• Public Health Education and Research Program on Tourette Syndrome at the Centers for Disease Control and Prevention and CDC Funding Broadly - Fiscal Year 2023, 2024 and 2025 National Institutes of Health (NIH) Medical Research Funding - Fiscal Year 2023, 2024 and 2025 FY2024 Further Consolidated Appropriations Act-H.R. 2882
• Education Disability Issues, including IDEA Act implementation ESSA (Every Student Succeeds Act) implementation Education needs and experiences of students with Tourette Syndrome, including pell grants and pell grant hour requirement flexibility for students with disabilities including TS
• Mental Health issues (incl. mental health parity, suicide prevention) General Health Care issues for people living with Tourette Syndrome or other Tic Disorders (preexisting coverage, Medicare/Medicaid) Medicare Part D Protected Class Drugs Coverage, Part D coverage Research, medical and scientific issues (including BRAIN initiative) Access to treatment and care issues (including step therapy, prior authorization, non-medical switching - S. 652/HR2630 Safe Step Act) Pharmacy Benefit Manager Reform Act S.1339 Drug Pricing Broadly Telehealth (including S.2016/HR4189 - Connect for Health Act) Consolidated Appropriations Act of 2023 implementation (HR2617) Inflation Reduction Act Implementation
• Access to Care and Treatment Issues (step therapy, prior authorization, non-medical switching) Medicare Part D Protected Class Drugs, Part D coverage (including out of pocket maximum and smoothing mechanism implementation) Telehealth Coverage
• Diversity, Equity, Inclusion and Accessibility in the Federal Workforce - Executive Order 14035

Duration: November 1, 2007 to present

General Issues: Budget/Appropriations, Education, Health Issues, Medicare/Medicaid, Labor Issues/Antitrust/Workplace, Taxation/Internal Revenue Code, Economics/Economic Development, Medical/Disease Research/Clinical Labs

Spending: about $3,112,500 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2007: U.S. Senate, House of Representatives, Centers For Disease Control & Prevention (CDC), Health & Human Services - Dept of (HHS), Natl Institute of Mental Health (NIMH), Education - Dept of, Natl Institutes of Health (NIH), Executive Office of the President (EOP), Interior - Dept of (DOI), Office of Management & Budget (OMB), U.S. Senate,, Social Security Administration (SSA), Y Y Centers For Diseases Control and Prevention, Y Y Department of Education, Y Y, Y Y National Institute of Health (NIH) Centers For Disease Control and Prevention (CDC)