Lobbying Relationship

Client

NATIONAL DOWN SYNDROME CONGRESS

More records

Lobbying firm

NATIONAL DOWN SYNDROME CONGRESS

More records

  • We urged Congress to pass the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All (H.R.4550).
  • Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
  • We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
  • Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
  • Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
  • We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.

Duration: to

General Issues: Education, Budget/Appropriations, Health Issues, Medicare/Medicaid, Labor Issues/Antitrust/Workplace, Insurance, Family Issues/Abortion/Adoption, Civil Rights/Civil Liberties, Housing, Medical/Disease Research/Clinical Labs, Transportation, Welfare

Spending: about $0 (But it's complicated. Here's why.)

Agencies lobbied since 2023: U.S. Senate, House of Representatives, Labor - Dept of (DOL), White House Office

Bills mentioned

H.R.3470: Keeping All Students Safe Act

Sponsor: Donald Beyer (D-Va.)

S.1750: Keeping All Students Safe Act

Sponsor: Christopher S. Murphy (D-Conn.)

S.1071: RISE Act

Sponsor: Bob Casey (D-Pa.)

S.2217: IDEA Full Funding Act

Sponsor: Chris Van Hollen (D-Md.)

H.R.4550: To direct the Secretary of Education to carry out a grant program to...

Sponsor: Ann McLane Kuster (D-N.H.)

S.2196: Work Without Worry Act

Sponsor: Ron Wyden (D-Ore.)

S.533: Transformation to Competitive Integrated Employment Act

Sponsor: Bob Casey (D-Pa.)

H.R.1263: Transformation to Competitive Integrated Employment Act

Sponsor: Robert C. Scott (D-Va.)

H.R.3380: Healthcare Extension and Accessibility for Developmentally disabled and...

Sponsor: Seth Moulton (D-Mass.)

S.1332: Recognizing the Role of Direct Support Professionals Act

Sponsor: Margaret Hassan (D-N.H.)

H.R.2941: Recognizing the Role of Direct Support Professionals Act

Sponsor: Brian Fitzpatrick (R-Pa.)

H.R.5408: SSI Savings Penalty Elimination Act

Sponsor: Brian Higgins (D-N.Y.)

S.2767: SSI Savings Penalty Elimination Act

Sponsor: Sherrod Brown (D-Ohio)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Chapman Bryant Policy and Advocacy Associate
Cyrus Huncharek n/a
Jordan Kough n/a
Heather Sachs n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Q1 Report
Q4 Report
Q3 Report
Q2 Report
Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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