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Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (NTEE)

Donations to this organization are tax deductible.

Details

According to its Dec. 2022 tax filing, this nonprofit:

Reported conflict of interest transactions
Organizations must report loans, grants or business transactions with interested parties, which may include key employees and officers, their family members and any businesses in which they hold a controlling interest. These transactions must be reported on Schedule L.

Summary charts: organization finances over time

Revenue
$945k (2022)

Expenses
$957k (2022)

Total Assets
$2.8M (2022)

Total Liabilities
$120k (2022)

Source: Form 990 tax filings from 2018 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$944,773
Expenses
$957,076
Net Income
-$12,303
Net Assets
$2,682,564
Notable Sources of Revenue Percent of Total Revenue
Contributions $917,577
97.1%
Program Services $0
Investment Income $27,196
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,802,564
Total Liabilities $120,000
Net Assets $2,682,564
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Amber Freed (Founder/Ceo) $0 $0 $0
Kimberly Fry (Vice President) $0 $0 $0
Chantal Pittman (Patient Advocate) $0 $0 $0
Kelsey Piro (Secretary/Treasurer) $0 $0 $0
Dan House (Director Of Engagement) $0 $0 $0
Dr Angela Mazur (Advisor) $0 $0 $0
Gretchen Mcalister (Fundraising Co Chair) $0 $0 $0
Andy Funk (Advisor) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$984,255
Expenses
$482,756
Net Income
$501,499
Net Assets
$2,663,114
Notable Sources of Revenue Percent of Total Revenue
Contributions $983,212
99.9%
Program Services $0
Investment Income $793
0.1%
Bond Proceeds $0
Royalties $250
0.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,783,114
Total Liabilities $120,000
Net Assets $2,663,114
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Amber Freed (Founder / Ceo) $0 $0 $0
Kimberly Fry (Vice President) $0 $0 $0
Kelsey Piro (Secretary / Treasurer) $0 $0 $0
Gretchen Mcallister (Fundraising Co Chair) $0 $0 $0
Todd Griffin (Fundraising Co Chair) $0 $0 $0
Dan House (Director Of Engagement) $0 $0 $0
Chantal Pittman (Patient Advocate) $0 $0 $0
Andy Funk (Advisor) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$800,954
Expenses
$714,151
Net Income
$86,803
Net Assets
$2,161,615
Notable Sources of Revenue Percent of Total Revenue
Contributions $792,915
99.0%
Program Services $0
Investment Income $8,087
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$48
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,212,220
Total Liabilities $50,605
Net Assets $2,161,615
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Amber Freed (Co Founder / Ceo) $0 $0 $0
Mark Freed (Secretary / Treasurer) $0 $0 $0
Angela Mchardy (Director Of Clinical Medic) $0 $0 $0
Kimberly Nichols (Director Of Patient Advoca) $0 $0 $0
Tyler Rabun (Vice Chairperson / Directo) $0 $0 $0
Kimberly Fry (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,076,855
Expenses
$71,569
Net Income
$2,005,286
Net Assets
$2,074,812
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,062,016
99.3%
Program Services $0
Investment Income $14,839
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,124,812
Total Liabilities $50,000
Net Assets $2,074,812
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Amber Freed (Co Founder / Ceo) $0 $0 $0
Scott Fox (Vice Chairperson / Director Of Development) $0 $0 $0
Mark Freed (Secretary / Treasurer) $0 $0 $0
Angela Mchardy (Director Of Clinical Medicine) $0 $0 $0
Kimberly Nichols (Director Of Patient Advocacy) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$114,184
Expenses
$44,658
Net Income
$69,526
Net Assets
$69,526
Notable Sources of Revenue Percent of Total Revenue
Contributions $114,167
100.0%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $69,526
Total Liabilities $0
Net Assets $69,526

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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