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Chromosome 18 Registry And Research Society

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$670k (2023)

Expenses
$653k (2023)

Total Assets
$148k (2023)

Total Liabilities
$29.6k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$669,638
Expenses
$653,232
Net Income
$16,406
Net Assets
$118,165
Notable Sources of Revenue Percent of Total Revenue
Contributions $326,574
48.8%
Program Services $133,343
19.9%
Investment Income $17
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $194,969
29.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $14,735
2.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $97,083
14.9%
Professional Fundraising Fees $0
Other Salaries and Wages $158,193
24.2%
Assets/Debt
Total Assets $147,728
Total Liabilities $29,563
Net Assets $118,165
Compensation
Key Employees and Officers Compensation Related Other
Neale Parker (Ceo) $85,410 $0 $11,673
David Aldrup (President) $0 $0 $0
Liz Woodfield (Vp Mem Relation) $0 $0 $0
Claudia Traa (Vp Development) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0
Brad Sheppard (Secretary) $0 $0 $0
Jannine Cody (Founder) $0 $0 $0
Meredith Moore (Director) $0 $0 $0
Keri Lamont (Director) $0 $0 $0
Tony Haney (Director) $0 $0 $0
Kristy Holder (Director) $0 $0 $0
Ashley George (Director) $0 $0 $0
Elizabeth Shaffer (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$511,945
Expenses
$554,942
Net Income
-$42,997
Net Assets
$139,055
Notable Sources of Revenue Percent of Total Revenue
Contributions $293,192
57.3%
Program Services $0
Investment Income $62
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $218,583
42.7%
Sales of Assets -$137
Net Inventory Sales $0
Other Revenue $245
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $219,041
39.5%
Assets/Debt
Total Assets $165,156
Total Liabilities $26,101
Net Assets $139,055
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Meredith Moore (Dir At Large) $0 $0 $0
Liz Woodfield (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0
Carol Conner Cohen (Dir At Large) $0 $0 $0
Tony Haney (Dir At Large) $0 $0 $0
Kristy Holder (Dir At Large) $0 $0 $0
Brad Sheppard (Dir At Large) $0 $0 $0
Keri Lamont (Dir At Large) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$564,448
Expenses
$532,167
Net Income
$32,281
Net Assets
$187,552
Notable Sources of Revenue Percent of Total Revenue
Contributions $394,290
69.9%
Program Services $0
Investment Income $71
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $168,073
29.8%
Sales of Assets -$105
Net Inventory Sales $0
Other Revenue $2,119
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $177,328
33.3%
Assets/Debt
Total Assets $221,868
Total Liabilities $34,316
Net Assets $187,552
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Meredith Moore (Dir At Large) $0 $0 $0
Liz Woodfield (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0
Carol Conner Cohen (Dir At Large) $0 $0 $0
Tom Kunkel (Dir At Large) $0 $0 $0
Brad Sheppard (Dir At Large) $0 $0 $0
Kathy Glascock (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$538,838
Expenses
$566,424
Net Income
-$27,586
Net Assets
$155,771
Notable Sources of Revenue Percent of Total Revenue
Contributions $364,895
67.7%
Program Services $0
Investment Income $33
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $172,422
32.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,488
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $166,525
29.4%
Assets/Debt
Total Assets $219,228
Total Liabilities $63,457
Net Assets $155,771
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Meredith Moore (Dir At Large) $0 $0 $0
Liz Woodfield (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0
Carol Conner Cohen (Dir At Large) $0 $0 $0
Tom Kunkel (Dir At Large) $0 $0 $0
Christine Puckett (Dir At Large) $0 $0 $0
Brad Sheppard (Dir At Large) $0 $0 $0
Kathy Glascock (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$610,222
Expenses
$643,466
Net Income
-$33,244
Net Assets
$183,407
Notable Sources of Revenue Percent of Total Revenue
Contributions $417,886
68.5%
Program Services $0
Investment Income $38
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $190,610
31.2%
Sales of Assets -$67
Net Inventory Sales $0
Other Revenue $1,755
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $135,871
21.1%
Assets/Debt
Total Assets $202,727
Total Liabilities $19,320
Net Assets $183,407
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Katie Bailey (Vice President) $0 $0 $0
Liz Woodfield (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0
Carol Conner Cohen (Dir At Large) $0 $0 $0
Tom Kunkel (Dir At Large) $0 $0 $0
Christine Puckett (Dir At Large) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$514,072
Expenses
$466,309
Net Income
$47,763
Net Assets
$196,101
Notable Sources of Revenue Percent of Total Revenue
Contributions $347,200
67.5%
Program Services $0
Investment Income $126
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $165,248
32.1%
Sales of Assets -$22
Net Inventory Sales $0
Other Revenue $1,520
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $125,694
27.0%
Assets/Debt
Total Assets $216,400
Total Liabilities $20,299
Net Assets $196,101
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Katie Bailey (Vice President) $0 $0 $0
Liz Woodfield (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$516,568
Expenses
$578,991
Net Income
-$62,423
Net Assets
$148,338
Notable Sources of Revenue Percent of Total Revenue
Contributions $347,343
67.2%
Program Services $0
Investment Income $247
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $168,978
32.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $117,896
20.4%
Assets/Debt
Total Assets $171,518
Total Liabilities $23,180
Net Assets $148,338
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Kathy Borello (Vice President) $0 $0 $0
Doug Masterson (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
John Drymala (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$466,273
Expenses
$530,603
Net Income
-$64,330
Net Assets
$210,756
Notable Sources of Revenue Percent of Total Revenue
Contributions $363,909
78.0%
Program Services $0
Investment Income $2,719
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $100,448
21.5%
Sales of Assets -$803
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $88,635
16.7%
Assets/Debt
Total Assets $235,825
Total Liabilities $25,069
Net Assets $210,756
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Kathy Borello (Vice President) $0 $0 $0
Doug Masterson (Vice President) $0 $0 $0
Dave Aldrup (Secretary) $0 $0 $0
Denise Parker (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$502,496
Expenses
$548,534
Net Income
-$46,038
Net Assets
$290,252
Notable Sources of Revenue Percent of Total Revenue
Contributions $402,868
80.2%
Program Services $0
Investment Income $2,458
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $97,170
19.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $12,920
2.4%
Professional Fundraising Fees $0
Other Salaries and Wages $31,874
5.8%
Assets/Debt
Total Assets $307,021
Total Liabilities $16,769
Net Assets $290,252
Compensation
Key Employees and Officers Compensation Related Other
Jason Fisher (Vice President) $12,921 $0 $0
Jannine Demars Cody (President) $0 $0 $0
Kathy Borello (Vice President) $0 $0 $0
Kristen Earl (Secretary) $0 $0 $0
Denise Parker (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$550,540
Expenses
$459,393
Net Income
$91,147
Net Assets
$337,007
Notable Sources of Revenue Percent of Total Revenue
Contributions $420,566
76.4%
Program Services $0
Investment Income $5,601
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $124,373
22.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $10,417
2.3%
Professional Fundraising Fees $0
Other Salaries and Wages $36,864
8.0%
Assets/Debt
Total Assets $344,175
Total Liabilities $7,168
Net Assets $337,007
Compensation
Key Employees and Officers Compensation Related Other
Jason Fisher (Vice President) $10,417 $0 $0
Jannine Demars Cody (President) $0 $0 $0
Kathy Borello (Vice President) $0 $0 $0
Kristen Earl (Secretary) $0 $0 $0
Denise Parker (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$446,341
Expenses
$527,631
Net Income
-$81,290
Net Assets
$247,644
Notable Sources of Revenue Percent of Total Revenue
Contributions $353,030
79.1%
Program Services $0
Investment Income $8,907
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $84,404
18.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $52,241
9.9%
Assets/Debt
Total Assets $252,081
Total Liabilities $4,437
Net Assets $247,644
Compensation
Key Employees and Officers Compensation Related Other
Jannine Demars Cody (President) $0 $0 $0
Ben Flowe Jr (Vice President) $0 $0 $0
Kathy Borello (Vice President) $0 $0 $0
Kristen Earl (Secretary) $0 $0 $0
Denise Parker (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$474,792
Expenses
$498,735
Net Income
-$23,943
Net Assets
$323,203
Notable Sources of Revenue Percent of Total Revenue
Contributions $391,779
82.5%
Program Services $0
Investment Income $12,335
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $70,678
14.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $323,873
Total Liabilities $670
Net Assets $323,203

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$409,541
Expenses
$423,591
Net Income
-$14,050
Net Assets
$347,146
Notable Sources of Revenue Percent of Total Revenue
Contributions $347,244
84.8%
Program Services $0
Investment Income -$122
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $62,419
15.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $348,236
Total Liabilities $1,090
Net Assets $347,146

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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