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Northwest Rett Syndrome Association

  • Seattle, WA
  • Tax-exempt since Dec. 1989
  • EIN: 93-0979668

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$17.9k (2021)

Expenses
$9.67k (2021)

Total Assets
$51.5k (2021)

Total Liabilities
$0 (2021)

Source: Form 990 tax filings from 2012 to 2021

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$17,856
Expenses
$9,668
Net Income
$8,188
Net Assets
$51,513
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,659
98.9%
Program Services $0
Investment Income $47
0.3%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $51,513
Total Liabilities $0
Net Assets $51,513
Compensation
Key Employees and Officers Compensation Other
Glenn Lawson (Treasurer) $0 $0
Sharon Sutherland (Board Member) $0 $0
Megan Brown (President) $0 $0
Gary Kostenko (Board Member) $0 $0
Phillip Baird (Board Member) $0 $0
Lexy Deitchler (Board Member) $0 $0
Forrest Miller (Secretary) $0 $0
Riley Bousson (Board Member) $0 $0
Denise Studebaker (Vice President) $0 $0
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Document Links

990-EZ
Filed on May 23, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$18,716
Expenses
$6,208
Net Income
$12,508
Net Assets
$43,325
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,348
60.6%
Program Services $4,505
24.1%
Investment Income $48
0.3%
Net Fundraising $2,815
15.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $43,325
Total Liabilities $0
Net Assets $43,325
Compensation
Key Employees and Officers Compensation Other
Glenn Lawson (Treasurer) $0 $0
Sharon Sutherland (Board Member) $0 $0
Megan Brown (Board Member) $0 $0
Gary Kostenko (Board Member) $0 $0
Joey Razzano (Board Member) $0 $0
Butch Baird (President) $0 $0
Lexy Deitchler (Board Member) $0 $0
Forrest Miller (Secretary) $0 $0
Shauna Murray (Vice President) $0 $0
Riley Bousson (Board Member) $0 $0
Denise Studebaker (Board Member) $0 $0
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Document Links

990-EZ
Filed on July 27, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$39,366
Expenses
$34,405
Net Income
$4,961
Net Assets
$30,817
Notable Sources of Revenue Percent of Total Revenue
Contributions $18,600
47.2%
Program Services $11,119
28.2%
Investment Income $53
0.1%
Net Fundraising $9,594
24.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $30,817
Total Liabilities $0
Net Assets $30,817

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$18,110
Expenses
$28,697
Net Income
-$10,587
Net Assets
$25,856
Notable Sources of Revenue Percent of Total Revenue
Contributions $8,003
44.2%
Program Services $10,080
55.7%
Investment Income $27
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $25,856
Total Liabilities $0
Net Assets $25,856

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$13,621
Expenses
$29,964
Net Income
-$16,343
Net Assets
$52,517
Notable Sources of Revenue Percent of Total Revenue
Contributions $424
3.1%
Program Services $0
Investment Income $35
0.3%
Net Fundraising $8,618
63.3%
Sales of Assets $0
Net Inventory Sales $4,544
33.4%
Other Revenue $0
Assets/Debt
Total Assets $52,517
Total Liabilities $0
Net Assets $52,517
Compensation
Key Employees and Officers Compensation Other
Lauren Cramer (Board Member) $0 $0
Molly Brignall (Vice President) $0 $0
Gary Kostenko (Financial Secretary) $0 $0
Staci Nelson (Board Member) $0 $0
Gene Valeriote (Board Member) $0 $0
Troy Nelson (President) $0 $0
Sharon Nichols (Board Member) $0 $0
Patrick Macleod Md (Medical Advisor) $0 $0
Mario Petersen Md (Medical Advisor) $0 $0
Julie Peterson (Recording Secretary) $0 $0
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Document Links

990-EZ
Filed on July 25, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$21,418
Expenses
$13,772
Net Income
$7,646
Net Assets
$68,860
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,159
56.8%
Program Services $400
1.9%
Investment Income $0
Net Fundraising $3,755
17.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,104
23.8%
Assets/Debt
Total Assets $68,860
Total Liabilities $0
Net Assets $68,860
Compensation
Key Employees and Officers Compensation Other
Lauren Cramer (Board Member) $0 $0
Molly Brignall (Vice President) $0 $0
Gary Kostenko (Financial Secretary) $0 $0
Staci Nelson (Board Member) $0 $0
Gene Valeriotre (Board Member) $0 $0
Troy Nelson (President) $0 $0
Sharon Nichols (Board Member) $0 $0
Patrick Macleod Md (Medical Advisor) $0 $0
Mario Petersen Md (Medical Advisor) $0 $0
Julie Peterson (Recording Secretary) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 7, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$31,345
Expenses
$27,565
Net Income
$3,780
Net Assets
$61,214
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,374
39.5%
Program Services $5,040
16.1%
Investment Income $0
Net Fundraising $13,902
44.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $29
0.1%
Assets/Debt
Total Assets $61,214
Total Liabilities $0
Net Assets $61,214
Compensation
Key Employees and Officers Compensation Other
Lauren Cramer (President) $0 $0
Molly Brignall (Secretary) $0 $0
Gary Kostenko (Vice President) $0 $0
Staci Nelson (Treasurer) $0 $0
Gene Valeriotre (Board Member) $0 $0
John Burr (Board Member) $0 $0
Troy Nelson (Board Member) $0 $0
Salinda Weimern (Board Member) $0 $0
Sharon Nichols (Board Member) $0 $0
Patrick Macleod Md (Medical Advisor) $0 $0
Mario Petersen Md (Medical Advisor) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 12, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$28,972
Expenses
$19,694
Net Income
$9,278
Net Assets
$57,434
Notable Sources of Revenue Percent of Total Revenue
Contributions $16,607
57.3%
Program Services $3,137
10.8%
Investment Income $0
Net Fundraising $9,071
31.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $157
0.5%
Assets/Debt
Total Assets $57,434
Total Liabilities $0
Net Assets $57,434
Compensation
Key Employees and Officers Compensation Other
Lauren Cramer (President) $0 $0
Molly Brignall (Secretary) $0 $0
Gary Kostenko (Vice President) $0 $0
Staci Nelson (Treasurer) $0 $0
Gene Valeriotre (Board Member) $0 $0
John Burr (Board Member) $0 $0
Troy Nelson (Board Member) $0 $0
Salinda Weimern (Board Member) $0 $0
Sharon Nichols (Board Member) $0 $0
Donna Granger (Board Member) $0 $0
Patrick Macleod Md (Medical Advisor) $0 $0
Mario Petersen Md (Medical Advisor) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 13, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$47,783
Expenses
$37,162
Net Income
$10,621
Net Assets
$48,156
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,986
58.6%
Program Services $4,303
9.0%
Investment Income $0
Net Fundraising $15,298
32.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $21
0.0%
Assets/Debt
Total Assets $48,156
Total Liabilities $0
Net Assets $48,156

Document Links

990-EZ
Filed on Jan. 10, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$32,601
Expenses
$8,170
Net Income
$24,431
Net Assets
$37,535
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,170
34.3%
Program Services $4,637
14.2%
Investment Income $0
Net Fundraising $16,530
50.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $19
0.1%
Assets/Debt
Total Assets $37,535
Total Liabilities $0
Net Assets $37,535

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2011

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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