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The Sudden Arrhythmia Death Syndromes Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (H8XZ) (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$810k (2023)

Expenses
$812k (2023)

Total Assets
$892k (2023)

Total Liabilities
$142k (2023)

Years with missing data
Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$809,771
Expenses
$812,020
Net Income
-$2,249
Net Assets
$749,604
Notable Sources of Revenue Percent of Total Revenue
Contributions $892,702
> 100%
Program Services $0
Investment Income $24,998
3.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$107,757
Sales of Assets -$172
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $436,127
53.7%
Assets/Debt
Total Assets $891,924
Total Liabilities $142,320
Net Assets $749,604
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $91,233 $0 $0
Michael J Ackerman Md Phd (President) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Philip Murray Howard Iii (Treasurer) $0 $0 $0
Joanna Bewick (Board Member) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Laurie Smith Hooper (Board Member) $0 $0 $0
Jeffrey J Kim Md (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Charles Berul Md (Board Member) $0 $0 $0
Genevie Echols (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$683,854
Expenses
$664,292
Net Income
$19,562
Net Assets
$726,189
Notable Sources of Revenue Percent of Total Revenue
Contributions $785,074
> 100%
Program Services $0
Investment Income $40,738
6.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$103,492
Sales of Assets -$40,366
Net Inventory Sales $0
Other Revenue $1,900
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $398,879
60.0%
Assets/Debt
Total Assets $835,602
Total Liabilities $109,413
Net Assets $726,189
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $94,933 $0 $0
Michael J Ackerman Md Phd (President) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Philip Murray Howard Iii (Treasurer) $0 $0 $0
Joanna Bewick (Board Member) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Laurie Smith Hooper (Board Member) $0 $0 $0
Jeffrey J Kim Md (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Charles Berul Md (Board Member) $0 $0 $0
Genevie Echols (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$843,688
Expenses
$464,515
Net Income
$379,173
Net Assets
$796,829
Notable Sources of Revenue Percent of Total Revenue
Contributions $881,623
> 100%
Program Services $0
Investment Income $18,145
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$56,936
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $856
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $295,398
63.6%
Assets/Debt
Total Assets $872,268
Total Liabilities $75,439
Net Assets $796,829
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $80,000 $0 $0
Joanna Bewick (Board Member) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Maully Shah Mbbs Fhrs Facc (Board Member) $0 $0 $0
Laurie Smith Hooper (Board Member) $0 $0 $0
Philip Murray Howard Iii (Treasurer) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Michael J Ackerman Md Phd (President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$580,555
Expenses
$655,107
Net Income
-$74,552
Net Assets
$417,656
Notable Sources of Revenue Percent of Total Revenue
Contributions $502,659
86.6%
Program Services $22,439
3.9%
Investment Income $18,329
3.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $37,128
6.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $337,129
51.5%
Assets/Debt
Total Assets $454,901
Total Liabilities $37,245
Net Assets $417,656
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $80,000 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Mary Ann Ciciarelli (Board Member) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Alan London (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0
Ian Law Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Michael J Ackerman Md Phd (President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$626,632
Expenses
$565,409
Net Income
$61,223
Net Assets
$492,208
Notable Sources of Revenue Percent of Total Revenue
Contributions $562,505
89.8%
Program Services $21,003
3.4%
Investment Income -$5,389
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $45,751
7.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,762
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $279,043
49.4%
Assets/Debt
Total Assets $542,504
Total Liabilities $50,296
Net Assets $492,208
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $86,000 $0 $0
Michael J Ackerman Md Phd (President) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Alan London (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0
Ian Law Md (Board Member) $0 $0 $0
Mary Ann Ciciarelli (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$741,780
Expenses
$672,394
Net Income
$69,386
Net Assets
$430,985
Notable Sources of Revenue Percent of Total Revenue
Contributions $676,495
91.2%
Program Services $8,696
1.2%
Investment Income $5,577
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $50,839
6.9%
Sales of Assets $173
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $117,174
17.4%
Professional Fundraising Fees $0
Other Salaries and Wages $219,532
32.6%
Assets/Debt
Total Assets $474,035
Total Liabilities $43,050
Net Assets $430,985
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Dir.) $92,174 $0 $0
Michael J Ackerman Md Ph D (President) $25,000 $0 $0
Susan Etheridge Md (Vice President) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Alan London (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0
Ian Law Md (Board Member) $0 $0 $0
Mary Ann Ciciarelli (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$773,012
Expenses
$700,467
Net Income
$72,545
Net Assets
$352,715
Notable Sources of Revenue Percent of Total Revenue
Contributions $708,485
91.7%
Program Services $19,657
2.5%
Investment Income $3,295
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $41,575
5.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,037
11.6%
Professional Fundraising Fees $0
Other Salaries and Wages $237,663
33.9%
Assets/Debt
Total Assets $395,270
Total Liabilities $42,555
Net Assets $352,715
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Dir.) $81,037 $0 $0
Michael J Ackerman Md Ph D (President) $0 $0 $0
Susan Etheridge Md (Vice President) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Brynn Dechert Crooks Rn Msn (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Alan London (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0
Ian Law Md (Board Member) $0 $0 $0
Mary Ann Ciciarelli (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$779,639
Expenses
$676,775
Net Income
$102,864
Net Assets
$280,170
Notable Sources of Revenue Percent of Total Revenue
Contributions $723,707
92.8%
Program Services $14,942
1.9%
Investment Income $4,688
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $36,302
4.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,037
12.0%
Professional Fundraising Fees $0
Other Salaries and Wages $197,072
29.1%
Assets/Debt
Total Assets $302,333
Total Liabilities $22,163
Net Assets $280,170
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Dir.) $81,037 $0 $0
Michael J Ackerman Md Ph D (President) $0 $0 $0
Susan Etheridge Md (Vice President) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Kathryn K Collins Md (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
Alan London (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$706,359
Expenses
$744,685
Net Income
-$38,326
Net Assets
$177,306
Notable Sources of Revenue Percent of Total Revenue
Contributions $675,320
95.6%
Program Services $3,450
0.5%
Investment Income $6,525
0.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $20,838
3.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $226
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $85,552
11.5%
Professional Fundraising Fees $0
Other Salaries and Wages $295,652
39.7%
Assets/Debt
Total Assets $250,880
Total Liabilities $73,574
Net Assets $177,306
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Di) $85,552 $0 $0
Michael J Ackerman Md (President) $55,500 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Susan Etheridge Md (Vice Preside) $0 $0 $0
Chris Anderson Md (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Ian Law Md (Board Member) $0 $0 $0
Anthony Lucatuorto (Board Member) $0 $0 $0
G Michael Vincent Md (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$789,569
Expenses
$803,404
Net Income
-$13,835
Net Assets
$215,632
Notable Sources of Revenue Percent of Total Revenue
Contributions $738,191
93.5%
Program Services $9,925
1.3%
Investment Income $2,907
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $38,546
4.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $80,000
10.0%
Professional Fundraising Fees $0
Other Salaries and Wages $289,182
36.0%
Assets/Debt
Total Assets $330,027
Total Liabilities $114,395
Net Assets $215,632
Compensation
Key Employees and Officers Compensation Related Other
Alice Lara (Executive Dir.) $80,000 $0 $0
Michael J Ackerman Md Ph D (President) $32,000 $0 $0
Joanna Bewick (Treasurer) $0 $0 $0
Charles Berul Md (Board Member) $0 $0 $0
Laurie Hooper (Board Member) $0 $0 $0
Susan Etheridge Md (Vice President) $0 $0 $0
Chris Anderson Md (Board Member) $0 $0 $0
Martin Tristani Firouzi Md (Board Member) $0 $0 $0
Stuart Berger Md (Board Member) $0 $0 $0
Anthony Lucatuorto (Finance Committ) $0 $0 $0
Robert Campbell Md (Board Member) $0 $0 $0
Scott Dailard (Secretary) $0 $0 $0
G Michael Vincent Md (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$855,723
Expenses
$900,494
Net Income
-$44,771
Net Assets
$226,078
Notable Sources of Revenue Percent of Total Revenue
Contributions $882,593
> 100%
Program Services $6,364
0.7%
Investment Income $131
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$33,365
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $127,103
14.1%
Professional Fundraising Fees $0
Other Salaries and Wages $312,398
34.7%
Assets/Debt
Total Assets $287,775
Total Liabilities $61,697
Net Assets $226,078

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$719,587
Expenses
$784,366
Net Income
-$64,779
Net Assets
$270,849
Notable Sources of Revenue Percent of Total Revenue
Contributions $688,996
95.7%
Program Services $11,635
1.6%
Investment Income $329
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$3,108
Sales of Assets -$1,400
Net Inventory Sales $22,594
3.1%
Other Revenue $541
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $87,600
11.2%
Professional Fundraising Fees $0
Other Salaries and Wages $294,821
37.6%
Assets/Debt
Total Assets $288,186
Total Liabilities $17,337
Net Assets $270,849

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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