- Lobbying
- Lobbying by Rare Disease Company Coalition
Lobbying Relationship
Bills mentioned
H.R.482: Newborn Screening Saves Lives Reauthorization Act of 2021
Sponsor: Lucille Roybal-Allard (D-Calif.)
S.350: Newborn Screening Saves Lives Reauthorization Act of 2021
Sponsor: Margaret Hassan (D-N.H.)
H.R.5376: Inflation Reduction Act of 2022
Sponsor: John Yarmuth (D-Ky.)
H.R.6000: Cures 2.0 Act
Sponsor: Diana DeGette (D-Colo.)
H.R.2623: Cameron’s Law
Sponsor: Josh Gottheimer (D-N.J.)
H.R.5989: Precision Medicine Answers for Kids Today Act
Sponsor: Eric Swalwell (D-Calif.)
H.R.6963: Accelerated Approval Integrity Act of 2022
Sponsor: Frank Pallone (D-N.J.)
H.R.6996: Accelerating Access for Patients Act of 2022
Sponsor: Cathy McMorris Rodgers (R-Wash.)
H.R.5585: ARPA–H Act
Sponsor: Anna G. Eshoo (D-Calif.)
H.R.4472: BENEFIT Act of 2021
Sponsor: Doris Matsui (D-Calif.)
S.373: BENEFIT Act of 2021
Sponsor: Roger Wicker (R-Miss.)
H.R.7667: Food and Drug Amendments of 2022
Sponsor: Anna G. Eshoo (D-Calif.)
S.4348: FDASLA Act of 2022
Sponsor: Patty Murray (D-Wash.)
S.4071: Helping Experts Accelerate Rare Treatments Act of 2022
Sponsor: Bob Casey (D-Pa.)
H.R.2617: Consolidated Appropriations Act, 2023
Sponsor: Gerald E. Connolly (D-Va.)
H.R.2471: Vote Without Fear Act
Sponsor: Raul Ruiz (D-Calif.)
H.R.485: Protecting Health Care for All Patients Act of 2023
Sponsor: Cathy McMorris Rodgers (R-Wash.)
H.R.1350: Cameron’s Law
Sponsor: Josh Gottheimer (D-N.J.)
S.46: American Innovation and Manufacturing Act
Sponsor: Marco Rubio (R-Fla.)
H.R.1805: Leo’s Law
Sponsor: Josh Gottheimer (D-N.J.)
S.866: American Innovation and Jobs Act
Sponsor: Margaret Hassan (D-N.H.)
H.R.2673: American Innovation and R&D Competitiveness Act of 2023
Sponsor: Ron Estes (R-Kansas)
H.R.5376: Share the Savings with Seniors Act
Sponsor: Mariannette Miller-Meeks (R-Iowa)
H.R.5539: ORPHAN Cures Act
Sponsor: John Joyce (R-Pa.)
S.1214: RARE Act
Sponsor: Tammy Baldwin (D-Wis.)
H.R.5339: RETIRE Act
Sponsor: Rick Allen (R-Ga.)
S.3131: ORPHAN Cures Act
Sponsor: John Barrasso (R-Wyo.)
S.1906: Promising Pathway Act
Sponsor: Mike Braun (R-Ind.)
H.R.7384: Creating Hope Reauthorization Act of 2024
Sponsor: Michael McCaul (R-Texas)
H.R.4758: Accelerating Kids’ Access to Care Act
Sponsor: Lori Trahan (D-Mass.)
S.2372: Accelerating Kids’ Access to Care Act
Sponsor: Charles E. Grassley (R-Iowa)
H.R.6664: Innovation in Pediatric Drugs Act of 2023
Sponsor: Anna G. Eshoo (D-Calif.)
H.R.1184: Healthy Dog Importation Act
Sponsor: Dusty Johnson (R-S.D.)
S.4071: Office of Colonias and Farmworker Initiatives Establishment Act of 2024
Sponsor: Martin Heinrich (D-N.M.)
Lobbyists
Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.
Lobbyist | Covered positions? |
---|---|
Benjamin Mason | Communications Director, Rep. David Young January 2017 - June 2017 |
Katie Landes | n/a |
Patroski Lawson | n/a |
Jake Jackson | n/a |
Yoko Rosenbaum | n/a |
Amanda Malakoff | n/a |
Disclosures Filed
Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.
U.S. House of Representatives
U.S. House of Representatives
Natl Institutes of Health (NIH)
U.S. House of Representatives
U.S. House of Representatives
Food & Drug Administration (FDA)
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
Health & Human Services - Dept of (HHS)
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. House of Representatives
U.S. Senate
U.S. House of Representatives
Source: Clerk of the U.S. House of Representatives and Secretary of the Senate