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Shwachman Diamond Syndrome Foundation Inc

  • Van Wyck, SC
  • Tax-exempt since Oct. 1995
  • EIN: 43-1709945

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Human Services — Multipurpose and Other / Services to Promote the Independence of Specific Populations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$83.7k (2024)

Expenses
$139k (2024)

Total Assets
$207k (2024)

Total Liabilities
−$231 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$83,670
Expenses
$138,602
Net Income
-$54,932
Net Assets
$207,079
Notable Sources of Revenue Percent of Total Revenue
Contributions $78,872
94.3%
Program Services $0
Investment Income $4,798
5.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $15,322
11.1%
Assets/Debt
Total Assets $206,848
Total Liabilities -$231
Net Assets $207,079
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (President) $0 $0 $0
Christian Del Re (Vice President) $0 $0 $0
Mary Balint (Secretary) $0 $0 $0
John Wall (Treasurer) $0 $0 $0
Bryan Sample (Advisor) $0 $0 $0
Deana Valiante (Outside Dir) $0 $0 $0
Shari St Hilaire (Outside Dir) $0 $0 $0
Tom Dahlman (Outside Dir) $0 $0 $0
Pamela Miller (Executive Dir.) $0 $0 $0
+ View more people

Document Links

990
Filed on July 14, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$65,182
Expenses
$46,769
Net Income
$18,413
Net Assets
$262,011
Notable Sources of Revenue Percent of Total Revenue
Contributions $65,165
100.0%
Program Services $0
Investment Income $17
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $16,398
35.1%
Assets/Debt
Total Assets $268,839
Total Liabilities $6,828
Net Assets $262,011
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Acting Pres.) $0 $0 $0
Christian Del Re (Director) $0 $0 $0
Mary Balint (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Savannah Lillywhite (Director) $0 $0 $0
Stephanie Gregoretti (Director) $0 $0 $0
Jenni Wachter (Director) $0 $0 $0
Nicole Shen (Director) $0 $0 $0
Scott Miller (Director) $0 $0 $0
Carolina Cordova (Director) $0 $0 $0
Michelle Grenell (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 12, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$65,663
Expenses
$145,719
Net Income
-$80,056
Net Assets
$243,598
Notable Sources of Revenue Percent of Total Revenue
Contributions $65,637
100.0%
Program Services $0
Investment Income $26
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $20,877
14.3%
Assets/Debt
Total Assets $244,899
Total Liabilities $1,301
Net Assets $243,598
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Acting Pres.) $0 $0 $0
Christian Del Re (Director) $0 $0 $0
Mary Balint (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Savannah Lillywhite (Director) $0 $0 $0
Stephanie Gregoretti (Director) $0 $0 $0
Jenni Wachter (Director) $0 $0 $0
Nicole Shen (Director) $0 $0 $0
Scott Miller (Director) $0 $0 $0
Carolina Cordova (Director) $0 $0 $0
Michelle Grenell (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 10, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$192,083
Expenses
$35,612
Net Income
$156,471
Net Assets
$358,256
Notable Sources of Revenue Percent of Total Revenue
Contributions $192,083
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $15,747
44.2%
Assets/Debt
Total Assets $358,310
Total Liabilities $54
Net Assets $358,256
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Acting Pres.) $0 $0 $0
Christian Del Re (Director) $0 $0 $0
Mary Balint (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Savannah Lillywhite (Director) $0 $0 $0
Stephanie Gregoretti (Director) $0 $0 $0
Jenni Wachter (Director) $0 $0 $0
Nicole Shen (Director) $0 $0 $0
Scott Miller (Director) $0 $0 $0
Carolina Cordova (Director) $0 $0 $0
Michelle Grenell (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 20, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
View Filing (2 of 2) PDF (2 of 2)

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$78,849
Expenses
$97,754
Net Income
-$18,905
Net Assets
$201,785
Notable Sources of Revenue Percent of Total Revenue
Contributions $78,849
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $201,803
Total Liabilities $18
Net Assets $201,785
Compensation
Key Employees and Officers Compensation Other
Joan Mowery (Acting Pres.) $0 $0
Christian Del Re (Director) $0 $0
Mary Balint (Secretary) $0 $0
Pamela Miller (Executive Dir.) $0 $0
Bryan Sample (Treasurer) $0 $0
Savannah Lillywhite (Director) $0 $0
Stephanie Gregoretti (Director) $0 $0
Jenni Wachter (Director) $0 $0
Nicole Shen (Director) $0 $0
Scott Miller (Director) $0 $0
Carolina Cordova (Director) $0 $0
Michelle Grenell (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 24, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$65,678
Expenses
$108,668
Net Income
-$42,990
Net Assets
$220,690
Notable Sources of Revenue Percent of Total Revenue
Contributions $65,678
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $12,479
11.5%
Assets/Debt
Total Assets $224,102
Total Liabilities $3,412
Net Assets $220,690
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Acting Pres.) $0 $0 $0
Christian Del Re (Director) $0 $0 $0
Mary Balint (Secretary) $0 $0 $0
Pamela Miller (Executive Dir.) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Savannah Lillywhite (Director) $0 $0 $0
Stephanie Gregoretti (Director) $0 $0 $0
Jenni Wachter (Director) $0 $0 $0
Nicole Shen (Director) $0 $0 $0
Scott Miller (Director) $0 $0 $0
Carolina Cordova (Director) $0 $0 $0
Michelle Grenell (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 23, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$154,356
Expenses
$79,821
Net Income
$74,535
Net Assets
$263,680
Notable Sources of Revenue Percent of Total Revenue
Contributions $154,356
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $868
1.1%
Assets/Debt
Total Assets $263,680
Total Liabilities $0
Net Assets $263,680
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Vice President) $0 $0 $0
Christian Del Re (Director) $0 $0 $0
Ed Bickel (Director) $0 $0 $0
Pamela Miller (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Christine James (President) $0 $0 $0
Stephanie Gregoretti (Director) $0 $0 $0
Jenni Wachter (Director) $0 $0 $0
Nicole Shen (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 22, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$79,812
Expenses
$58,813
Net Income
$20,999
Net Assets
$189,145
Notable Sources of Revenue Percent of Total Revenue
Contributions $79,812
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $1,218
2.1%
Assets/Debt
Total Assets $189,145
Total Liabilities $0
Net Assets $189,145
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Vice President) $0 $0 $0
Christian Delre (Comm. Chair) $0 $0 $0
Ed Bickel (Media Chair) $0 $0 $0
Pamela Miller (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Christine James (President) $0 $0 $0
Stephanie Gregoretti (Family Support) $0 $0 $0
Jenni Wachter (Chair) $0 $0 $0
Nicole Shen (Chair) $0 $0 $0
Jessica Johnson (Board Advisor) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 24, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$121,560
Expenses
$102,213
Net Income
$19,347
Net Assets
$168,146
Notable Sources of Revenue Percent of Total Revenue
Contributions $121,551
100.0%
Program Services $0
Investment Income $9
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $910
0.9%
Assets/Debt
Total Assets $168,146
Total Liabilities $0
Net Assets $168,146
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Vice President) $0 $0 $0
Christian Delre (Comm. Chair) $0 $0 $0
Ed Bickel (Media Chair) $0 $0 $0
Pamela Miller (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Christine James (President) $0 $0 $0
Stephanie Gregoretti (Family Support) $0 $0 $0
Jenni Wachter (Chair) $0 $0 $0
Nicole Shen (Chair) $0 $0 $0
+ View more people

Document Links

990
Filed on June 23, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$124,204
Expenses
$145,011
Net Income
-$20,807
Net Assets
$148,799
Notable Sources of Revenue Percent of Total Revenue
Contributions $124,181
100.0%
Program Services $0
Investment Income $23
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $1,792
1.2%
Assets/Debt
Total Assets $148,799
Total Liabilities $0
Net Assets $148,799
Compensation
Key Employees and Officers Compensation Related Other
Joan Mowery (Vice President) $0 $0 $0
Christian Delre (Comm. Chair) $0 $0 $0
Ed Bickel (Media Chair) $0 $0 $0
Pamela Miller (Secretary) $0 $0 $0
Bryan Sample (Treasurer) $0 $0 $0
Christine James (President) $0 $0 $0
Stephanie Gregoretti (Family Support) $0 $0 $0
Jenni Wachter (Chair) $0 $0 $0
Nicole Shen (Chair) $0 $0 $0
+ View more people

Document Links

990
Filed on June 8, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,480
Expenses
$81,503
Net Income
-$17,023
Net Assets
$169,606
Notable Sources of Revenue Percent of Total Revenue
Contributions $64,423
99.9%
Program Services $0
Investment Income $57
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $169,606
Total Liabilities $0
Net Assets $169,606
Compensation
Key Employees and Officers Compensation Other
Joan Mowery (Vice President) $0 $0
Christian Delre (Comm. Chair) $0 $0
Ed Bickel (Media Chair) $0 $0
Pamela Miller (Secretary) $0 $0
Bryan Sample (Treasurer) $0 $0
Christine James (President) $0 $0
Stephanie Gregoretti (Family Support) $0 $0
Jenni Wachter (Chair) $0 $0
Paul Taylor (Chair) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 27, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$76,700
Expenses
$39,787
Net Income
$36,913
Net Assets
$186,629
Notable Sources of Revenue Percent of Total Revenue
Contributions $76,645
99.9%
Program Services $0
Investment Income $55
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $186,629
Total Liabilities $0
Net Assets $186,629
Compensation
Key Employees and Officers Compensation Other
Joan Mowery (Vice President) $0 $0
Blair Van Brunt (Chair) $0 $0
Ed Bickel (Chair) $0 $0
Pamela Miller (Secretary) $0 $0
Bryan Sample (Treasurer) $0 $0
Christine James (President) $0 $0
Ed Turkaly (Chair) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 19, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$101,558
Expenses
$33,550
Net Income
$68,008
Net Assets
$149,716
Notable Sources of Revenue Percent of Total Revenue
Contributions $101,512
100.0%
Program Services $0
Investment Income $46
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $150,205
Total Liabilities $489
Net Assets $149,716

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$51,525
Expenses
$81,600
Net Income
-$30,075
Net Assets
$81,708
Notable Sources of Revenue Percent of Total Revenue
Contributions $51,091
99.2%
Program Services $0
Investment Income $434
0.8%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $85,664
Total Liabilities $3,956
Net Assets $81,708

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated