• Increased funding for the Newborn Screening Quality Assurance Program at the Centers for Disease Control and Prevention in the FY 2022 Labor-HHS Appropriations Bill
• Issues related to funding for the Newborn Screening Quality Assurance Program at the Centers for Disease Control and Prevention

Duration: April 1, 2022 to December 31, 2022

General Issues: Budget/Appropriations, Health Issues

Spending: about $90,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2022: House of Representatives, U.S. Senate

Affiliated organizations: Orchard Therapeutics North America; Sarepta Therapeutics, Inc.; Travere Therapeutics, Inc.

Related Foreign Entities: Orchard Therapeutics plc (showing ownership percentage in Orchard Therapeutics North America, Inc.) (London EC4N 6EU, GBR); contribution to lobbying: $0; ownership 100%