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Society For Inherited Metabolic Disorders

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Birth Defects and Genetic Diseases (G2XZ) (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.35M (2023)

Expenses
$1.1M (2023)

Total Assets
$1.05M (2023)

Total Liabilities
$0 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,354,915
Expenses
$1,099,432
Net Income
$255,483
Net Assets
$1,048,682
Notable Sources of Revenue Percent of Total Revenue
Contributions $536,154
39.6%
Program Services $801,334
59.1%
Investment Income $17,427
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $60,333
5.5%
Assets/Debt
Total Assets $1,048,682
Total Liabilities $0
Net Assets $1,048,682
Compensation
Key Employees and Officers Compensation Related Other
Georgianne Arnold (Past President & Board Member) $0 $0 $0
Gerard Berry (Past President & Board Member) $0 $0 $0
Susan Berry (President & Board Member) $0 $0 $0
Cary Harding (Treasurer & Board Member) $0 $0 $0
Bruce Barshop (Secretary & Board Member) $0 $0 $0
Debra Regier (President Elect & Board Member) $0 $0 $0
Pete Baker (Membership Chair & Board Member) $0 $0 $0
Jane Deluca (Board Member At Large) $0 $0 $0
Laura Duque Lasio (Board Member At Large) $0 $0 $0
Rebecca Ganetzky (Ed Committee Chair & Board Member) $0 $0 $0
Erin Macleod (Board Member At Large) $0 $0 $0
Irini Manoli (Program Comm. Chair & Board Member) $0 $0 $0
Marzia Pasquali (Board Member At Large) $0 $0 $0
Dawn Peck (Board Member At Large) $0 $0 $0
Amarlis Sanchez Valle (Board Member At Large) $0 $0 $0
David Sinasac (Board Member At Large) $0 $0 $0
Wendy Smith (Board Member At Large) $0 $0 $0
Ashlee Stiles (Board Member At Large) $0 $0 $0
Reid Sutton (Membership Chair & Board Member) $0 $0 $0
Sarah Viall (Board Member At Large) $0 $0 $0
Kirkland Wilson (Board Member At Large) $0 $0 $0
Timothy Wood (Board Member At Large) $0 $0 $0

Document Links

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,017,641
Expenses
$968,108
Net Income
$49,533
Net Assets
$793,199
Notable Sources of Revenue Percent of Total Revenue
Contributions $502,200
49.3%
Program Services $493,754
48.5%
Investment Income $21,687
2.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $50,198
5.2%
Assets/Debt
Total Assets $793,199
Total Liabilities $0
Net Assets $793,199
Compensation
Key Employees and Officers Compensation Related Other
Georgianne Arnold (Past President & Board Member) $0 $0 $0
Gerard Berry (President & Board Member) $0 $0 $0
Cary Harding (Treasurer & Board Member) $0 $0 $0
Bruce Barshop (Secretary & Board Member) $0 $0 $0
Susan Berry (President Elect & Board Member) $0 $0 $0
Reid Sutton (Membership Chair & Board Member) $0 $0 $0
Pete Baker (Board Member At Large) $0 $0 $0
Jane Deluca (Board Member At Large) $0 $0 $0
Laura Duque Lasio (Board Member At Large) $0 $0 $0
Rebecca Ganetzky (Ed Committee Chair & Board Member) $0 $0 $0
Debra Regier (Program Comm. Chair & Board Member) $0 $0 $0
Erin Macleod (Board Member At Large) $0 $0 $0
Irini Manoli (Board Member At Large) $0 $0 $0
Marzia Pasquali (Board Member At Large) $0 $0 $0
Dawn Peck (Board Member At Large) $0 $0 $0
Amarlis Sanchez Valle (Board Member At Large) $0 $0 $0
David Sinasac (Board Member At Large) $0 $0 $0
Wendy Smith (Board Member At Large) $0 $0 $0
Kirkland Wilson (Board Member At Large) $0 $0 $0
Timothy Wood (Board Member At Large) $0 $0 $0

Document Links

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$355,176
Expenses
$403,336
Net Income
-$48,160
Net Assets
$792,338
Notable Sources of Revenue Percent of Total Revenue
Contributions $280,652
79.0%
Program Services $54,463
15.3%
Investment Income $20,061
5.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $29,986
7.4%
Assets/Debt
Total Assets $792,338
Total Liabilities $0
Net Assets $792,338
Compensation
Key Employees and Officers Compensation Related Other
Georgianne Arnold (Past President) $0 $0 $0
Cary Harding (Treasurer) $0 $0 $0
Bruce Barshop (Secretary/Informatics) $0 $0 $0
Susan Berry (President Elect) $0 $0 $0
Marzia Pasquali (Member At Large) $0 $0 $0
Gerard Berry (President) $0 $0 $0
Jane Deluca (Member At Large) $0 $0 $0
Dawn Peck (Member At Large) $0 $0 $0
Debra Regier (Program Chair) $0 $0 $0
V Reid Sutton (Membership Chair) $0 $0 $0
Peter Baker (Member At Large) $0 $0 $0
Laura Duque Lasio (Member At Large) $0 $0 $0
Rebecca Ganetzky (Ed Committee Chair) $0 $0 $0
Erin Mac Leod (Member At Large) $0 $0 $0
Irini Manoli (Member At Large) $0 $0 $0
Amarilis Sanchez Valle (Member At Large) $0 $0 $0
David Sinasac (Member At Large) $0 $0 $0
Kirkland Wilson (Member At Large) $0 $0 $0

Document Links

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$629,625
Expenses
$485,183
Net Income
$144,442
Net Assets
$784,303
Notable Sources of Revenue Percent of Total Revenue
Contributions $547,442
86.9%
Program Services $62,410
9.9%
Investment Income $19,773
3.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $30,741
6.3%
Assets/Debt
Total Assets $784,303
Total Liabilities $0
Net Assets $784,303
Compensation
Key Employees and Officers Compensation Related Other
Georgianne Arnold (President) $0 $0 $0
Cary Harding (Treasurer) $0 $0 $0
Bruce Barshop (Secretary/Informatics) $0 $0 $0
Susan Berry (Program Chairman) $0 $0 $0
Marzia Pasquali (Membership Chair) $0 $0 $0
Gerard Berry (President Elect) $0 $0 $0
Shawn Mc Candless (Past President) $0 $0 $0
Jane Deluca (Member At Large) $0 $0 $0
Dwight Koeberl (Member At Large) $0 $0 $0
Dawn Peck (Member At Large) $0 $0 $0
Debra Regier (Member At Large) $0 $0 $0
V Reid Sutton (Member At Large) $0 $0 $0
Tina Cowan (Member At Large) $0 $0 $0

Document Links

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,050,631
Expenses
$934,797
Net Income
$115,834
Net Assets
$667,654
Notable Sources of Revenue Percent of Total Revenue
Contributions $722,454
68.8%
Program Services $302,245
28.8%
Investment Income $25,932
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $39,810
4.3%
Assets/Debt
Total Assets $667,654
Total Liabilities $0
Net Assets $667,654

Document Links

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$713,686
Expenses
$778,960
Net Income
-$65,274
Net Assets
$551,820
Notable Sources of Revenue Percent of Total Revenue
Contributions $466,923
65.4%
Program Services $242,239
33.9%
Investment Income $4,524
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $32,135
4.1%
Assets/Debt
Total Assets $551,820
Total Liabilities $0
Net Assets $551,820

Document Links

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$513,895
Expenses
$526,692
Net Income
-$12,797
Net Assets
$617,094
Notable Sources of Revenue Percent of Total Revenue
Contributions $365,660
71.2%
Program Services $135,400
26.3%
Investment Income $12,835
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $21,332
4.1%
Assets/Debt
Total Assets $617,094
Total Liabilities $0
Net Assets $617,094
Compensation
Key Employees and Officers Compensation Related Other
Marshall Summar (President & Member) $0 $0 $0
Cary Harding (Treasurer & Member) $0 $0 $0
Bruce Barshop (Webmaster/Secretary & Member) $0 $0 $0
Georgianne Arnold (Program Chairman & Member) $0 $0 $0
Gerald Berry (Membership Chair & Member) $0 $0 $0
Nicole Longo (Past President & Member) $0 $0 $0
Shawn Mccandless (President Elect & Member) $0 $0 $0
Michael Bennett (Member At Large) $0 $0 $0
Susan Berry (Member At Large) $0 $0 $0
Kathryn Camp (Member At Large) $0 $0 $0
Tina Cowan (Member At Large) $0 $0 $0
Katrina Dipple (Member At Large) $0 $0 $0
Cynthia Freehauf (Member At Large) $0 $0 $0
Michael Geraghty (Member At Large) $0 $0 $0
Melanie Gillingham (Member At Large) $0 $0 $0
Dwight Koeberl (Member At Large) $0 $0 $0
Fernando Scalgia (Member At Large) $0 $0 $0

Document Links

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$942,308
Expenses
$642,538
Net Income
$299,770
Net Assets
$616,432
Notable Sources of Revenue Percent of Total Revenue
Contributions $279,390
29.6%
Program Services $656,969
69.7%
Investment Income $5,949
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $36,086
5.6%
Assets/Debt
Total Assets $616,432
Total Liabilities $0
Net Assets $616,432

Document Links

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$725,375
Expenses
$721,377
Net Income
$3,998
Net Assets
$596,051
Notable Sources of Revenue Percent of Total Revenue
Contributions $261,367
36.0%
Program Services $472,695
65.2%
Investment Income -$8,687
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $29,976
4.2%
Assets/Debt
Total Assets $596,051
Total Liabilities $0
Net Assets $596,051

Document Links

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$603,841
Expenses
$568,417
Net Income
$35,424
Net Assets
$592,053
Notable Sources of Revenue Percent of Total Revenue
Contributions $298,000
49.4%
Program Services $272,464
45.1%
Investment Income $31,007
5.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,370
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $38,178
6.7%
Assets/Debt
Total Assets $592,053
Total Liabilities $0
Net Assets $592,053

Document Links

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$673,890
Expenses
$448,759
Net Income
$225,131
Net Assets
$556,629
Notable Sources of Revenue Percent of Total Revenue
Contributions $288,860
42.9%
Program Services $371,365
55.1%
Investment Income $8,570
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,095
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $21,755
4.8%
Assets/Debt
Total Assets $556,629
Total Liabilities $0
Net Assets $556,629

Document Links

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$571,601
Expenses
$522,994
Net Income
$48,607
Net Assets
$620,358
Notable Sources of Revenue Percent of Total Revenue
Contributions $276,303
48.3%
Program Services $280,367
49.0%
Investment Income $14,931
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $30,990
5.9%
Assets/Debt
Total Assets $620,358
Total Liabilities $0
Net Assets $620,358

Document Links

Fiscal Year Ending June
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$673,981
Expenses
$631,557
Net Income
$42,424
Net Assets
$575,397
Notable Sources of Revenue Percent of Total Revenue
Contributions $99,475
14.8%
Program Services $537,443
79.7%
Investment Income $37,063
5.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $575,397
Total Liabilities $0
Net Assets $575,397

Document Links

Fiscal Year Ending June
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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