• H.R. 2666 - MVP Act, all provisions. Issues related to the implementation of the CMMI demonstration on Gene Therapy.
• Issues related to gene therapy and rare diseases.

Duration: July 1, 2017 to present

General Issues: Medicare/Medicaid, Health Issues, Pharmacy

Spending: about $5,390,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2017: U.S. Senate, House of Representatives, Health & Human Services - Dept of (HHS), Centers For Medicare and Medicaid Services (CMS), Office of Management & Budget (OMB), Office of the Vice President of the United States