• Health Issues and payment; Medicare and Medicaid Reimbursement for hemophilia services and treatments
• Health Insurance Access and Cost Issues; implementation of Patient Protection and Affordable Care Act.
• Biomedical Research; CDC Hemophilia program; HRSA Hemophilia Program
• Blood and blood product safety; issues related to blood product approvals; Blood donor deferral policies, 340B Drug purchasing program and orphan drugs.
• FY 2011 Labor, Health and Human Services, Education, and Related Agencies appropriations bills; HRSA and CDC hemophilia programs; NIH research funding

Duration: January 1, 2009 to June 30, 2011

General Issues: Medicare/Medicaid, Insurance, Medical/Disease Research/Clinical Labs, Pharmacy, Budget/Appropriations

Spending: about $400,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2009: House of Representatives, U.S. Senate, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), Natl Institutes of Health (NIH), Centers For Disease Control & Prevention (CDC), Health Resources & Services Administration (HRSA), White House Office, Food & Drug Administration (FDA)