• -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51.3 billion for the NIH, $15 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food & Drug Administrations BA. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
• -S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy. -Support patient-centric implementation of Medicare Part D out-of-pocket cap and smoothing. -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -2025 Notice of Benefit and Payment Parameters rule, comments supporting the proposals -Urge rescission of the 2018 Definition of Employer-Association Health Plans final rule (the 2018 AHP Rule). -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 504 rule, short-term limited duration rule and the 1557 rule. -ERISA RFI, comments to help ensure that people with serious acute and chronic health care conditions who are covered by employer-sponsored plans are protected and have coverage that meets their health care needs -S.2140, The Patent Eligibility Restoration Act, oppose -H.R. 485, Protecting Health Care for All Patients Act, support a ban on the use of quality-adjusted life years -Ensure any regulation of CBD protects safe and legal access. -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of orphan drugs -Support legislation and regulations that help to advance health equity for people with epilepsy -Provide technical assistance on draft bill that would establish a federal grant and subgrant program to better support students with epilepsy in schools
• -Include provisions in FAA reauthorization to make air travel more accessible for passengers with disabilities and to update which medications are part of airplane medical emergency kits -S. 545/H.R. 1267, Air Carrier Access Amendments Act, support passage. -Response to DOT RFI on accessibility of transportation facilities -H.R. 6551, Heroes Earned Affordable Lifts (HEAL) Act, support passage

Duration: November 1, 2007 to present

General Issues: Budget/Appropriations, Health Issues, Civil Rights/Civil Liberties, Education, Veterans

Spending: about $4,310,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2007: U.S. Senate, House of Representatives, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), Labor - Dept of (DOL), Treasury - Dept of, Transportation - Dept of (DOT), Justice - Dept of (DOJ), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), Centers For Disease Control & Prevention (CDC), White House Office, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), Equal Employment Opportunity Commission (EEOC), Natl Institutes of Health (NIH), Health Resources & Services Administration (HRSA), Justice - Dept of (DOJ), Veterans Affairs - Dept of (VA), Y Y Senate Appropriations Committee House Appropriations Committee CDCP Health Resources and Services Administration, National Institute of Health, House Budget Committee, Senate Budget Committee, Y Y House and Senate Veterans Affairs Committees House Defense Appropriations Subcommittee, Y Y House Education and Labor Committee Senate Health, Education, Labor and Pensions Committee, Y Y Senate Finance Committee Senate Health, Labor and Pension Committee House Ways and Means Committee House Energy and Commerce; Center for Medicare and Medicaid Services