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Support Organization For Trisomy 18 13 And Related Disorders Soft Inc

  • Rochester, NY
  • Tax-exempt since Dec. 1981
  • EIN: 94-2781004

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$190k (2024)

Expenses
$209k (2024)

Total Assets
$556k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending July
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$190,287
Expenses
$209,361
Net Income
-$19,074
Net Assets
$555,912
Notable Sources of Revenue Percent of Total Revenue
Contributions $137,344
72.2%
Program Services $37,842
19.9%
Investment Income $15,101
7.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $555,912
Total Liabilities $0
Net Assets $555,912
Compensation
Key Employees and Officers Compensation Related Other
Dave Van Herreweghe (Past President) $0 $0 $0
Josh Bradley (President) $0 $0 $0
Terre Krotzer (Vice President) $0 $0 $0
Jennifer Sogge (Vice President) $0 $0 $0
Angie Mc Cauley (Director) $0 $0 $0
Micah Mc Cauley (Director) $0 $0 $0
Dr John Carey (Founding Profes) $0 $0 $0
Leslie Carey (Director) $0 $0 $0
Kris Holladay (Founding Parent) $0 $0 $0
Hal Holladay (Founding Parent) $0 $0 $0
Kelly Hernandez (Vice President) $0 $0 $0
Sal Hernandez (Vice President) $0 $0 $0
Raline Banks (Director) $0 $0 $0
Josh Banks (Director) $0 $0 $0
Jim Dye (Director) $0 $0 $0
Gina Csontos (Director) $0 $0 $0
Glenn Csontos (Director) $0 $0 $0
Barb Van Herreweghe (Past President) $0 $0 $0
Renae Bradley (President) $0 $0 $0
Randy Krotzer (Vice President) $0 $0 $0
Steve Sogge (Vice President) $0 $0 $0
Debbie Dye (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Dec. 6, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending July
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$148,862
Expenses
$71,160
Net Income
$77,702
Net Assets
$574,986
Notable Sources of Revenue Percent of Total Revenue
Contributions $136,509
91.7%
Program Services $4,930
3.3%
Investment Income $7,423
5.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $574,986
Total Liabilities $0
Net Assets $574,986
Compensation
Key Employees and Officers Compensation Related Other
Dave Van Herreweghe (President) $0 $0 $0
Josh Bradley (President Elect) $0 $0 $0
Terre Krotzer (Vice President) $0 $0 $0
Jennifer Sogge (Vice President) $0 $0 $0
Steve Cantrell (Director) $0 $0 $0
Peggy Cantrell (Director) $0 $0 $0
Dr John Carey (Director) $0 $0 $0
Leslie Carey (Director) $0 $0 $0
Kris Holladay (Director) $0 $0 $0
Hal Holladay (Director) $0 $0 $0
Kelly Hernandez (Director) $0 $0 $0
Sal Hernandez (Director) $0 $0 $0
Raline Banks (Director) $0 $0 $0
Josh Banks (Director) $0 $0 $0
Jim Dye (Director) $0 $0 $0
Barb Van Herreweghe (President) $0 $0 $0
Renae Bradley (President Elect) $0 $0 $0
Randy Krotzer (Vice President) $0 $0 $0
Steve Sogge (Vice President) $0 $0 $0
Debbie Dye (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 30, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending July
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$116,278
Expenses
$59,297
Net Income
$56,981
Net Assets
$497,284
Notable Sources of Revenue Percent of Total Revenue
Contributions $110,687
95.2%
Program Services $4,952
4.3%
Investment Income $64
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $575
0.5%
Assets/Debt
Total Assets $497,284
Total Liabilities $0
Net Assets $497,284
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Kristie Lint (Director) $0 $0
Chelsea Dye Wooley (Treasurer) $0 $0
Tyson Garst (Director) $0 $0
Debbie Dye (Secretary) $0 $0
Jim Dye (Director) $0 $0
Jamie Lint (Director) $0 $0
Randy Krotzer (Director) $0 $0
Kris Holladay (Director) $0 $0
Terre Krotzer (Director) $0 $0
Terra Gast (Director) $0 $0
Steve Cantrell (Director) $0 $0
Peggy Cantrell (Director) $0 $0
Dr John Carey (Director) $0 $0
Hal Holladay (Director) $0 $0
Renae Bradley (Director) $0 $0
Josh Bradley (Director) $0 $0
Kelly Hernandez (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Dec. 9, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending July
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$66,750
Expenses
$13,394
Net Income
$53,356
Net Assets
$440,303
Notable Sources of Revenue Percent of Total Revenue
Contributions $60,702
90.9%
Program Services $5,990
9.0%
Investment Income $58
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $440,303
Total Liabilities $0
Net Assets $440,303
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Kristie Lint (Director) $0 $0
Chelsea Dye Wooley (Treasurer) $0 $0
Tyson Garst (Director) $0 $0
Debbie Dye (Secretary) $0 $0
Jim Dye (Director) $0 $0
Jamie Lint (Director) $0 $0
Randy Krotzer (Director) $0 $0
Kris Holladay (Director) $0 $0
Terre Krotzer (Director) $0 $0
Terra Gast (Director) $0 $0
Steve Cantrell (Director) $0 $0
Peggy Cantrell (Director) $0 $0
Dr John Carey (Director) $0 $0
Hal Holladay (Director) $0 $0
Renae Bradley (Director) $0 $0
Josh Bradley (Director) $0 $0
Kelly Hernandez (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 8, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending July
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$61,224
Expenses
$46,479
Net Income
$14,745
Net Assets
$386,947
Notable Sources of Revenue Percent of Total Revenue
Contributions $60,766
99.3%
Program Services $314
0.5%
Investment Income $32
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $112
0.2%
Assets/Debt
Total Assets $386,947
Total Liabilities $0
Net Assets $386,947
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Kristie Lint (Director) $0 $0
Chelsea Dye Wooley (Treasurer) $0 $0
Joe Friedmeyer (Director) $0 $0
Jamie Lint (Director) $0 $0
Kris Holladay (Director) $0 $0
Casey Friedmeyer (Director) $0 $0
Steve Cantrell (Director) $0 $0
Peggy Cantrell (Director) $0 $0
Dr John Carey (Director) $0 $0
Hal Holladay (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Dec. 8, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$132,357
Expenses
$77,783
Net Income
$54,574
Net Assets
$372,202
Notable Sources of Revenue Percent of Total Revenue
Contributions $90,047
68.0%
Program Services $42,291
32.0%
Investment Income $19
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $372,202
Total Liabilities $0
Net Assets $372,202
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Larry Wheat (Director) $0 $0
Chelsea Dye Wooley (Treasurer) $0 $0
Nora Flores (Director) $0 $0
Kris Holladay (Director) $0 $0
Katie Wheat (Director) $0 $0
Steve Cantrell (Director) $0 $0
Peggy Cantrell (Director) $0 $0
Dr John Carey (Director) $0 $0
Hal Holladay (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Dec. 2, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$133,670
Expenses
$101,682
Net Income
$31,988
Net Assets
$317,628
Notable Sources of Revenue Percent of Total Revenue
Contributions $106,802
79.9%
Program Services $26,667
19.9%
Investment Income $19
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $182
0.1%
Other Revenue $0
Assets/Debt
Total Assets $317,628
Total Liabilities $0
Net Assets $317,628
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Debbie Dye (Secretary) $0 $0
Kristie Lint (Director) $0 $0
Casey Friedmeyer (Director) $0 $0
Terre Krotzer (Director) $0 $0
Nora Flores (Director) $0 $0
Terra Spiehs (Director) $0 $0
Kari Adamson (Director) $0 $0
Kristen Thompson (Director) $0 $0
Katie Wheat (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 30, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$145,316
Expenses
$72,177
Net Income
$73,139
Net Assets
$285,640
Notable Sources of Revenue Percent of Total Revenue
Contributions $98,875
68.0%
Program Services $46,282
31.8%
Investment Income $17
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $142
0.1%
Other Revenue $0
Assets/Debt
Total Assets $285,640
Total Liabilities $0
Net Assets $285,640
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Debbie Dye (Secretary) $0 $0
Mark Wright (Treasurer) $0 $0
Kristie Lint (Director) $0 $0
Casey Friedmeyer (Director) $0 $0
Faye Kaufman (Director) $0 $0
Nora Flores (Director) $0 $0
Terra Spiehs (Director) $0 $0
Kari Adamson (Director) $0 $0
Kristen Thompson (Director) $0 $0
Katie Wheat (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Dec. 11, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,671
Expenses
$42,058
Net Income
$42,613
Net Assets
$212,501
Notable Sources of Revenue Percent of Total Revenue
Contributions $62,513
73.8%
Program Services $22,008
26.0%
Investment Income $16
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $134
0.2%
Other Revenue $0
Assets/Debt
Total Assets $212,501
Total Liabilities $0
Net Assets $212,501
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Debbie Dye (Secretary) $0 $0
Mark Wright (Treasurer) $0 $0

Document Links

990-EZ
Filed on Oct. 26, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending July
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$104,992
Expenses
$58,628
Net Income
$46,364
Net Assets
$169,888
Notable Sources of Revenue Percent of Total Revenue
Contributions $82,340
78.4%
Program Services $22,023
21.0%
Investment Income $24
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $605
0.6%
Other Revenue $0
Assets/Debt
Total Assets $169,888
Total Liabilities $0
Net Assets $169,888
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Kris Holladay (Secretary) $0 $0
Mark Wright (Treasurer) $0 $0

Document Links

990-EZ
Filed on Dec. 7, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$90,318
Expenses
$90,941
Net Income
-$623
Net Assets
$123,524
Notable Sources of Revenue Percent of Total Revenue
Contributions $61,000
67.5%
Program Services $28,556
31.6%
Investment Income $39
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $698
0.8%
Other Revenue $0
Assets/Debt
Total Assets $123,524
Total Liabilities $0
Net Assets $123,524
Compensation
Key Employees and Officers Compensation Other
Barb Van Herreweghe (President) $0 $0
Kris Holladay (Secretary) $0 $0
Mark Wright (Treasurer) $0 $0

Document Links

990-EZ
Filed on Nov. 5, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,625
Expenses
$102,727
Net Income
-$38,102
Net Assets
$124,147
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,710
41.3%
Program Services $34,989
54.1%
Investment Income $42
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $1,225
1.9%
Other Revenue $0
Assets/Debt
Total Assets $124,147
Total Liabilities $0
Net Assets $124,147

Document Links

990-EZ
Filed on Jan. 9, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending July
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$130,813
Expenses
$100,757
Net Income
$30,056
Net Assets
$162,249
Notable Sources of Revenue Percent of Total Revenue
Contributions $94,768
72.4%
Program Services $27,780
21.2%
Investment Income $69
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $3,903
3.0%
Other Revenue $0
Assets/Debt
Total Assets $162,249
Total Liabilities $0
Net Assets $162,249

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$71,446
Expenses
$67,814
Net Income
$3,632
Net Assets
$132,193
Notable Sources of Revenue Percent of Total Revenue
Contributions $28,554
40.0%
Program Services $36,052
50.5%
Investment Income $133
0.2%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $3,600
5.0%
Other Revenue $0
Assets/Debt
Total Assets $132,193
Total Liabilities $0
Net Assets $132,193

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending July
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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