Lobbying Relationship

Client

The Marfan Foundation

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Lobbying firm

HEALTH AND MEDICINE COUNSEL OF WASHINGTON

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  • FY20 & FY21 L-HHS Appropriations (Biomedical Research & Public Health Programs) COVID-19 Supplemental Appropriations COVID-19 Legislation
  • Marfan Syndrome Research activities at NIH Marfan Syndrome Education & Awareness & Screening activities at CDC Patients Access to Treatments Act 21st Century Cures Implementation Healthcare Reform, Patient Protections COVID-19 Relief Packages CDC Chronic Disease Education and Awareness

Duration: to

General Issues: Budget/Appropriations, Health Issues, Medical/Disease Research/Clinical Labs

Spending: about $210,000 (But it's complicated. Here's why.)

Agencies lobbied since 2007: U.S. Senate, House of Representatives, Centers For Disease Control & Prevention (CDC), Natl Institutes of Health (NIH), U.S. Senate,, Homeland Security - Dept of (DHS), Health & Human Services - Dept of (HHS)

Bills mentioned

H.R.1600: Patients' Access to Treatments Act of 2015

Sponsor: David McKinley (R-W.Va.)

H.R.460: Patients' Access to Treatments Act of 2013

Sponsor: David McKinley (R-W.Va.)

H.R.3114: Helping Families and Seniors Save on Health Care Act of 2013

Sponsor: Ron Barber (D-Ariz.)

H.R.3497: MODDERN Cures Act of 2011

Sponsor: Leonard Lance (R-N.J.)

H.R.1473: Department of Defense and Full-Year Continuing Appropriations Act, 2011

Sponsor: Harold Rogers (R-Ky.)

H.R.1: Disaster Relief Appropriations Act, 2013

Sponsor: Harold Rogers (R-Ky.)

S.1674: Improving Access to Clinical Trials Act of 2009

Sponsor: Ron Wyden (D-Ore.)

H.R.2866: Improving Access to Clinical Trials Act of 2009

Sponsor: Edward J. Markey (D-Mass.)

H.R.3590: Patient Protection and Affordable Care Act

Sponsor: Charles B. Rangel (D-N.Y.)

H.R.4872: Health Care and Education Reconciliation Act of 2010

Sponsor: John M. Spratt Jr. (D-S.C.)

H.R.3293: Departments of Labor, Health and Human Services, and Education, and...

Sponsor: David R. Obey (D-Wis.)

H.R.3326: Department of Defense Appropriations Act, 2010

Sponsor: John P. Murtha (D-Pa.)

H.R.3288: Consolidated Appropriations Act, 2010

Sponsor: John W. Olver (D-Mass.)

H.R.1558: Preexisting Condition Patient Protection Act of 2009

Sponsor: Joe Courtney (D-Conn.)

S.623: Pre-existing Condition Patient Protection Act of 2009

Sponsor: John D. Rockefeller IV (D-W.Va.)

H.R.1708: Ending the Medicare Disability Waiting Period Act of 2009

Sponsor: Gene Green (D-Texas)

S.700: Ending the Medicare Disability Waiting Period Act of 2009

Sponsor: Jeff Bingaman (D-N.M.)

H.R.1085: Health Insurance Coverage Protection Act

Sponsor: Anna G. Eshoo (D-Calif.)

S.442: Health Insurance Coverage Protection Act

Sponsor: Byron L. Dorgan (D-N.D.)

H.R.3200: America's Affordable Health Choices Act of 2009

Sponsor: John D. Dingell (D-Mich.)

S.1679: Affordable Health Choices Act

Sponsor: Tom Harkin (D-Iowa)

H.R.1: American Recovery and Reinvestment Act of 2009

Sponsor: David R. Obey (D-Wis.)

H.R.1105: Omnibus Appropriations Act, 2009

Sponsor: David R. Obey (D-Wis.)

S.3406: ADA Amendments Act of 2008

Sponsor: Tom Harkin (D-Iowa)

H.R.493: Genetic Information Nondiscrimination Act of 2008

Sponsor: Louise M. Slaughter (D-N.Y.)

S.358: Genetic Information Nondiscrimination Act of 2007

Sponsor: Olympia J. Snowe (R-Maine)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Dale Dirks Legislative Consultant
Gavin Lindberg Legislative Consultant
Dale Dirks Mr Legislative Consultant
Dane Christiansen Mr Legislative Consultant
Joseph Stewart Mr Legislative Consultant
Philip Goglas Mr Legislative Consultant
Haley Payne Ms Legislative Consultant
Philip Goglas, III Mr Legislative Consultant
Gavin Lindberg Mr Legislative Consultant
Philip Goglas, II Mr Legislative Consultant
Andrea Orszag Ms Legislative Consultant

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

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Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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