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S.RES.152: A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder.
About this Bill
|This bill was introduced in the||113th Congress|
|This bill is primarily about||health|
|You can||read the bill|
|Sponsor||William Cowan, D-Mass.|
|Introduced||May 22, 2013|
|Latest Major Action||May 22, 2013|
|See it on||GovTrack|
|See it on||C-SPAN|
- Bill introduced in the Senate
- Bill passed in the Senate
- Bill passed in the House
- Bill signed into law
Expresses support for the designation of November 28, 2013, as National Holoprosencephaly Awareness Day.
Urges federal agencies to: (1) continue supporting research to better understand the causes of holoprosencephaly (HPE); (2) provide better counseling to families with the genetic forms of HPE; and (3) develop new ways to treat, and potentially prevent, HPE.
Calls on the people of the United States, interested groups, and affected persons to promote awareness of HPE and to take an active role in the fight to end its devastating effects.
(Source: Congressional Research Service)
|May 22, 2013||Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)|