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Periodic Paralysis Association

  • Winter Garden, FL
  • Tax-exempt since June 2000
  • EIN: 95-4720469

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Educational Institutions and Related Activities / Libraries (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$31.1k (2024)

Expenses
$32.9k (2024)

Total Assets
$164k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$31,135
Expenses
$32,896
Net Income
-$1,761
Net Assets
$163,572
Notable Sources of Revenue Percent of Total Revenue
Contributions $31,135
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $163,572
Total Liabilities $0
Net Assets $163,572
Compensation
Key Employees and Officers Compensation Related Other
Christine C Staskiewis (Board Member) $0 $0 $0
Evelyn Black (Board Member) $0 $0 $0
Mason Alley (Board Member) $0 $0 $0
Jared Harr (Board Member) $0 $0 $0
Paul Willis (Board Member) $0 $0 $0
Holly Benson (Board Member) $0 $0 $0
Teresa Cochran (Secretary) $0 $0 $0
Cienna Ditri (President) $0 $0 $0
Heidi Ditri (Treasurer) $0 $0 $0
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Document Links

990
Filed on Nov. 17, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$102,779
Expenses
$51,059
Net Income
$51,720
Net Assets
$206,464
Notable Sources of Revenue Percent of Total Revenue
Contributions $102,707
99.9%
Program Services $0
Investment Income $72
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $206,464
Total Liabilities $0
Net Assets $206,464
Compensation
Key Employees and Officers Compensation Related Other
Cienna Ditri (Treasurer) $0 $0 $0
Christine Conrado Staskiewicz (Growth Development Directort) $0 $0 $0
Monica Cramer (President) $0 $0 $0
Teresa Cochran (Secretary) $0 $0 $0
Evelyn Black (Donor Relations And Fundraisi) $0 $0 $0
+ View more people

Document Links

990
Filed on March 17, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$75,860
Expenses
$94,910
Net Income
-$19,050
Net Assets
$155,329
Notable Sources of Revenue Percent of Total Revenue
Contributions $75,145
99.1%
Program Services $0
Investment Income $715
0.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $155,329
Total Liabilities $0
Net Assets $155,329
Compensation
Key Employees and Officers Compensation Related Other
Monica Cramer (President) $0 $0 $0
Cienna Ditri (Vice President) $0 $0 $0
Christine Conrado Staskiewicz (Growth Development Directort) $0 $0 $0
Teresa Cochran (Secretary) $0 $0 $0
Evelyn Black (Donor Relations And Fundraisi) $0 $0 $0
Mason Alley (Strategic Planning) $0 $0 $0
+ View more people

Document Links

990
Filed on May 22, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$141,642
Expenses
$297,441
Net Income
-$155,799
Net Assets
$174,379
Notable Sources of Revenue Percent of Total Revenue
Contributions $141,144
99.6%
Program Services $0
Investment Income $498
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $174,379
Total Liabilities $0
Net Assets $174,379
Compensation
Key Employees and Officers Compensation Related Other
Mason Alley (Strategic Planning) $0 $0 $0
Monica Cramer (Treasurer) $0 $0 $0
Evelyn Black (Growth & Development) $0 $0 $0
Linda Feld (President) $0 $0 $0
Teresa Cochran (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on May 10, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$32,247
Expenses
$98,516
Net Income
-$66,269
Net Assets
$330,178
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,089
80.9%
Program Services $0
Investment Income $6,158
19.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $330,178
Total Liabilities $0
Net Assets $330,178
Compensation
Key Employees and Officers Compensation Related Other
Eric Sanderse (It Director) $0 $0 $0
Evelyn Black (Growth & Development) $0 $0 $0
Monica Cramer (Treasurer) $0 $0 $0
Linda Feld (President) $0 $0 $0
Jeff Albertson (Secretary) $0 $0 $0
Teresa Cochran (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 12, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$67,682
Expenses
$47,345
Net Income
$20,337
Net Assets
$396,447
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,310
99.5%
Program Services $0
Investment Income $372
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $396,447
Total Liabilities $0
Net Assets $396,447
Compensation
Key Employees and Officers Compensation Related Other
Eric Sanderse (It Director) $0 $0 $0
Jacob Levitt (President) $0 $0 $0
Linda Feld (Vice President) $0 $0 $0
Shelley Shifman (Treasurer) $0 $0 $0
Jeff Albertson (Secretary) $0 $0 $0
Monica Hannin (Treasurer 111019 123119) $0 $0 $0
+ View more people

Document Links

990
Filed on July 2, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$22,947
Expenses
$46,697
Net Income
-$23,750
Net Assets
$375,573
Notable Sources of Revenue Percent of Total Revenue
Contributions $22,947
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $375,573
Total Liabilities $0
Net Assets $375,573
Compensation
Key Employees and Officers Compensation Related Other
Eric Sanderse (It Director) $0 $0 $0
Jacob Levitt (President) $0 $0 $0
Linda Feld (Vice President) $0 $0 $0
Shelley Shifman (Treasurer) $0 $0 $0
Jeff Albertson (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on June 14, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$264,154
Expenses
$91,234
Net Income
$172,920
Net Assets
$399,323
Notable Sources of Revenue Percent of Total Revenue
Contributions $264,154
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $399,323
Total Liabilities $0
Net Assets $399,323
Compensation
Key Employees and Officers Compensation Related Other
Eric Sanderse (It Director) $0 $0 $0
Jacob Levitt (President) $0 $0 $0
Linda Feld (Vice President) $0 $0 $0
Shelley Shifman (Treasurer) $0 $0 $0
Jeff Albertson (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on May 14, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$9,110
Expenses
$7,805
Net Income
$1,305
Net Assets
$181,804
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,110
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $181,804
Total Liabilities $0
Net Assets $181,804
Compensation
Key Employees and Officers Compensation Other
Jacob Levitt (President) $0 $0
Linda Feld (Vice President) $0 $0
Shelley Shifman (Treasurer) $0 $0
Jeff Albertson (Secretary) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 11, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$55,682
Expenses
$25,282
Net Income
$30,400
Net Assets
$180,499
Notable Sources of Revenue Percent of Total Revenue
Contributions $55,682
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $180,499
Total Liabilities $0
Net Assets $180,499
Compensation
Key Employees and Officers Compensation Other
Jacob Levitt (President) $0 $0
Linda Feld (Vice President) $0 $0
Shelly Shifman (Treasurer) $0 $0

Document Links

990-EZ
Filed on May 23, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$40,822
Expenses
$2,196
Net Income
$38,626
Net Assets
$150,099
Notable Sources of Revenue Percent of Total Revenue
Contributions $40,822
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $150,099
Total Liabilities $0
Net Assets $150,099
Compensation
Key Employees and Officers Compensation Other
Jacob Levitt Md (President) $0 $0
Linda Feld (Vice President) $0 $0
Shelly Shifman (Treasurer) $0 $0

Document Links

990-EZ
Filed on April 29, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,124
Expenses
$44,181
Net Income
$39,943
Net Assets
$111,473
Notable Sources of Revenue Percent of Total Revenue
Contributions $84,124
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $111,473
Total Liabilities $0
Net Assets $111,473
Compensation
Key Employees and Officers Compensation Other
Jacob Levitt Md (President) $0 $0
Linda Feld (Vice President) $0 $0
Shelly Shifman (Treasurer) $0 $0
Grace Charles (Board Member, Secretary) $0 $0
Josh Milo (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 12, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$9,731
Expenses
$6,817
Net Income
$2,914
Net Assets
$71,530
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,731
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $71,530
Total Liabilities $0
Net Assets $71,530

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$43,557
Expenses
$27,699
Net Income
$15,858
Net Assets
$68,616
Notable Sources of Revenue Percent of Total Revenue
Contributions $43,557
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $68,616
Total Liabilities $0
Net Assets $68,616

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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