Lobbying Relationship

Client

Sarepta Therapeutics

More records

Lobbying firm

TARPLIN, DOWNS & YOUNG, LLC

More records

  • Federal budget issues
  • Innovation, Duchenne Muscular Dystrophy, platform technologies, value based contracting, gene therapy
  • Medicaid drug rebate program, coverage, state program operations, waivers, gene therapy, value based contracting, Medicaid value based payment rule

Duration: to

General Issues: Budget/Appropriations, Health Issues, Medicare/Medicaid, Copyright/Patent/Trademark, Pharmacy

Spending: about $3,120,000 (But it's complicated. Here's why.)

Agencies lobbied since 2014: U.S. Senate, House of Representatives, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), Health & Human Services - Dept of (HHS), Food & Drug Administration (FDA)

Bills mentioned

S.CON.RES.25: An original concurrent resolution setting forth the congressional budget...

Sponsor: Michael B. Enzi (R-Wyo.)

H.RES.553: Providing for consideration of the concurrent resolution (H. Con. Res....

Sponsor: Rob Woodall (R-Ga.)

H.R.244: Consolidated Appropriations Act, 2017

Sponsor: Paul Cook (R-Calif.)

S.204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina...

Sponsor: Ron Johnson (R-Wis.)

S.456: RACE for Children Act

Sponsor: Michael Bennet (D-Colo.)

S.771: Improving Access To Affordable Prescription Drugs Act

Sponsor: Al Franken (D-Minn.)

S.637: Creating Transparency to Have Drug Rebates Unlocked (C-THRU) Act of 2017

Sponsor: Ron Wyden (D-Ore.)

S.469: Affordable and Safe Prescription Drug Importation Act

Sponsor: Bernard Sanders (ID-Vt.)

H.R.749: Lower Drug Costs through Competition Act

Sponsor: Kurt Schrader (D-Ore.)

H.R.1628: American Health Care Act of 2017

Sponsor: Diane Black (R-Tenn.)

H.R.2430: FDA Reauthorization Act of 2017

Sponsor: Greg Walden (R-Ore.)

H.R.3921: HEALTHY KIDS Act

Sponsor: Michael C. Burgess (R-Texas)

S.1827: KIDS Act of 2017

Sponsor: Orrin G. Hatch (R-Utah)

S.CON.RES.3: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Michael B. Enzi (R-Wyo.)

H.CON.RES.27: Establishing the budget for the United States Government for fiscal year...

Sponsor: Tom Price (R-Ga.)

S.CON.RES.11: An original concurrent resolution setting forth the congressional budget...

Sponsor: Michael B. Enzi (R-Wyo.)

H.R.1314: Bipartisan Budget Act of 2015

Sponsor: Pat Meehan (R-Pa.)

H.R.5325: Continuing Appropriations and Military Construction, Veterans Affairs,...

Sponsor: Tom Graves (R-Ga.)

H.R.2028: Further Continuing and Security Assistance Appropriations Act, 2017

Sponsor: Mike Simpson (R-Idaho)

H.R.6: 21st Century Cures Act

Sponsor: Fred Upton (R-Mich.)

S.2030: Advancing Targeted Therapies for Rare Diseases Act of 2016

Sponsor: Michael Bennet (D-Colo.)

S.2700: FDA and NIH Workforce Authorities Modernization Act

Sponsor: Lamar Alexander (R-Tenn.)

S.2713: Advancing Precision Medicine Act of 2016

Sponsor: Lamar Alexander (R-Tenn.)

S.2742: Promoting Biomedical Research and Public Health for Patients Act

Sponsor: Lamar Alexander (R-Tenn.)

S.1878: Advancing Hope Act of 2016

Sponsor: Bob Casey (D-Pa.)

S.1597: Patient-Focused Impact Assessment Act of 2016

Sponsor: Roger Wicker (R-Miss.)

S.2912: Trickett Wendler Right to Try Act of 2016

Sponsor: Ron Johnson (R-Wis.)

H.R.34: 21st Century Cures Act

Sponsor: Suzanne Bonamici (D-Ore.)

H.R.9: Innovation Act

Sponsor: Robert W. Goodlatte (R-Va.)

S.779: Fair Access to Science and Technology Research Act of 2015

Sponsor: John Cornyn (R-Texas)

H.R.2029: Consolidated Appropriations Act, 2016

Sponsor: Charlie Dent (R-Pa.)

H.R.83: Consolidated and Further Continuing Appropriations Act, 2015

Sponsor: Donna M.C. Christensen (D-Virgin Islands)

S.315: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and...

Sponsor: Amy Klobuchar (D-Minn.)

H.J.RES.124: Continuing Appropriations Resolution, 2015

Sponsor: Harold Rogers (R-Ky.)

H.R.1370: An Act to amend the Homeland Security Act of 2002 to require the...

Sponsor: Michael McCaul (R-Texas)

H.R.1625: Consolidated Appropriations Act, 2018

Sponsor: Edward Royce (R-Calif.)

H.R.1892: Bipartisan Budget Act of 2018

Sponsor: John B. Larson (D-Conn.)

H.R.6157: Department of Defense and Labor, Health and Human Services, and...

Sponsor: Kay Granger (R-Texas)

H.R.695: Department of Defense Appropriations Act, 2018

Sponsor: Adam B. Schiff (D-Calif.)

H.J.RES.31: Consolidated Appropriations Act, 2019

Sponsor: Lucille Roybal-Allard (D-Calif.)

H.R.259: Medicaid Extenders Act of 2019

Sponsor: Frank Pallone (D-N.J.)

H.R.1839: Medicaid Services Investment and Accountability Act of 2019

Sponsor: Raul Ruiz (D-Calif.)

H.R.3164: Agriculture, Rural Development, Food and Drug Administration, and...

Sponsor: Sanford D. Bishop Jr. (D-Ga.)

S.1895: Lower Health Care Costs Act

Sponsor: Lamar Alexander (R-Tenn.)

H.R.4378: Continuing Appropriations Act, 2020, and Health Extenders Act of 2019

Sponsor: Nita M. Lowey (D-N.Y.)

H.R.3: Elijah E. Cummings Lower Drug Costs Now Act

Sponsor: Frank Pallone (D-N.J.)

S.2543: Prescription Drug Pricing Reduction Act of 2019

Sponsor: Charles E. Grassley (R-Iowa)

H.R.1865: Further Consolidated Appropriations Act, 2020

Sponsor: Bill Pascrell Jr. (D-N.J.)

H.R.3055: Further Continuing Appropriations Act, 2020, and Further Health...

Sponsor: José E. Serrano (D-N.Y.)

H.R.6074: Coronavirus Preparedness and Response Supplemental Appropriations Act, 2020

Sponsor: Nita M. Lowey (D-N.Y.)

H.R.6201: Families First Coronavirus Response Act

Sponsor: Nita M. Lowey (D-N.Y.)

S.3548: CARES Act

Sponsor: Mitch McConnell (R-Ky.)

H.R.8337: Continuing Appropriations Act, 2021 and Other Extensions Act

Sponsor: Nita M. Lowey (D-N.Y.)

H.R.133: Consolidated Appropriations Act, 2021

Sponsor: Henry Cuellar (D-Texas)

S.CON.RES.5: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Bernard Sanders (ID-Vt.)

H.R.1319: American Rescue Plan Act of 2021

Sponsor: John Yarmuth (D-Ky.)

S.CON.RES.14: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Bernard Sanders (ID-Vt.)

H.R.3: Elijah E. Cummings Lower Drug Costs Now Act

Sponsor: Frank Pallone (D-N.J.)

H.R.5376: Inflation Reduction Act of 2022

Sponsor: John Yarmuth (D-Ky.)

H.R.2471: Consolidated Appropriations Act, 2022

Sponsor: Hakeem Jeffries (D-N.Y.)

S.4348: FDASLA Act of 2022

Sponsor: Patty Murray (D-Wash.)

H.R.7667: Food and Drug Amendments of 2022

Sponsor: Anna G. Eshoo (D-Calif.)

H.R.6833: Continuing Appropriations and Ukraine Supplemental Appropriations Act, 2023

Sponsor: Angie Craig (D-Minn.)

H.R.2617: Consolidated Appropriations Act, 2023

Sponsor: Gerald E. Connolly (D-Va.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Linda Tarplin Ms. Sp. Asst. to the Pres. for Leg. Affairs; Dep. Asst. Sp. Asst. to the Pres. for Leg. Affairs; Dep. Asst. Sec. for Leg. - HHS
cont. Tarplin positions cont. Tarplin positions Sec. for Leg. - HHS
Raissa Downs Ms. Prin. Dep. Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Prin. Dep. Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Staff Dir., Sub. Cmte. on Employment, Sen. HELP Cmte.
cont. Downs positions cont. Downs positions Leg. - HHS; Staff Dir., Sub. Cmte. on Employment, Sen. HELP Cmte. Sec. for Leg. - HHS; Staff Dir., Sub. Cmte. on Employment, Sen. HELP Cmte.
Jennifer Young Ms. Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Cmte. Staff, House Cmte. on Ways and Means; Cmte. Staff, Sen. Cmte. on Finance
cont. Young positions cont. Young positions Cmte. Staff, House Cmte. on Ways and Means; Cmte. Staff, Sen. Cmte. on Finance - HHS; Cmte. Staff, House Cmte. on Ways and Means; Cmte. Staff, Sen. Cmte. on Finance
Michelle Easton Ms. Chief Health Counsel, Sen. Cmte. on Finance; Staff Dir., Chief Health Counsel, Sen. Cmte. on Finance; Staff Dir., Senate Aging Cmte.; Leg. Asst., Congressman Billy Tauzin
cont. Easton positions cont. Easton positions Senate Aging Cmte.; Leg. Asst. Congressman Billy Tauzin Staff Dir., Senate Aging Cmte.; Leg. Asst.
Elizabeth Murray Ms. Senior Policy Advisor, Democratic Whip Steny Hoyer; Senior Policy Advisor, Democratic Whip Steny Hoyer; Legislative Asst. for Rep. Mike Thompson, Rep. Bob Matsui, and Senator Bob Graham
cont. Murray positions cont. Murray positions Legislative Asst. for Rep. Mike Thompson, Rep. Bob Matsui, and Senator Bob Graham Steny Hoyer; Legislative Asst. for Rep. Mike Thompson, Rep. Bob Matsui, and Senator
Raissa Downs Prin. Dep. Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Staff Dir., Sub. Cmte. on Employment, Sen. HELP Cmte.
Jennifer Young Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Cmte. Staff, House Cmte. on Ways and Means; Cmte. Staff, Sen. Cmte. on Finance
Michelle Easton Chief Health Counsel, Sen. Cmte. on Finance; Staff Dir., Senate Aging Cmte.; Leg. Asst., Congressman Billy Tauzin
Elizabeth Murray Senior Policy Advisor, Democratic Whip Steny Hoyer; Legislative Asst. for Rep. Mike Thompson, Rep. Bob Matsui, and Senator Bob Graham
Charlotte Ivancic Legislative Counsel, Senator Jim DeMint; Health Counsel, Majority Leader Bill Frist; Counsel and Budget Analyst, House Budget Committee; Asst. to the Speaker for Policy, Speaker John Boehner
Pamela Smith Leg. Dir., Sen. Tom Harkin; Dep. Staff Dir., Senate HELP Cmte; Staff Dir., Senate HELP Cmte; Counselor to the Asst. AG, Civil Div., Dept of Justice; Spec Counsel, Ofc of Leg. Affairs, Dept of Justice; Counsel and LA, Senator Carol Moseley-Braun
Charlotte Ivancic Ms. Legislative Counsel, Senator Jim DeMint; Health Counsel, Majority Leader Bill Frist; Counsel and Budget Analyst, House Budget Committee; Asst. to the Speaker for Policy, Speaker John Boehner
Jennifer Young m Asst. Sec. for Leg. - HHS; Dep. Asst. Sec. for Leg. - HHS; Cmte. Staff, House Cmte. on Ways and Means; Cmte. Staff, Sen. Cmte. on Finance
Elizabeth Murray M Senior Policy Advisor, Democratic Whip Steny Hoyer; Legislative Asst. for Rep. Mike Thompson, Rep. Bob Matsui, and Senator Bob Graham
Emily Murry Staff Dir., Sub. Cmte. on Health, W&M Cmte; Sr. Policy Advisor, Majority Leader McCarthy; Policy Advisor, Majority Whip McCarthy; Professional Staff, Republican Study Cmte.; Leg. Aid, Rep. Ken Calvert; Leg. Asst., Rep. Tom Price
Kimberly Brandt Sr. Counsel and Dir. External Affairs - HHS OIG; Prin. Dep. Administrator for Policy and Operations and Dir. of Medicare Program Integrity - CMS; Chief Oversight and General Counsel - Senate Cmte. on Finance
Margaret Joseph CoS for Sen. Kyrsten Sinema, CoS for Rep. Kyrsten Sinema, CoS for Rep. Bobby Bright, CoS for Rep. Jim Matheson, Clerk for House Rules Cmte.
Peter Fise Health Counsel for Sen. Cmte on Finance, Health Counsel for Sen. Jeanne Shaheen, Staff Assistant for House Cmte on Oversight & Government Reform
Laura Friedel Leg. Asst., Sen. Zell Miller, Leg. Dir., Sen. Richard Shelby, Clerk, Staff Dir., Sen. Appropriations Committee

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

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Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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