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Lobbying Relationship

Client

bluebird bio

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Lobbying firm

THE NICKLES GROUP, LLC

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  • Issues related to value based payment and ensuring access to gene therapies. Issues related to rulemaking supporting value based payment arrangements. Monitored drug pricing issues related to H.R. 3, the Elijah E. Cummings Lower Drug Costs Now Act and H.R. 19/S. 2164, the Lower Costs, More Cures Act. Monitored H.R. 5376, the Build Back Better Act, as it relates to drug pricing.
  • Monitored issues related to FDA approval of breakthrough therapies. Cures 2.0 and issues related to FDA.
  • Monitored S.Con.Res. 14, FY 2022 Budget Resolution.
  • Issues related to value based payment and ensuring access to gene therapies. Issues related to rulemaking supporting value based payment arrangements. Cures 2.0 and issues related to FDA. Monitored drug pricing issues related to H.R. 3, the Elijah E. Cummings Lower Drug Costs Now Act and H.R. 19, the Lower Costs, More Cures Act. Monitored FY 2022 Budget Resolution. Monitored H.R. 5376, the Build Back Better Act, as it relates to drug pricing.

Duration: to

General Issues: Medicare/Medicaid, Health Issues, Budget/Appropriations, Government Issues, Taxation/Internal Revenue Code

Spending: about $1,320,000 (But it's complicated. Here's why.)

Agencies lobbied since 2016: U.S. Senate, House of Representatives, Health & Human Services - Dept of (HHS), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), Natl Institutes of Health (NIH), White House Office

Bills mentioned

H.R.1628: American Health Care Act of 2017

Sponsor: Diane Black (R-Tenn.)

S.204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina...

Sponsor: Ron Johnson (R-Wis.)

S.934: FDA Reauthorization Act of 2017

Sponsor: Lamar Alexander (R-Tenn.)

H.R.2430: FDA Reauthorization Act of 2017

Sponsor: Greg Walden (R-Ore.)

S.CON.RES.3: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Michael B. Enzi (R-Wyo.)

S.2689: REGROW Act

Sponsor: Mark Steven Kirk (R-Ill.)

H.R.34: 21st Century Cures Act

Sponsor: Suzanne Bonamici (D-Ore.)

H.R.2368: Right to Try Act

Sponsor: Brian Fitzpatrick (R-Pa.)

H.R.878: Right to Try Act of 2017

Sponsor: Andy Biggs (R-Ariz.)

H.R.1370: An Act to amend the Homeland Security Act of 2002 to require the...

Sponsor: Michael McCaul (R-Texas)

H.R.1: An Act to provide for reconciliation pursuant to titles II and V of the...

Sponsor: Kevin Brady (R-Texas)

H.R.2410: Sickle Cell Disease Research, Surveillance, Prevention, and Treatment...

Sponsor: Danny K. Davis (D-Ill.)

S.2465: Sickle Cell Disease and Other Heritable Blood Disorders Research,...

Sponsor: Tim Scott (R-S.C.)

H.R.1892: Bipartisan Budget Act of 2018

Sponsor: John B. Larson (D-Conn.)

H.R.1625: Consolidated Appropriations Act, 2018

Sponsor: Edward Royce (R-Calif.)

S.2415: Accelerating Kids' Access to Care Act

Sponsor: Charles E. Grassley (R-Iowa)

H.R.3325: ACE Kids Act

Sponsor: Joe L. Barton (R-Texas)

H.R.1839: Medicaid Services Investment and Accountability Act of 2019

Sponsor: Raul Ruiz (D-Calif.)

H.J.RES.31: Consolidated Appropriations Act, 2019

Sponsor: Lucille Roybal-Allard (D-Calif.)

H.R.2296: More Efficient Tools to Realize Information for Consumers Act

Sponsor: Jan Schakowsky (D-Ill.)

H.R.2507: Newborn Screening Saves Lives Reauthorization Act of 2019

Sponsor: Lucille Roybal-Allard (D-Calif.)

S.2543: Prescription Drug Pricing Reduction Act of 2019

Sponsor: Charles E. Grassley (R-Iowa)

H.R.3: Elijah E. Cummings Lower Drug Costs Now Act

Sponsor: Frank Pallone (D-N.J.)

H.R.5882: GENE Therapy Payment Act

Sponsor: Kurt Schrader (D-Ore.)

H.R.3935: Protecting Patients Transportation to Care Act

Sponsor: Buddy Carter (R-Ga.)

H.R.133: Consolidated Appropriations Act, 2021

Sponsor: Henry Cuellar (D-Texas)

H.R.3: Elijah E. Cummings Lower Drug Costs Now Act

Sponsor: Frank Pallone (D-N.J.)

H.R.19: Lower Costs, More Cures Act of 2021

Sponsor: Cathy McMorris Rodgers (R-Wash.)

S.2164: Lower Costs, More Cures Act of 2021

Sponsor: Michael D. Crapo (R-Idaho)

H.R.5376: Inflation Reduction Act of 2022

Sponsor: John Yarmuth (D-Ky.)

S.CON.RES.14: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Bernard Sanders (ID-Vt.)

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Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Stacey Hughes U.S. Senate Budget Cmte, Dpty Staff Dir;Ofce of the Asst. Maj. Ldr (Sen. Nickles), Policy Adv; Office of the Asst. Min. Ldr (Sen. Nickles), Policy Adv.;Senate Spec. Cmte on Aging (Sen.Cohen),Prof. Staff Member; U.S.Sen Connie Mack, Leg Asst/Schdlr
Don Nickles U.S. Senator
Mary Beth Savary Taylor Joint Economic Committee, General Counsel, U.S. Senator Connie Mack, Legislative Assistant
Emily Porter Ofce of Spkr(Rep.Boehner),Asst to Spkr,Policy;Ofce of Min.Leader(Rep.Boehner),Plcy Adv;Ofce of the Maj. Ldr(Rep. Boehner),Plcy Adv;Cmte Ed & the Wrkfrc(Rep.Boehner),Coaltions Dir. for Educ Plcy; Rep.Trent Franks,Sr.Leg.Asst; Rep.Tom Tancredo,Leg.Asst
Katherine Raab House Cmte on Energy and Commerce, Prof. Staff; Congressman Mary Bono, Leg. Asst.; Congressman Elton Gallegly, Leg. Asst.; Congressman Michael Bilirakis, Leg. Asst.; Congressman Michael Bilirakis, Leg. Corr.; Congressman Michael Bilirakis, Staff Asst
Rachel Jones Hensler U.S. Senate Budget Committee, Tax Policy Dir.; Office of U.S. Senator Fred Thompson, Legislative Assistant; Office of U.S. Senator Dave Durenberger, Legislative Assistant; Office of U.S. Senator Dave Durenberger, Legislative Correspondent
Greg D'Angelo White House Office of Management and Budget, Associate Director of Health Programs; Senate Committee on the Budget (Sen. Gregg, Sen. Sessions, and Sen. Enzi), Professional Staff Member.
Brett Baker U.S. Senate Committee on Finance (Senators Crapo, Grassley, and Hatch)-Deputy Health Policy Director; Health Policy Dir.; Senior Policy Advsr; Policy Advisor. U.S. House of Representatives Committee on Ways and Means (Reps. Camp and Ryan) Prof. Staff
Stephanie Badger n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Termination
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Amendment
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Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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