Lobbying Relationship

Client

Save Rare Treatments Task Force

More records

Lobbying firm

Leavitt Partners, LLC

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  • Work with Congress and the Administration to ensure that the Orphan Drug Exclusion from eligibility for negotiation under the Medicare Drug Price Negotiation Program allows products to remain excluded so long as their FDA approved uses are exclusively for rare diseases.

Duration: to

General Issues: Health Issues

Spending: about $40,000 (But it's complicated. Here's why.)

Agencies lobbied since 2023: U.S. Senate, House of Representatives

Related Foreign Entities: Daiichi Sankyo Co., LTD. (Chuo-ku, Tokyo, JPN); contribution to lobbying: $0; ownership 100%; UCB S.A. (Belgium, BEL); contribution to lobbying: $0; ownership 100%

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Josh Trent ​Chief Health Counsel for Chairman - House E&C Committee (E&C); Deputy Chief Health Counsel - E&C; Professional Staff - E&C; Health Care Policy Advisor - Senate; Deputy Director Office of Refugee Resettlement HHS; WH Office of Presidential Personnel
Amy Rick Associate Counsel to the President, The White House Director, US Office of Government Ethics Associate Counsel to the President, The White House; Director, US Office of Government Ethics
Robert Alspach Chief Health Counsel for Chairman - House E&C Committee (E&C);Counsel - E&C, Clerk - E&C, and Paid Intern - E&C
Shannon Deere n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Q1 Report
Q4 Report
Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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