Lobbying Relationship

Client

Rare Disease Company Coalition

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Lobbying firm

THE KPM GROUP DC LLC

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  • S. 1906, the Promising Pathway Act H.R.5539/S.3131, the ORPHAN Cures Act H.R. 7384, the Creating Hope Reauthorization Act H.R.4758/S.2372, the Accelerating Kids Access to Care Act H.R.6664, the Innovation in Pediatric Drugs Act H.R.1184/S.4071, the Helping Experts Accelerate Rare Treatments Act

Duration: to

General Issues: Pharmacy, Health Issues, Medicare/Medicaid

Spending: about $670,000 (But it's complicated. Here's why.)

Agencies lobbied since 2021: U.S. Senate, House of Representatives, Natl Institutes of Health (NIH), Food & Drug Administration (FDA), Health & Human Services - Dept of (HHS)

Bills mentioned

H.R.482: Newborn Screening Saves Lives Reauthorization Act of 2021

Sponsor: Lucille Roybal-Allard (D-Calif.)

S.350: Newborn Screening Saves Lives Reauthorization Act of 2021

Sponsor: Margaret Hassan (D-N.H.)

H.R.5376: Inflation Reduction Act of 2022

Sponsor: John Yarmuth (D-Ky.)

H.R.6000: Cures 2.0 Act

Sponsor: Diana DeGette (D-Colo.)

H.R.2623: Cameron’s Law

Sponsor: Josh Gottheimer (D-N.J.)

H.R.5989: Precision Medicine Answers for Kids Today Act

Sponsor: Eric Swalwell (D-Calif.)

H.R.6963: Accelerated Approval Integrity Act of 2022

Sponsor: Frank Pallone (D-N.J.)

H.R.6996: Accelerating Access for Patients Act of 2022

Sponsor: Cathy McMorris Rodgers (R-Wash.)

H.R.5585: ARPA–H Act

Sponsor: Anna G. Eshoo (D-Calif.)

H.R.4472: BENEFIT Act of 2021

Sponsor: Doris Matsui (D-Calif.)

S.373: BENEFIT Act of 2021

Sponsor: Roger Wicker (R-Miss.)

H.R.7667: Food and Drug Amendments of 2022

Sponsor: Anna G. Eshoo (D-Calif.)

S.4348: FDASLA Act of 2022

Sponsor: Patty Murray (D-Wash.)

S.4071: Helping Experts Accelerate Rare Treatments Act of 2022

Sponsor: Bob Casey (D-Pa.)

H.R.2617: Consolidated Appropriations Act, 2023

Sponsor: Gerald E. Connolly (D-Va.)

H.R.2471: Vote Without Fear Act

Sponsor: Raul Ruiz (D-Calif.)

H.R.485: Protecting Health Care for All Patients Act of 2023

Sponsor: Cathy McMorris Rodgers (R-Wash.)

H.R.1350: Cameron’s Law

Sponsor: Josh Gottheimer (D-N.J.)

S.46: American Innovation and Manufacturing Act

Sponsor: Marco Rubio (R-Fla.)

H.R.1805: Leo’s Law

Sponsor: Josh Gottheimer (D-N.J.)

S.866: American Innovation and Jobs Act

Sponsor: Margaret Hassan (D-N.H.)

H.R.2673: American Innovation and R&D Competitiveness Act of 2023

Sponsor: Ron Estes (R-Kansas)

H.R.5376: Share the Savings with Seniors Act

Sponsor: Mariannette Miller-Meeks (R-Iowa)

H.R.5539: ORPHAN Cures Act

Sponsor: John Joyce (R-Pa.)

S.1214: RARE Act

Sponsor: Tammy Baldwin (D-Wis.)

H.R.5339: RETIRE Act

Sponsor: Rick Allen (R-Ga.)

S.3131: ORPHAN Cures Act

Sponsor: John Barrasso (R-Wyo.)

S.1906: Promising Pathway Act

Sponsor: Mike Braun (R-Ind.)

H.R.7384: Creating Hope Reauthorization Act of 2024

Sponsor: Michael McCaul (R-Texas)

H.R.4758: Accelerating Kids’ Access to Care Act

Sponsor: Lori Trahan (D-Mass.)

S.2372: Accelerating Kids’ Access to Care Act

Sponsor: Charles E. Grassley (R-Iowa)

H.R.6664: Innovation in Pediatric Drugs Act of 2023

Sponsor: Anna G. Eshoo (D-Calif.)

H.R.1184: Healthy Dog Importation Act

Sponsor: Dusty Johnson (R-S.D.)

S.4071: Office of Colonias and Farmworker Initiatives Establishment Act of 2024

Sponsor: Martin Heinrich (D-N.M.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Benjamin Mason Communications Director, Rep. David Young January 2017 - June 2017
Katie Landes n/a
Patroski Lawson n/a
Jake Jackson n/a
Yoko Rosenbaum n/a
Amanda Malakoff n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Q1 Report
Q4 Report
Q3 Report
Q2 Report
Q1 Report
Q4 Report
Q3 Report
Q2 Report
Q1 Report
Q4 Report
Q3 Report
Q2 Report
Q1 Report
Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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