Stxbp1 Foundation

Stxbp1 Disorders
  • Holly Springs, NC
  • Tax exemption issued: May 2017
  • EIN: 82-1439459

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Birth Defects and Genetic Diseases (NTEE)

Donations to this organization are tax deductible.

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Organizations with gross receipts of less than $50,000 can file the form 990-N postcard filing, which doesn’t include financial details. All Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,420,429
Expenses
$1,268,147
Net Income
$152,282
Net Assets
$1,165,380
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,370,768
96.5%
Program Services $0
Investment Income $49,661
3.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,487,440
Total Liabilities $322,060
Net Assets $1,165,380
Compensation
Key Employees and Officers Compensation Related Other
Charlene Son Rigby (President) $0 $0 $0
Melissa Hioco (Director, Community Engagement) $0 $0 $0
Jacqueline Steinberg (Vice President & Scientifi) $0 $0 $0
Heather Jones (Treasurer) $0 $0 $0
Russ Novy (Director, Marketing & Brand) $0 $0 $0
Cristina Brennan (Secretary) $0 $0 $0
Jared Barnum (Director, Technology) $0 $0 $0
Daniele Greiner (Director, Development) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 11, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$735,527
Expenses
$1,323,859
Net Income
-$588,332
Net Assets
$1,013,098
Notable Sources of Revenue Percent of Total Revenue
Contributions $694,492
94.4%
Program Services $0
Investment Income $41,035
5.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,367,619
Total Liabilities $354,521
Net Assets $1,013,098
Compensation
Key Employees and Officers Compensation Related Other
Charlene Son Rigby (President) $0 $0 $0
Melissa Hioco (Director, Development) $0 $0 $0
Jacqueline Steinberg (Vice President & Scientifi) $0 $0 $0
Heather Jones (Treasurer) $0 $0 $0
Jennifer Clatterbuck (Director, Community Engage) $0 $0 $0
Russ Novy (Director, Marketing & Bran) $0 $0 $0
Cristina Brennan (Secretary) $0 $0 $0
Jared Barnum (Director, Technology) $0 $0 $0
Daniele Greiner (Director, Development) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 10, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,830,890
Expenses
$509,216
Net Income
$1,321,674
Net Assets
$1,601,430
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,830,890
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,701,392
Total Liabilities $99,962
Net Assets $1,601,430
Compensation
Key Employees and Officers Compensation Related Other
Charlene Son Rigby (President) $0 $0 $0
Melissa Hioco (Director, Development) $0 $0 $0
Jacqueline Steinberg (Vice President & Scientifi) $0 $0 $0
Heather Jones (Treasurer) $0 $0 $0
Jennifer Clatterbuck (Director, Community Engage) $0 $0 $0
Russ Novy (Director, Marketing & Bran) $0 $0 $0
Cristina Brennan (Secretary) $0 $0 $0
Jared Barnum (Director, Technology) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$587,683
Expenses
$626,381
Net Income
-$38,698
Net Assets
$279,756
Notable Sources of Revenue Percent of Total Revenue
Contributions $587,683
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $507,143
Total Liabilities $227,387
Net Assets $279,756
Compensation
Key Employees and Officers Compensation Related Other
Charlene Son Rigby (President) $0 $0 $0
Melissa Hioco (Secretary & Director, Deve) $0 $0 $0
Jacqueline Steinberg (Vice President & Scientifi) $0 $0 $0
Heather Jones (Treasurer) $0 $0 $0
Jennifer Clatterbuck (Director, Community Engage) $0 $0 $0
Russ Novy (Director, Marketing & Bran) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$296,852
Expenses
$12,494
Net Income
$284,358
Net Assets
$318,455
Notable Sources of Revenue Percent of Total Revenue
Contributions $296,852
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $318,455
Total Liabilities $0
Net Assets $318,455
Compensation
Key Employees and Officers Compensation Related Other
Charlene Son Rigby (President) $0 $0 $0
Melissa Hioco (Secretary & Director, Development) $0 $0 $0
Jacqueline Steinberg (Vice President & Scientific Liaison) $0 $0 $0
Heather Jones (Treasurer) $0 $0 $0
Jennifer Clatterbuck (Director, Community Engagement) $0 $0 $0
Russ Novy (Director, Marketing & Brand) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 13, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$105,987
Expenses
$131,060
Net Income
-$25,073
Net Assets
$34,097
Notable Sources of Revenue Percent of Total Revenue
Contributions $112,357
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$6,370
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $34,097
Total Liabilities $0
Net Assets $34,097
Compensation
Key Employees and Officers Compensation Other
Charlene Son Rigby (President) $0 $0
Melissa Hioco (Secretary) $0 $0
Heather Jones (Treasurer) $0 $0
Jennifer Clatterbuck (Communications & Pr Director) $0 $0
Russ Novy (Director, Marketing) $0 $0
+ View more people

Document Links

990-EZ
Filed on July 13, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$61,460
Expenses
$10,776
Net Income
$50,684
Net Assets
$59,170
Notable Sources of Revenue Percent of Total Revenue
Contributions $55,460
90.2%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $59,170
Total Liabilities $0
Net Assets $59,170

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Gross receipts
Less than $50,000

Postcard filings do not ask for a specific revenue amount and provide no additional financial details.

Document Links

990-N

Postcard filing for an organization with gross receipts less than $50,000. These filings do not generate a downloadable form.

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains financial information from tax returns processed by the IRS since the 2012 calendar years, as well as data extracted from digital filings. IRS summary data also includes limited older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits for nonprofit organizations that spent $750,000 or more in federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Most organizations that have been recognized as tax exempt by the IRS have to file the Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file the Form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard," which does not contain financial details. Churches are not required to file Form 990.

Nonprofit Explorer has organizations that are claiming tax exemption in any of the 27 subsections of the 501(c) section of the tax code. Taxable trusts and private foundations that are required to file a form 990PF are also included.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes Employer Identification Numbers and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

See an issue with the data?

Contact Us

About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated