- Lobbying
- Lobbying by Undiagnosed Disease Network Foundation
Lobbying Relationship
Lobbyists
Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.
Lobbyist | Covered positions? |
---|---|
Bill Viney | Aide to Rep. Scott Klug |
Remy Brim | Senior FDA Policy Advisor to Senate HELP Committee Ranking Member Patty Murray; Senior Health Policy Advisor Sen. Elizabeth Warren; Intern to Rep. Allyson Schwartz Senior FDA Policy Advisor to Senate HELP Committee Ranking Member Patty Murray; Senior Health Policy Advisor Sen. Elizabeth Warren; Intern to Rep. Allyson Schwartz |
John Stone | Counsel, House E&C Cmte, Oversight Subcommittee; Senior Counsel, House E&C Cmte, Health Subcommittee; Intern, House E&C |
Syd Terry | COS, Rep. Jan Schakowsky; Policy Coordinator for Energy & Commerce; LD, Rep. Jan Schakowsky; Sr. LA, Rep. Mark Pocan; LA for Rep Pocan, Intern Senator Salazar, Intern Senator Levin COS, Rep. Jan Schakowsky; Policy Coordinator for Energy & Commerce; LD, Rep. Jan Schakowsky; Sr. LA, Rep. Mark Pocan; LA for Rep Pocan, Intern Senator Salazar, Intern Senator Levin |
Joel Bailey | COS Rep. Panetta; LD Rep. Ashford; LD Rep. Matheson; Sr. LA Rep. Matsui; LA, Sr. LA Rep. Baron Hill; Intern Rep. Rahall |
Disclosures Filed
Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.
Q1 Report
Registration
Issue(s) they said they’d lobby about: Provide strategic counsel and advocate on issues related to undiagnosed and ultra-rare diseases and appropriations.
Source: Clerk of the U.S. House of Representatives and Secretary of the Senate