Lobbying Relationship

Client

Undiagnosed Disease Network Foundation

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Lobbying firm

BGR Government Affairs

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  • Provide strategic counsel and advocate on issues related to undiagnosed and ultra-rare diseases and appropriations

Duration: to

General Issues: Budget/Appropriations

Spending: about $30,000 (But it's complicated. Here's why.)

Agencies lobbied since 2024: U.S. Senate, House of Representatives

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Bill Viney Aide to Rep. Scott Klug
Remy Brim Senior FDA Policy Advisor to Senate HELP Committee Ranking Member Patty Murray; Senior Health Policy Advisor Sen. Elizabeth Warren; Intern to Rep. Allyson Schwartz ​Senior FDA Policy Advisor to Senate HELP Committee Ranking Member Patty Murray; Senior Health Policy Advisor Sen. Elizabeth Warren; Intern to Rep. Allyson Schwartz
John Stone Counsel, House E&C Cmte, Oversight Subcommittee; Senior Counsel, House E&C Cmte, Health Subcommittee; Intern, House E&C
Syd Terry COS, Rep. Jan Schakowsky; Policy Coordinator for Energy & Commerce; LD, Rep. Jan Schakowsky; Sr. LA, Rep. Mark Pocan; LA for Rep Pocan, Intern Senator Salazar, Intern Senator Levin ​COS, Rep. Jan Schakowsky; Policy Coordinator for Energy & Commerce; LD, Rep. Jan Schakowsky; Sr. LA, Rep. Mark Pocan; LA for Rep Pocan, Intern Senator Salazar, Intern Senator Levin
Joel Bailey COS Rep. Panetta; LD Rep. Ashford; LD Rep. Matheson; Sr. LA Rep. Matsui; LA, Sr. LA Rep. Baron Hill; Intern Rep. Rahall

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Q1 Report
Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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