• Requested report language in the FY 2014 Labor-HHS-Education Appropriations bill urging the NIH to support a stakeholder meeting regarding SMA carrie screening protocols.
• Discussed SMA carrier screening and the role played by the federal government - urged CDC to support a stakeholder conference to align divergent SMA carrier screening guidelines.

Duration: May 1, 2007 to December 31, 2013

General Issues: Budget/Appropriations, Health Issues

Spending: about $70,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2007: U.S. Senate, House of Representatives, Centers For Disease Control & Prevention (CDC), Natl Institutes of Health (NIH), Health & Human Services - Dept of (HHS), Natl Institutes of Health (NIH),