130
Expenses
$413,330
Net Income
$44,800
Net Assets
$633,341
Notable Sources of Revenue Percent of Total Revenue
Contributions $452,475
98.8%
Program Services $195
0.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $5,460
1.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,083
22.3%
Professional Fundraising Fees $0
Other Salaries and Wages $28,790
7.0%
Assets/Debt
Total Assets $638,150
Total Liabilities $4,809
Net Assets $633,341
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Executive Dir.) $92,083 $0 $0
Phyllis Mervine Edm (President&Chair) $0 $0 $0
Mitchell L Hoggard (Treas. And Dir.) $0 $0 $0
Barbara Barsocchini (Secretary) $0 $0 $0
Nick S Harris Phd (Director) $0 $0 $0
Chris Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Ron Lindorf (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$461,043
Expenses
$372,924
Net Income
$88,119
Net Assets
$588,541
Notable Sources of Revenue Percent of Total Revenue
Contributions $367,329
79.7%
Program Services $1,946
0.4%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $91,768
19.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,083
24.7%
Professional Fundraising Fees $0
Other Salaries and Wages $3,757
1.0%
Assets/Debt
Total Assets $592,626
Total Liabilities $4,085
Net Assets $588,541
Compensation
Key Employees and Officers Compensation Related Other
Lorraine Johnson (Executive Dir.) $92,083 $0 $0
Phyllis Mervine Edm (President&Chair) $0 $0 $0
Mitchell L Hoggard (Treasurer & Dir) $0 $0 $0
Barbara Barsocchini (Secretary) $0 $0 $0
Nick S Harris Phd (Director) $0 $0 $0
Chris Green (Director) $0 $0 $0
Raphael Stricker Md (Director) $0 $0 $0
Dorothy Kupcha Leland (Vice President) $0 $0 $0
Stephanie Propp (Director) $0 $0 $0
Ron Lindorf (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$379,262
Expenses
$246,279
Net Income
$132,983
Net Assets
$500,422
Notable Sources of Revenue Percent of Total Revenue
Contributions $300,330
79.2%
Program Services $5,703
1.5%
Investment Income $311
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $72,918
19.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,833
37.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $504,085
Total Liabilities $3,663
Net Assets $500,422

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$238,011
Expenses
$216,189
Net Income
$21,822
Net Assets
$367,439
Notable Sources of Revenue Percent of Total Revenue
Contributions $185,037
77.7%
Program Services $6,737
2.8%
Investment Income $1,281
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $44,956
18.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $76,250
35.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $372,525
Total Liabilities $5,086
Net Assets $367,439

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$237,414
Expenses
$214,911
Net Income
$22,503
Net Assets
$345,617
Notable Sources of Revenue Percent of Total Revenue
Contributions $148,032
62.4%
Program Services $1,357
0.6%
Investment Income $16,476
6.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $59,299
25.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $12,250
5.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $75,000
34.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $345,617
Total Liabilities $0
Net Assets $345,617

Document Links

Fiscal Year Ending Dec.
2010

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$202,919
Expenses
$243,889
Net Income
-$40,970
Net Assets
$323,114
Notable Sources of Revenue Percent of Total Revenue
Contributions $130,153
64.1%
Program Services $2,349
1.2%
Investment Income $1,444
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $61,583
30.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $7,390
3.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $75,000
30.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $327,268
Total Liabilities $4,154
Net Assets $323,114

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »